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Posts Made By:
Annlyn
Forum:
her2group
10-09-2007, 01:42 AM
Replies:
29
Gaining Control Of Your Life
Views:
4,787
Posted By
Annlyn
Dear Andi I think you left one off the list!!!!...
Dear Andi
I think you left one off the list!!!!
...and an occasional glass of wine...
Annlyn
Forum:
her2group
10-03-2007, 03:48 PM
Replies:
9
Bladder Leakage
Views:
1,322
Posted By
Annlyn
Creeks are easier to dam than rivers
“Leakage is common but never normal”
<o></o>
This info comes from an article “Surgery Holds the Key to Incontinence” in last weekend’s “The Weekend Australian”.
<o></o>
There...
Forum:
her2group
08-14-2007, 08:30 PM
Replies:
11
That's My Excuse (and I'm stickin to it!)
Views:
1,827
Posted By
Annlyn
6 years on Herceptin this November!!!
Kym, your story gives me strength and it was great to hear from Andi.
I've been feeling a little alone as well - not knowing any long term Herceptin users! I was originally diagnosed with BC in...
Forum:
her2group
03-27-2007, 01:13 AM
Replies:
8
Ladies with Lung mets-Calling out!
Views:
1,560
Posted By
Annlyn
I had heaps of lung mets and a few bone mets in...
I had heaps of lung mets and a few bone mets in November 2001. I went onto Taxol, Herceptin and Aredia but after 11 weeks, although there was no clinical evidence of the mets the doctors recommended...
Forum:
her2group
02-18-2007, 04:56 PM
Replies:
2
Cold or not cold?
Views:
1,229
Posted By
Annlyn
Hi John I apply my 2 week rule - that is I do...
Hi John
I apply my 2 week rule - that is I do everything I would normally do to get rid of the cold, sore leg (i've previously had bone mets) or whatever and if I haven't shaken it in 2 weeks I'm...
Forum:
her2group
02-18-2007, 03:58 PM
Replies:
5
Cough on herceptin
Views:
1,558
Posted By
Annlyn
Hi Grace Before I started on Herceptin in...
Hi Grace
Before I started on Herceptin in December 2001 I had about 30 spots on my lungs and coughed all the time however, over the next 12 months or so the cough decreased and disappeared. Now 5...
Forum:
her2group
09-02-2006, 09:17 PM
Replies:
9
Broken line on port
Views:
1,598
Posted By
Annlyn
Portacath tip removed from heart
Hi all
Sorry for the delay in replying and in finishing my story.
I had the portacath tip (10cm) removed from my heart about a week after my last post. In the end, all the big wigs at the...
Forum:
her2group
08-31-2006, 07:12 AM
Replies:
9
Echo results
Views:
1,111
Posted By
Annlyn
Congrats. The tech told me they seldom get...
Congrats.
The tech told me they seldom get anyone above 70.
Are you exercising? Mine went down to 54 when I was on chemo in 1999 and has stayed there for the 4 1/2 years I've been on Herceptin....
Forum:
her2group
08-31-2006, 06:47 AM
Replies:
17
Vacation from Herceptin?
Views:
1,952
Posted By
Annlyn
I was on Herceptin weekly for nearly 4 years and...
I was on Herceptin weekly for nearly 4 years and regularly took breaks of 2-3 weeks - I always felt so free!! Haven't had a break now I am on 3 weekly but I wouldn't hesitate to miss one so I could...
Forum:
Clinical Trials
08-31-2006, 06:10 AM
Replies:
62
Herceptin Use and Prognosis for Stage IV
Views:
30,054
Posted By
Annlyn
Hi. Life just gets better and better! It is now...
Hi. Life just gets better and better!
It is now nearly 8 years since my diagosis in 1998. I am ER-PR-her2 +++, had approximately 30 spots on the lungs in 2001 and an erosion at T9. I have been on...
Forum:
her2group
07-24-2006, 08:25 PM
Replies:
9
Broken line on port
Views:
1,598
Posted By
Annlyn
Thanks Sheila, Didn't notice the incorrect...
Thanks Sheila, Didn't notice the incorrect spelling _ guess I read for meaning!
Forum:
her2group
07-23-2006, 07:18 AM
Replies:
9
Bad cystitis or kidney stone
Views:
2,225
Posted By
Annlyn
Just a word of warning about cranberry...
Just a word of warning about cranberry supplements and lymphoedema. I took cranberry and cured everything-cystitis and Lymphoedema -or so I thought!! I gradually came off the cranberry and my arm...
Forum:
her2group
07-23-2006, 06:59 AM
Replies:
9
Broken line on port
Views:
1,598
Posted By
Annlyn
Dear Sheila Thank you for the swift response....
Dear Sheila
Thank you for the swift response. I'm glad I stayed up - its 11.49pm here and well past my bedtime. Your GD's situation does sound very similiar to mine. Has she had more scans? Does the...
Forum:
her2group
07-23-2006, 06:32 AM
Replies:
2
Sore tongue from Herceptin?
Views:
1,546
Posted By
Annlyn
My mouth is always sore on Herceptin. I can even...
My mouth is always sore on Herceptin. I can even see bruises on my tongue if I eat crackers or potato chips. Sometimes the skin of an apple is enough to scratch the roof and sides of my mouth and the...
Forum:
her2group
07-23-2006, 06:13 AM
Replies:
14
Herceptin brain update - help needed from ER-,PR- patients on herceptin for primaries
Views:
2,647
Posted By
Annlyn
Brain, memory function has improved since starting Herception
I have Herceptin in response to secondaries but am ER- and PR-.
I had chemo brain for many months after both my first and second chemo courses however all of my thinking faculties (and physical for...
Forum:
her2group
07-23-2006, 05:28 AM
Replies:
9
Broken line on port
Views:
1,598
Posted By
Annlyn
Broken line on port
Has anyone had any experience of the line on a port actually breaking? A piece of the tubing on mine has broken off and is now lodged against the sinus node in the right atrium. I am seeing a cardiac...
Forum:
her2group
07-23-2006, 03:39 AM
Replies:
15
Port infection -what causes them? My lousey experience...
Views:
2,669
Posted By
Annlyn
what is the correct procedure for accessing a port?
Hi Kimberley
Sorry to hear what has happened. A port should not be accessed if it is sore in any way. You definately have something to complain about. However, I would also like to let you know that...
Forum:
her2group
09-26-2005, 03:23 PM
Replies:
0
Exercise and BC
Views:
1,118
Posted By
Annlyn
Exercise and BC
Hi all, Hope this report may be of interest.
EXERCISE AIDS BREAST CANCER SURVIVAL (Health Minutes: 12/09/2005)
A large study strongly suggests that exercise - walking at a moderate pace
for about...
Showing results 1 to 18 of 18
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