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Posts Made By:
Ellie F
Forum:
her2group
05-31-2016, 10:24 AM
Replies:
36
12 years Stage 4 - Still A-OK
Views:
18,606
Posted By
Ellie F
Re: 12 years Stage 4 - Still A-OK
Hi Mamacze, just logged in and seen your post! Congratulations! Glad you got that pesky met removed from your lung and sooooo glad that herceptin is still working wonderfully well for you. May it...
Forum:
her2group
03-11-2016, 12:22 PM
Replies:
3
FABULOUS NEWS..but problematically reported by bbc
Views:
4,518
Posted By
Ellie F
Re: FABULOUS NEWS..but problematically reported by bbc
Hi all
Been checking this out here in England !
My understanding is that herceptin and lapatinib were given for 2 weeks WITHOUT chemo hence the excitement about the response and the hope that some...
Forum:
her2group
11-04-2015, 01:01 PM
Replies:
3
Kadcyla will stay on UK Cancer Drugs Fund
Views:
3,686
Posted By
Ellie F
Re: Kadcyla will stay on UK Cancer Drugs Fund
Thanks for posting. Been at the hospital all day so only just heard. I signed it myself and tried to also get as many signatures as I could.
Totally agree we need to continue the pressure!
Ellie
Forum:
her2group
11-25-2014, 11:35 AM
Replies:
13
Hey Steph and any others on Zometa
Views:
4,121
Posted By
Ellie F
Re: Hey Steph and any others on Zometa
Hi Steph
Thanks for posting about herceptin not having a negative effect on bones. I hadn't been able to find this out and wondered if this may be a cause. I haven't had aromatise inhibitors so I...
Forum:
her2group
11-20-2014, 05:05 AM
Replies:
13
Hey Steph and any others on Zometa
Views:
4,121
Posted By
Ellie F
Re: Hey Steph and any others on Zometa
Hi all
Thank you so much for the information. I was just about to post asking the same question as Kim!
I was diagnosed with osteoporosis two years ago when a ct scan showed small fractures in my...
Forum:
her2group
09-29-2014, 01:38 PM
Replies:
13
"remarkable results" presented for adding Perjeta(pertuzumab)to Herceptin for StageIV
Views:
21,551
Posted By
Ellie F
Re: "remarkable results" presented for adding Perjeta(pertuzumab)to Herceptin for Sta
Thanks so much for posting. This is such brilliant news! I just wanted to say that I hope this will be available for women in the UK. So far NICE ( the body we have here which determines which drugs...
Forum:
her2group
09-12-2014, 12:58 PM
Replies:
17
Dragon is back....need support
Views:
3,824
Posted By
Ellie F
Re: Dragon is back....need support
Hi Rupali
Firstly so sorry to hear you're facing this battle again.
I have looked back over your previous post and noticed you were originally her2+ and ER + and that you had over a year of...
Forum:
her2group
06-02-2014, 01:22 PM
Replies:
27
news from ASCO-- some joyous, some a downer--may set things back a bit
Views:
6,702
Posted By
Ellie F
Re: news from ASCO-- some joyous, some a downer--may set things back a bit
Thanks Lani for the information. As usual very interesting. Was sort of left hoping that Dr Slamon doesn't abandon his mission to 'cure' or at least turn her2 into a manageable long term condition. I...
Forum:
her2group
05-28-2014, 01:32 PM
Replies:
41
Ten Years Stage 4 … and still A-OK
Views:
9,019
Posted By
Ellie F
Re: Ten Years Stage 4 … and still A-OK
Happy birthday, sorry a little late but so pleased to hear your news! May it continue forever!
Love from England
Ellie
Forum:
her2group
04-25-2014, 11:21 AM
Replies:
7
cancer drug turned down by NHS for cost
Views:
3,869
Posted By
Ellie F
Re: cancer drug turned down by NHS for cost
Hi
Checking in to just add how dismayed we are here in England that another cancer drug has been turned down by the bean counters! This happened with lapatinib and others! At present some of these...
Forum:
her2group
02-08-2014, 04:52 AM
Replies:
24
HELP please!! First time on taxotere
Views:
4,745
Posted By
Ellie F
Re: HELP please!! First time on taxotere
Hi
Sorry to hear you're having a bad time. It's one of the most difficult cancer drugs. There are lots of good mouth washes available that really work. As for the rash myself and Chelee had...
Forum:
her2group
01-05-2014, 12:36 PM
Replies:
42
ELAINE M - Another member has her wings
Views:
8,537
Posted By
Ellie F
Re: ELAINE M - Another member has her wings
Very very sorry to hear this news.
Glad that she won her battle against breast cancer, she brought a lot of hope.
Ellie
Forum:
her2group
01-05-2014, 12:25 PM
Replies:
13
5 Year Breast Cancerversary with a side of Non-Hodgkin's Lymphoma
Views:
3,693
Posted By
Ellie F
Re: 5 Year Breast Cancerversary with a side of Non-Hodgkin's Lymphoma
Hi Alice
Congratulations on 5 years NED. Am sorry to hear you're facing another issue but am sure you'll deal with it as before with bc.
May I ask if there is any connection between this new...
Forum:
Herceptin / Tykerb
12-11-2013, 06:07 AM
Replies:
5
Subcutaneous herceptin
Views:
10,835
Posted By
Ellie F
Subcutaneous herceptin
Hi everyone
My onc centre has started using sub cutaneous herceptin recently. Anyone had any experience with it?
Thanks
Ellie
Forum:
Breast Cancer Newsfeed
11-29-2013, 04:42 AM
Replies:
3
Combo of plant nutrients kills breast cancer cells
Views:
2,342
Posted By
Ellie F
Re: Combo of plant nutrients kills breast cancer cells
Me to!
Ellie
Forum:
her2group
11-27-2013, 07:57 AM
Replies:
8
Did I miss something on Fob (full of beans)
Views:
2,648
Posted By
Ellie F
Re: Did I miss something on Fob (full of beans)
Hi all,
I also had emails from FOB but these stopped in the summer. I knew she was weak and having a hard time admitted to hospital. I have had a huge sense of foreboding about her but hope we will...
Forum:
her2group
11-21-2013, 04:09 AM
Replies:
189
NEDenise Has Died
Views:
39,955
Posted By
Ellie F
Re: NEDenise Has Died
Stunned, don't know what to say or feel, just very shocked and distressed foe her family. She was such a brave warrior I can't believe she's gone. Knew it was bad but didn't realise how bad.
Rest in...
Forum:
her2group
11-20-2013, 03:03 PM
Replies:
6
Chilly temperatures help cancers grow
Views:
3,260
Posted By
Ellie F
Re: Chilly temperatures help cancers grow
Thanks, absolutely fascinating Fern! It's certainly true about feeling chilly after treatment! Will be turning the temp up here in the uk!
Hugs
Ellie
Forum:
her2group
11-20-2013, 05:52 AM
Replies:
2
Pertuzumab reverses resistance to TDM-1!!! Thank you, Neil Spector
Views:
2,589
Posted By
Ellie F
Re: Pertuzumab reverses resistance to TDM-1!!! Thank you, Neil Spector
Thanks Lani
Good news for sure! Surely very soon we should be able to stop her2 breast cancer in its tracks! Thank God we have such bright people fighting our corner!
Ellie
Forum:
her2group
11-18-2013, 12:49 PM
Replies:
16
Eyebrows
Views:
3,720
Posted By
Ellie F
Re: Eyebrows
Hi
I also had mine done 2 years after taxotere. I rate it as one of the best things I did after bc. I also had the individual hairs done rather than a solid block. I'm due to have mine topped up...
Forum:
her2group
11-11-2013, 01:36 PM
Replies:
14
To give a little encouragement
Views:
3,212
Posted By
Ellie F
Re: To give a little encouragement
Sherry, so lovely to hear from you and doing great! I also wondered if you were still on herceptin and if so have you any plans to stop?
Hugs
Ellie x
Forum:
Articles of Interest
10-25-2013, 11:15 AM
Replies:
24
Pattern of recurrence of early bc differs by intrinsic subtype & proliferation index
Views:
11,592
Posted By
Ellie F
Re: Pattern of recurrence of early bc differs by intrinsic subtype & proliferation in
Thanks for posting this information. I've waded through and hope I've grasped it! I think ER - PR- her2 + are classified as her 2 enriched?? Is this right? If so the second peak opens lots of...
Forum:
her2group
10-23-2013, 04:21 AM
Replies:
20
Power Port...No blood return
Views:
4,455
Posted By
Ellie F
Re: Power Port...No blood return
Sorry to be chipping in a bit late but wanted to say this has happened to me also on 3 occasions. As well as the other tips it's worth trying to get them to adjust the position of the needle by...
Forum:
her2group
10-18-2013, 10:35 AM
Replies:
29
How long Should I continue herceptin ?
Views:
6,353
Posted By
Ellie F
Re: How long Should I continue herceptin ?
Hi Andi
Looks like there's very little research out there! Think there may be lessons uto learn from women like yourself who have remained NED after stopping! It may give clues and directions to why...
Forum:
her2group
10-17-2013, 09:03 AM
Replies:
2
a Game Changer? how about if we could detect early& prevent invasion of her2+ DCIS?
Views:
2,095
Posted By
Ellie F
Re: a Game Changer? how about if we could detect early& prevent invasion of her2+ DC
Eyes and breast connected? Or have I misunderstood?
Ellie
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