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Posts Made By:
TheresaM
Forum:
her2group
07-22-2007, 12:44 PM
Replies:
9
How to prescribe over state lines?
Views:
1,235
Posted By
TheresaM
thanks, think it will work out
Thanks all for your suggestions. I know my onc here is unlikely to take call from the out of state doc. He does't return calls, even my urgent ones to get a CT read, for example. I know my out of...
Forum:
her2group
07-21-2007, 07:06 PM
Replies:
9
How to prescribe over state lines?
Views:
1,235
Posted By
TheresaM
How to prescribe over state lines?
Hello all: I have a problem I hope someone can help with. I cannot get my general oncologist (the only doc available to me where I am) to prescribe xeloda/tykerb for me because it ceased to work on...
Forum:
her2group
07-21-2007, 06:56 PM
Replies:
31
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Views:
4,067
Posted By
TheresaM
prescribing drugs for patients in other states?
THanks again everyone. Update is my conservative generalist onc here is reluctant to prescribe xeloda/tykerb for me since it ceased working on me in the past, although it was the only thing that...
Forum:
her2group
07-20-2007, 05:31 PM
Replies:
31
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Views:
4,067
Posted By
TheresaM
Thanks everyone, and update
Thanks again for all your kind messages and your encouragement. My breathing continues to worsten, oxygen is at max, making me fear I don't have many days left. Strangely, other than not being able...
Forum:
Herceptin / Tykerb
07-17-2007, 07:49 PM
Replies:
4
Tykerb Absorption
Views:
1,890
Posted By
TheresaM
how are you getting tykerb offlabel?
flori: just curious. why did ur onc recommend tykerb offlabel with your new chemos? will ur insurance pay?
tks.
tykerb/xeloda was the only drug combo that ever worked for me, albeit for a short...
Forum:
her2group
07-17-2007, 07:33 PM
Replies:
31
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Views:
4,067
Posted By
TheresaM
okay back on the attack
To all who so generously offered your suggestions or just sympathy, I wanted to provide an update:
I began Hospice today, they have such great support services, and they permit me to stay on the...
Forum:
her2group
07-14-2007, 10:51 PM
Replies:
65
Mets to lungs
Views:
6,689
Posted By
TheresaM
lung mets - experience varies
ummm, i was shocked at someone's post that lung mets seem easy to get rid of? huh? i think some of us cancer patients live in different worlds than others! like those that say breast cancer is...
Forum:
her2group
07-14-2007, 07:27 PM
Replies:
31
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Views:
4,067
Posted By
TheresaM
Lani
thanks for your sugestions. unfortunately i'm in hawaii and can no longer fly for a clinical trial, using oxygen 24/7, already nearly cranked to the max.
I've done avastin and herceptin, neither...
Forum:
her2group
07-14-2007, 07:22 PM
Replies:
31
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Views:
4,067
Posted By
TheresaM
Becky
Becky, thanks for your suggestions. i'll email my onc about adding tykerb or abraxane. my probem right now is weakness, could hardly drag my body into the car to go downtown one last time yesterday....
Forum:
her2group
07-14-2007, 07:18 PM
Replies:
31
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Views:
4,067
Posted By
TheresaM
Shell...
Shell, your story sounds similar to mine, but congrats on staying alive more than two years after your lung mets. how are your lung mets now?
how do you know abraxane is working, sounds like you...
Forum:
her2group
07-12-2007, 04:40 PM
Replies:
31
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Views:
4,067
Posted By
TheresaM
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?
Hello all: I am er-, but pr+ and HER2+++. I never responded to Herceptin (had it with Taxol/carboplatin and then with Navelbine, no response). I'm stage IV and feel I probably only have a few days...
Forum:
Clinical Trials
05-02-2007, 12:28 PM
Replies:
4
Anyone else in Herceptin+Avastin trial?
Views:
4,542
Posted By
TheresaM
How did you do on avastin?
Appreciate any experience you care to share about using avastin, as I am trying to get it, with gemcitabine/cisplatin.
thanks,
Theresa
Forum:
her2group
05-02-2007, 11:30 AM
Replies:
6
A different kind of survivor's poll..
Views:
1,798
Posted By
TheresaM
Thanks all
Michelle, very interesting story you have. No, I was stage IIb when dx, the cancer just plowed through every treatment, first going through lymphs, then lungs, then skin, then abdomen. I'm on my...
Forum:
her2group
05-01-2007, 05:09 PM
Replies:
6
A different kind of survivor's poll..
Views:
1,798
Posted By
TheresaM
A different kind of survivor's poll..
After reading all the wonderful stories in the survivor poll, a couple of things really stood out for me - all or just about all people who reached NED either responded to Herceptin and/or were...
Forum:
her2group
05-01-2007, 04:48 PM
Replies:
31
Not the news I was hoping for...
Views:
3,614
Posted By
TheresaM
interested in how your trial goes
Chrisy: I'm very interested in how your avastin/tykerb trial goes. I'm about out of options (tykerb/xeloda only worked for a few weeks before I got necrotic bowel and had to stop), and I just...
Forum:
Clinical Trials
05-01-2007, 03:00 PM
Replies:
9
Any info on HKI-272?
Views:
6,428
Posted By
TheresaM
HKI-272 was a bust for me
Hi all, just to update you: I did exactly one month on Wyeth's tyrosine kinase inhibitor HKI-272 in a phase II trial at Seattle. It did not work on me, my lung mets progressed massively in that...
Forum:
Clinical Trials
04-10-2007, 10:53 AM
Replies:
9
Any info on HKI-272?
Views:
6,428
Posted By
TheresaM
I have started HKI-272 trial..
Hello all, just to let you know I began the Wyeth Phase-II trial of HKI-272 one week ago. I will keep all posted as to results. I have mets in both lungs, extensively in lymph system, in abdomen...
Forum:
Clinical Trials
04-10-2007, 10:51 AM
Replies:
7
Tykerb xeloda stopped working
Views:
4,241
Posted By
TheresaM
Ragini you do show one sign of hope...
Ragini: I am like you, except that I've never responded to any chemo or experimental drug at all, let alone for a couple of months. The only one was the EAP trial and I got about 5 weeks of...
Forum:
her2group
03-06-2007, 09:06 PM
Replies:
8
Tykerb (Lapatinib) / Xeloda (Capecitabine)
Views:
1,762
Posted By
TheresaM
tykerb/xeloda
Betty: tykerb/xeloda was the only drug combo that ever slowed my cancer growth (it was my fourth cytotoxic regime, herceptin was a total bust for me). It work like a miracle on my skin mets, lung...
Forum:
her2group
03-06-2007, 09:01 PM
Replies:
8
Greetings (navelbine and herceptin??)
Views:
1,309
Posted By
TheresaM
Navelbine/herceptin a bust for me
Hi: I did 6 months of Herceptin/Navelbine but I never responded to it. My cancer continued to grow and finally metastasized to my lungs during this treatment. I didn't respond to...
Forum:
her2group
03-06-2007, 08:17 PM
Replies:
9
Big Decisions
Views:
1,493
Posted By
TheresaM
big decisions
Melody: My impression, after 3.5 yrs on the her2+ bandwagon, and extensive research and interaction with other Her2+ folks, is that if you respond to Herceptin you may not re-occur. However, if you...
Forum:
her2group
02-26-2007, 09:13 PM
Replies:
15
Devestated
Views:
1,881
Posted By
TheresaM
Take heart, you have every reason to be hopeful
Cathy take heart. You are one of the lucky ones in the sense that you responded to a treatment before. There is no reason to believe you will not respond again. It's a rollercoaster for sure, but...
Forum:
Clinical Trials
02-15-2007, 10:46 PM
Replies:
9
Any info on HKI-272?
Views:
6,428
Posted By
TheresaM
Hki-272
Hi, did your sister start the HKI-272? I have a friend who has been on it 4.5 months. She has extensive mets and seems to be responding to this drug quite well. I also aim to try it once the...
Showing results 1 to 23 of 23
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