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Posts Made By:
Joan
Forum:
her2group
01-22-2006, 08:29 AM
Replies:
10
Pulled off Herceptin
Views:
2,039
Posted By
Joan
Thanks!
Thanks, Rohnda, Susan, Becky, Meridith, Lolly & Al,
I was taking Co Q-10 but now realize that I was talking too low a dose.
Also, apparently C0 -Q-10 brands are formulated differently, as I...
Forum:
her2group
01-20-2006, 04:47 PM
Replies:
10
Pulled off Herceptin
Views:
2,039
Posted By
Joan
Pulled off Herceptin
A couple of weeks ago I started to experience shortness of breath and some chest and throat spasms, feelings like my breath was temporarily shut off, almost like I was going to sneeze or hiccup.
...
Forum:
her2group
01-19-2006, 06:30 AM
Replies:
9
Can anyone 'feel' cancer?
Views:
1,480
Posted By
Joan
Feel Cancer?
For months before I felt my lump, on some days, all of a sudden I could not stand wearing my bra and at the first opportunity would slip it off. I had bra's stuffed in the back of my desk drawer, in...
Forum:
her2group
01-14-2006, 09:51 AM
Replies:
14
I am in need of encouragement
Views:
1,879
Posted By
Joan
Tracy
Dear Tracy,
I just read your post and the replies you received and all of the good advice that has been sent your way. My heart goes out to you. Yes, it is a long and hard road, especially with two...
Forum:
her2group
01-14-2006, 05:47 AM
Replies:
13
A great New Year!!
Views:
1,514
Posted By
Joan
Good News!
Sandy,
Your news was good to read.
Congratulations on your Muga test results going up to 64.
Are you taking Co Q10? Or are the good Muga results brought about by running around and taking...
Forum:
her2group
01-13-2006, 06:43 AM
Replies:
41
another inductee into the exclusive brain met club
Views:
5,287
Posted By
Joan
Inductee
Al, I am so sorry that Linda landed in this club. You are right it sucks!
Please pass along my best wishes to Linda and also best wishes to you as you both recover from this disappointment and...
Forum:
her2group
01-11-2006, 05:08 PM
Replies:
28
Emergency brain MRI
Views:
2,984
Posted By
Joan
Emergency Brain MR!
Hope,
You will be in my thoughts and prayers, especially on Thursday.
I wish you all the best and hope to hear good results.
Kindest Regards,
Joan
Forum:
her2group
01-11-2006, 05:40 AM
Replies:
22
Ralph Moss' report on Herceptin
Views:
5,385
Posted By
Joan
Herceptin criticism
More comments on Herceptin can be found at www.healthyskepticism.org.
Joan
Forum:
her2group
01-06-2006, 06:18 PM
Replies:
31
Here we go again!
Views:
3,515
Posted By
Joan
Stationary Bike
Lisa,
I was sad to read your post, (and a little mad for you) you seemed to be doing so well. You are such a fighter. I am sure you will find a way to get to NED, maybe not on a stationary bike,...
Forum:
her2group
01-05-2006, 05:11 PM
Replies:
6
Happy/Sad New Year
Views:
1,237
Posted By
Joan
Sad/Happy New Year
Geraldine,
What a sad season for you. My condolences on the loss of your mother. It was a blessing in disguise that she did not know about about your diagnosis and therefore did not have to worry...
Forum:
her2group
01-04-2006, 05:23 PM
Replies:
9
Last chemo tomorrow
Views:
1,642
Posted By
Joan
Last chemo
Lexi,
I know how you feel, the mixed emotions came for me, not after chemo but after I finished rads. I am now on Herceptin every 3 weeks, but after completing chemo and rads, I sort of felt 'Is...
Forum:
her2group
01-01-2006, 04:02 PM
Replies:
2
Breathlessness
Views:
1,004
Posted By
Joan
Breathlessness
Has anyone experienced a feeling of breathlessness after completing radiation therapy?
I finished rads in November and I am now getting a feeling, every now and then, like my breath is taken away...
Forum:
her2group
12-31-2005, 08:44 AM
Replies:
0
Happy New Year!
Views:
773
Posted By
Joan
Happy New Year!
Best wishes to each and everyone who is part of or visits this site. Many thanks to the dedicated people who manage the site. I am very grateful for having found the site and for all the support...
Forum:
her2group
12-27-2005, 05:18 AM
Replies:
52
Herceptin and Side Effects
Views:
7,660
Posted By
Joan
Ooops!
Sorry, Snoopy/MCS & Bubbles Mom,
In my post I meant to say that my cancer clinic offers Benadryl along with
two Tylenol as pre-meds to Herceptin and that they want everyone to take
the Benedryl...
Forum:
her2group
12-27-2005, 05:11 AM
Replies:
52
Herceptin and Side Effects
Views:
7,660
Posted By
Joan
Ooops!
Sorry, Snoopy/MCS & Bubbles Mom,
In my post I meant to say that my cancer clinic offers Benadryl along with
two Tylenol as pre-meds to Herceptin and that they want everyone to take
the Benedryl...
Forum:
her2group
12-26-2005, 06:56 PM
Replies:
52
Herceptin and Side Effects
Views:
7,660
Posted By
Joan
To Snoopy & MCS
I will have my 3rd Herceptin on the 28th.
My hair is growing back on my head quite nicely - although coming in grey. My hair eyebrows, eyelashes and alas facial hair came in quickly after finishing...
Forum:
her2group
12-24-2005, 12:55 PM
Replies:
32
A Holiday Greeting from the HER2 Support Group
Views:
3,233
Posted By
Joan
Merry Christmas
Dear Joe & Christine,
Best wishes for a very Merry Christmas.
I am so grateful for your efforts and hard work starting and maintaining this site - it is a godsend to so many.
Access to the...
Forum:
her2group
12-24-2005, 04:37 AM
Replies:
8
Hip pain and Herceptin??
Views:
2,699
Posted By
Joan
Herceptin
Hi Janet,
I started Herceptin in November, will have my 3rd dose on the 28th. My friend started at the same time, she was also taking Tamoxofin.
I am experiencing no side effects on the...
Forum:
her2group
12-23-2005, 01:30 PM
Replies:
37
update on Linda
Views:
3,926
Posted By
Joan
Fighter
Al,
I was sorry to read your post.
You are such a fighter and Linda is blessed to have such tremendous support. I pray that you find a way and that Linda gets to the point that she is a candidate...
Forum:
her2group
12-22-2005, 04:13 PM
Replies:
8
Stage 1 to brain mets in 10 months...
Views:
2,219
Posted By
Joan
Brain mets
Hi Rhonda,
I can't believe that you could progress to brain mets although I know how worrying and distressing your symptoms must be. I am praying that your symptoms are just the after effects of...
Forum:
her2group
12-18-2005, 06:04 AM
Replies:
10
Shingles and herceptin !!
Views:
3,184
Posted By
Joan
Shingles
Bonnie,
Sorry to hear that you have shingles.
That has to be miserable and worrying.
I am taking Herceptin alone and didn't know that shingles could be a side effect. Thanks for the information, I...
Forum:
her2group
12-16-2005, 09:19 PM
Replies:
4
Locks of Love
Views:
1,129
Posted By
Joan
Loss of Locks
Tracey,
Don't worry too much about loosing your hair, it will grow back - think of the loss of hair as the chemo doing it's job. It is good that you were able to donate your hair to a good cause....
Forum:
her2group
12-13-2005, 01:47 PM
Replies:
17
HER-2 Positve BC Doubles Risk of Brain Metastases
Views:
2,146
Posted By
Joan
Prospect of Brain Mets
Her2 twice as likely to get brain mets Yikes!!!!That is very scary information - we Her2 gals seem cursed - guess we all have to be vigilant, watching for symptoms and at the same time enjoy every...
Forum:
her2group
09-20-2005, 05:01 AM
Replies:
7
Neupogena side effects
Views:
1,581
Posted By
Joan
Follow up Neupogen
Just a quick follow-up.
After posting, and the 4th Neupogen injection. On the Friday night I became quite ill. Vomitting, Diahorrea, spasms around torso and pain. Saturday, I didn't take a shot. ...
Showing results 1 to 24 of 24
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