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Showing results 1 to 25 of 33
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Posts Made By:
Sdgirl
Forum:
her2group
02-11-2014, 12:21 AM
Replies:
18
Scans, Cheesecake, & Shopping
Views:
2,555
Posted By
Sdgirl
Re: Scans, Cheesecake, & Shopping
Penny,
I logged in just to read your news. I am disappointed you did not have all around good news but I love your attitude and faith. I wish you all the best and hope your onc agrees to correspond...
Forum:
her2group
11-21-2013, 01:40 PM
Replies:
189
NEDenise Has Died
Views:
39,525
Posted By
Sdgirl
Re: NEDenise Has Died
This is terrible. I came here this morning to see if she had any updates. I had no idea that things were so bad. She was such an inspiration to brain metsers like me. I will miss her funny posts so...
Forum:
her2group
10-31-2013, 07:00 PM
Replies:
10
whole brain radiation
Views:
2,075
Posted By
Sdgirl
Re: whole brain radiation
I am in the same position as your friend. 42 with lung, brain, bone and liver mets. I just finished WBR and have had gamma tx twice. My oncs do not recommend WBR twice. I am sorry. I feel horrible...
Forum:
her2group
09-06-2013, 04:26 PM
Replies:
2
FoundationOne?
Views:
1,358
Posted By
Sdgirl
Re: FoundationOne?
I have used them. My MO likes them. I have also used Caris. They both gave me similar information.
Forum:
her2group
07-19-2013, 03:10 PM
Replies:
3
? About Taking chemo during SRS radiosurgery to brain
Views:
1,200
Posted By
Sdgirl
? About Taking chemo during SRS radiosurgery to brain
Has anyone taken chemo or targeted medicines during SRS radiosurgery. I am on SRS for five days for five lesions. I started yesterday and will continue till next Wednesday. I am currently on Xeloda,...
Forum:
her2group
04-27-2013, 08:19 PM
Replies:
165
update I hate to give (with a little more positive spin)
Views:
26,822
Posted By
Sdgirl
Re: update I hate to give (with a little more positive spin)
I am so sorry to read this. My condolences to her family. This is so sad- I have no words. Thankyou for letting us know.
Forum:
her2group
04-16-2013, 08:20 AM
Replies:
20
Tdm1/kadcyla and Tykerb
Views:
5,035
Posted By
Sdgirl
Re: Tdm1/kadcyla and Tykerb
My platelets are normal. I will probably be stopping this combo. My tumor markers went up for the second time on Friday and rising TM always mean progression for me. I have scans next week to...
Forum:
her2group
04-15-2013, 07:06 PM
Replies:
47
Progression or Necrosis in the brain?
Views:
5,933
Posted By
Sdgirl
Re: Progression or Necrosis in the brain?
Congratulations on getting married. I wish you and your family all the best. I hope you follow up MRI is ok.
Forum:
her2group
04-13-2013, 08:12 AM
Replies:
20
Tdm1/kadcyla and Tykerb
Views:
5,035
Posted By
Sdgirl
Re: Tdm1/kadcyla and Tykerb
An update on me. I have been taking tykerb and TDM1 together for three weeks now. I have increased diarrhea and nausea and also feel more tired. Also have pimples like rash on skin. I had tumor...
Forum:
her2group
04-07-2013, 11:44 AM
Replies:
165
update I hate to give (with a little more positive spin)
Views:
26,822
Posted By
Sdgirl
Re: update I hate to give (with a little more positive spin)
I just wanted to add my hugs. I really hope Halaven works for you. I am thinking of you and your family.
Forum:
her2group
03-28-2013, 04:27 PM
Replies:
29
Scan tomorrow!
Views:
4,287
Posted By
Sdgirl
Re: Scan tomorrow!
So sorry to read this. I hope TDM1 works well for you.
Forum:
her2group
03-22-2013, 09:32 AM
Replies:
21
I got my first IT Herceptin today!!
Views:
2,402
Posted By
Sdgirl
Re: I got my first IT Herceptin today!!
This is great news Darita. I hope this brings you NED . Sending you hugs. I hope to be able to try it IT Herceptin one day. My neuro onc seems resistant but I keep asking.
Forum:
her2group
03-20-2013, 05:56 PM
Replies:
20
Tdm1/kadcyla and Tykerb
Views:
5,035
Posted By
Sdgirl
Re: Tdm1/kadcyla and Tykerb
Phil,
I have Cigna. I am surprised they approved them both. I did not expect to get tykerb approved with tdm1. Also, thank you for all the work you have done and continue to do for tdm1.
Forum:
her2group
03-20-2013, 03:14 PM
Replies:
20
Tdm1/kadcyla and Tykerb
Views:
5,035
Posted By
Sdgirl
Re: Tdm1/kadcyla and Tykerb
Thanks. My ins just approved them both so I will add
Tykerb next week to my TDM1 dosage. I will let you know. If there are any others on this como, would love feedback.
Joann,
I have had...
Forum:
her2group
03-17-2013, 03:33 PM
Replies:
19
TDM1/Kadcyla Experiences
Views:
8,073
Posted By
Sdgirl
Re: TDM1/Kadcyla Experiences
Ann,
I have mets in liver, brain, leptomenginal, lungs, bone. My side effects are fatigue, some nausea. It is better than the perjetA combo, Navelbine etc for me.
Forum:
her2group
03-17-2013, 12:14 PM
Replies:
19
TDM1/Kadcyla Experiences
Views:
8,073
Posted By
Sdgirl
Re: TDM1/Kadcyla Experiences
Ann,
I have mets all over and have progressed on many chemos. I have been on tdm1 since nov. I have found it easier than other chemos. Not easy but easier. It is all relative:)
I have had good...
Forum:
her2group
03-13-2013, 06:35 AM
Replies:
20
Tdm1/kadcyla and Tykerb
Views:
5,035
Posted By
Sdgirl
Tdm1/kadcyla and Tykerb
Is anyone on these drugs together? I am currently on TDM1 and my neuro onc wants me to add tykerb because of my brain mets. He wants to try tykerb on the brain mets before radiation. I would like to...
Forum:
her2group
02-13-2013, 10:33 AM
Replies:
105
TDM-1 side effects
Views:
35,411
Posted By
Sdgirl
Re: TDM-1 side effects
Kelly,
I horrible headaches. I do not know if it is related to tdm1. I do have brain mes and got a scan on Friday. They are still present but the onc does not think mets are causing headaches. The...
Forum:
her2group
01-28-2013, 09:19 PM
Replies:
10
Still waiting for approval from insurance company
Views:
1,709
Posted By
Sdgirl
Re: Still waiting for approval from insurance company
I think three weeks is too long. Do you have a nurse case mgr at the ins? I would call and figure out what is going on and be persistent. I had problems getting it approved but had to keep calling...
Forum:
her2group
01-18-2013, 12:17 PM
Replies:
6
Can TDM-1 be given with BBB crossing chemo agent like Temodar?
Views:
1,214
Posted By
Sdgirl
Re: Can TDM-1 be given with BBB crossing chemo agent like Temodar?
Grace,
I have the same question. I am currently on the TDM1 EAP but will probably get kicked off as my brain MRI last week showed progression in my brain mets. I do not think they will not allow me...
Forum:
her2group
01-16-2013, 01:13 PM
Replies:
35
Update on Barb 12/28
Views:
3,582
Posted By
Sdgirl
Re: Update on Barb 12/28
Mike,
I hope this is the magic bullet and Barb does well on this. I look forward to hearing you post good news with perjetA and tax combo!
Forum:
her2group
01-02-2013, 06:59 PM
Replies:
16
Question about TDM1 I don't understand
Views:
2,091
Posted By
Sdgirl
Re: Question about TDM1 I don't understand
I think you can still get in. I know someone who got in just last week into the EAP and started tx. Till the FDA approves it, I think the EAP program stays open. I hope your scan shows good results...
Forum:
her2group
01-02-2013, 06:23 PM
Replies:
16
Question about TDM1 I don't understand
Views:
2,091
Posted By
Sdgirl
Re: Question about TDM1 I don't understand
I am in the EAP for TDM1 and received a letter a couple of weeks ago from Genetech that I would receive only one additional dose after FDA approved it and they would work with me and my onc to help...
Forum:
her2group
11-14-2012, 06:26 PM
Replies:
26
Pl help:Failed perjetA, now TDM1?
Views:
3,999
Posted By
Sdgirl
Re: Pl help:Failed perjetA, now TDM1?
Rolepaul,
My neuro oncologist refuses to give me IT Herceptin. I have taken all the studies on this and emailed information that you have posted on this topic. He said he had given me prophalactic...
Forum:
her2group
11-14-2012, 06:21 PM
Replies:
26
Pl help:Failed perjetA, now TDM1?
Views:
3,999
Posted By
Sdgirl
Re: Pl help:Failed perjetA, now TDM1?
Thank you all for your input. I wanted to provide an update. I did get into the TDM1 trial and start that tomorrow as my brain mets though still present are stable. I had my tumor re biopsied because...
Showing results 1 to 25 of 33
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