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Posts Made By:
Gina
Forum:
her2group
08-12-2009, 12:55 PM
Replies:
21
On herceptin/dmi trial
Views:
2,016
Posted By
Gina
Re: On herceptin/dmi trial
If I were you, I would just go back on the Herceptin while off the trial...just to be safe. Herceptin has wiped out all kinds of stuff in my liver...all by itself...hope you stay clear...whatever...
Forum:
her2group
03-21-2009, 08:08 PM
Replies:
14
VITAMIN D Checked - now megadosing
Views:
3,914
Posted By
Gina
Rather than mega-dosing on Vitamin D, try balancing your Vitamin A and Zinc
Hey, folks,
Have to smile about all the latest "hype" about Vitamin D--most of us OLD timers on this board have been taking it for years...but I just want to emphasize that the body is an entire...
Forum:
her2group
09-12-2008, 11:50 PM
Replies:
11
Liver enzymes up - what is this??
Views:
3,085
Posted By
Gina
Ditto on the reishi mushroom to raise WBC's
Even when I was on chemo back in 1998, I did the reishi mushroom and it worked for me...just one note...once you are off blood-lowering types of chemos and just on Herceptin by itself...you might...
Forum:
her2group
09-09-2008, 04:15 PM
Replies:
0
Specially for RB
Views:
931
Posted By
Gina
Specially for RB
http://images.medscape.com/pi/global/ornaments/spacer.gifFound this medscape article fascinating...please enjoy!
Gina
Omega-3 Fatty Acids, but Not Statin Therapy, Cuts Mortality and...
Forum:
her2group
08-11-2008, 04:50 PM
Replies:
1
the "soy story" is a complicated one
Views:
1,023
Posted By
Gina
Lessons here?? #1) a little dab of phytoestrogen will do...
and 2) there may be other active ingredients in soy besides the phytoestrogens that are beneficial for folks who are her-2 positive...most notably, the high magnesium levels of soy and other bean...
Forum:
her2group
06-18-2008, 09:40 AM
Replies:
1
Addressed to Joe--Has Dr. Carney written any new articles this summer
Views:
1,034
Posted By
Gina
Addressed to Joe--Has Dr. Carney written any new articles this summer
Hi, Joe,
Was looking through my research from last summer and noted Dr. Walt Carney's June 2007 paper and wondered if he had written any thing new that has or is about to be released this...
Forum:
her2group
06-18-2008, 09:37 AM
Replies:
110
SAD NEWS - Lolly has earned her wings
Views:
13,334
Posted By
Gina
Happened on the site today and was so sad to learn the news
Hi, everyone,
Just by chance happened to be on the site today to learn of Lolly's passing. I am too sad for words as I remember her being here as long as I have been on the site.
Deepest...
Forum:
Herceptin / Tykerb
06-18-2008, 09:21 AM
Replies:
11
elevated liver enzymes
Views:
2,115
Posted By
Gina
What was the outcome of this?
Very interested to know how you are doing now. Have your doctors checked to see if your bile duct is being blocked by a stone or is inflamed with bacterial infection?
Not to worry, if it is...
Forum:
her2group
06-18-2008, 08:55 AM
Replies:
48
OMG!!! I'm PREGNANT
Views:
4,015
Posted By
Gina
Anti-bacterial effects of Adriamycin/Taxol
Hi Laurie,
CONGRATS!!! Your story is truly amazing, and it made me think of some research I was doing years ago on how a lot of female infertility was caused by undiagnosed bacterial infections...
Forum:
Profiles In Courage
06-18-2008, 08:36 AM
Replies:
6
Stopping Herceptin
Views:
9,918
Posted By
Gina
Highly recommend STAYING ON HERCEPTIN
Hi,
I would guess that the regular herceptin is what is keeping you stable. I have been on herceptin since 1999 and uh...I am STILL kickin'. I have had no chemo since 1998--only herceptin and...
Forum:
her2group
01-02-2008, 05:58 PM
Replies:
20
liver mets people all please come out
Views:
3,823
Posted By
Gina
Survived multiple liver mets multiple times -- 10 year survivor and still kickin
HavahJ,
Rhonda e-mailed me your post along with a Happy New Year's e-mail earlier today and asked me to come back on the board and send you out a note.
If you search my name and liver mets...
Forum:
her2group
10-23-2007, 11:07 AM
Replies:
92
Routine marker testing and recurrence... worth it?
Views:
15,587
Posted By
Gina
Special Reply to Grace and to Debbie
Hi, Grace,
We know each other from way back so I take no malice at your comment and I realize that this thread has been a bit heated. I also publically apologize to Debbie for teasing her about...
Forum:
her2group
10-23-2007, 09:31 AM
Replies:
13
I thought I was crazy when I noticed a seasonality to bc metastases
Views:
2,194
Posted By
Gina
I strongly agree that there is a seasonality to bc metastases
and maybe even to primary tumor as well.
Hi, guys,
I know I have not been the posting maniac I used to be, but life, work, and a teenager with LEARNER's permit in Washington, DC, take over...
Forum:
Inflammatory Breast Cancer
10-23-2007, 08:22 AM
Replies:
14
The latest on Inflammatory breast cancer from MD Anderson
Views:
5,177
Posted By
Gina
Lexi, you are RIGHT on TARGET
Hi, Lexi,
I agree with everything you said. I personally don't have IBC, but I have known a lot of girls from this site and in real life who have had it and almost all of them told me that in...
Forum:
Inflammatory Breast Cancer
10-22-2007, 05:29 PM
Replies:
14
The latest on Inflammatory breast cancer from MD Anderson
Views:
5,177
Posted By
Gina
This article just underscores that we are still working from the WRONG IBC model
I promise not to jump on my soap box, but reading this article just underscores to me that we are not treating the disease properly and that is why there has been really no improvement in...
Forum:
her2group
10-22-2007, 05:08 PM
Replies:
6
panicked with Her2 serum marker rise
Views:
1,440
Posted By
Gina
Then, moderate concern is appropriate...
Hi, Julie,
I have tried to respond twice to you here, but the system keeps throwing me out for some reason. Anyhow, first of all I am so proud that you are getting the markers taken properly,...
Forum:
Herceptin / Tykerb
10-22-2007, 04:44 PM
Replies:
7
yet another newbie on Tykerb/Xeloda
Views:
2,283
Posted By
Gina
Had acne on Herceptin
Many years ago, when I first started taking Herceptin back in 99, I began to get this acne rash all over my face and upper chest. My onc assured me it was NOT from the Herceptin, but my nurses took...
Forum:
Herceptin / Tykerb
10-22-2007, 04:37 PM
Replies:
2
Adjuvant herceptin without chemo
Views:
2,147
Posted By
Gina
I think herceptin without chemotherapy is the best way
I have been using only herceptin since 1999 with fabulous results...wouldn't do it any other way.
Good luck to your mom...it may have been her lucky day when she could NOT tolerate...
Forum:
her2group
10-22-2007, 04:04 PM
Replies:
92
Routine marker testing and recurrence... worth it?
Views:
15,587
Posted By
Gina
Sorry, Debbie, But you are just COMPLETELY WRONG!!
are you an oncologist??? LOL hee hee hee hee
Seriously, folks, if any of you out there are her-2 positive at any stage, at any point in the disease, do not heed Debbie's comments.
Regular...
Forum:
her2group
10-22-2007, 03:39 PM
Replies:
14
Please Help Me Prepare a Breast Cancer Talk
Views:
2,193
Posted By
Gina
definitely put in a plug for regular pulling of Serum Her-2
and other tumor markers, like the CA 27.29, the Ca 15, the CA 125, and the CEA, at a minimum.
My two cents...smile...Enjoy the conference--this is a great way to let what patients want be heard....
Forum:
her2group
10-22-2007, 03:25 PM
Replies:
6
panicked with Her2 serum marker rise
Views:
1,440
Posted By
Gina
some movement in the serum her-2, up or down is normal
Hi, Julie,
Moderate fluctuations in the serum her-2 are to be expected. I would not panic yet...but I would watch the marker carefully to see if it goes on what I call "a run" which means...
Forum:
her2group
10-22-2007, 03:09 PM
Replies:
21
Happy news
Views:
2,944
Posted By
Gina
So happy to hear the good news!!!
I hadn't seen you post for a while so I am glad to catch up with you. I highly recommend those climb the wall with your mastectomy arm exercises and agree that moving around as much as you can is...
Forum:
her2group
10-10-2007, 03:17 PM
Replies:
8
Wanted to share my miracle Herceptin Story..
Views:
2,278
Posted By
Gina
Natalie, please share your story with Elizabeth Edwards
Natalie,
I was greatly touched by your case study. So many times, I think we need to re-evaluate all our cancer models and realize that the tumors are merely the symptoms, or artifacts, if you...
Forum:
Keeping Your Mind Off of BC
10-10-2007, 02:19 PM
Replies:
38
Wow !!
Views:
5,352
Posted By
Gina
Congratulations!! Wish I had realized you were in my area
Hi, Joe, Hi, Christine...
That is FABULOUS..so sorry I missed catching up with you...sure our paths will cross again...
Best of luck for much continued success--no one deserves it more!!!
...
Forum:
her2group
10-10-2007, 02:16 PM
Replies:
12
Herceptin seminar
Views:
1,570
Posted By
Gina
I am going to the one in Arlington, VA this Sat. 10/13
Hi, folks,
Yes, I registered for the one this weekend at the KeyBridge Marriot off of RT 29 in Arlington...looking forward to it...
Gina
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