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*_celina_* 08-04-2005 04:58 PM

My sister has been pulled off the Lapitinib trial. She is having serious seizures and progression on the brain. Unfortunately she only had 10 days of the medication before she was off for a couple of days to get her potassium levels up. Her levels are up, but MRI today showed progression...she's been in hospital since Saturday. Doctors have requested meeting with family tomorrow. They are giving her 2 months to live...we are desparately trying to get the trial drug on compassionate grounds. We know that it may not work for her, but we want her to have hope...that's the least we can give her. I'm so sad...and mad, but I will pray. Please send your prayers to Carole and her family.
Thank you so much.

Lolly 08-04-2005 05:26 PM

Dear Celina, I'll be praying for Carol and all the family. Sending big hugs to you, you have been a rock for her.

Love,
Lolly

eric 08-04-2005 06:01 PM

Celina,

I'm sorry that you and your family are going through this. My thoughts and prayers are with you.

Warmest regards,
Eric

StephN 08-04-2005 11:30 PM

Celina -
This was not the news I was hoping/expecting. I feel so sad for you and your family as you have tried everything you possibly could to help Carole.

Seizures are serious - and I thought she had only had a couple in the past - not too bad. Hate to hear that this is the trouble plus progression.

Ask those docs if they are absolutely sure they are seeing progression and not some old tissue or inflammation.

I will pray that she will be comfortable and not suffer if her time is coming.

Cindy H. 08-05-2005 05:28 AM

Sending lots of love and prayers your way....
Cindy

joy 08-05-2005 06:10 AM

I'm so very sorry Celina. We will all pray and keep thinking of hope for your sister and your family and YOU, of course. You, like my own sister, are such a champion for Carol. For those of us in the fight there are not words to share how we feel about loved ones like you. And I hope you allow yourself to be mad and sad and whatever else comes up. We are here and praying!

with hop,
joy

*_anne_* 08-05-2005 02:29 PM

Dear Celina,

I am sorry to hear the news. I was praying this would help your sister. Please don't give up. Call Cancer Centers of America and look around for more trials. I will pray for your sister and family.

Love
Anne

Hope 08-05-2005 03:26 PM

Dear Celina, I will keep your sister in my prayers. I know who difficult this is for you and your family. But remember, God does do MIRACLES and he has the final word not Doctors.


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