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Angela 02-03-2011 11:26 PM

CyberKnife Help
 
Has anyone had cyberknife? Any side effects? How many brain tumors and size.

I have 5 and the only symptom I have is weakness in my left arm and leg. The dr. recommends cyberknife but said there is a 5% chance that the good cells around the tumor may be damaged or there may be swelling around the treated areas. This is a very hard decision to make. Any information anyone can provide is truly appreciated.

Kavy 02-04-2011 01:54 AM

Re: CyberKnife Help
 
Hi, Angela,
I'm so sorry you are going through this, and I know how you must be feeling.
I do not have experience with Cyberknife, but I just had Xknife this Wednesday. You can read my thread.
I suggest you get different oppinions from different radiation oncologists and neurosurgeons. What is the size and location of the tumors?
I hope you find the right treatment for you. Count on me if I can help.
Hang in there.
Hugs,
karlav.

Darlene Denise 02-04-2011 12:51 PM

Re: CyberKnife Help
 
Angela: I have had Cyberknife at UNC in Chappel Hill. I had 8 treated in 09/08 and three more in 06/09. Cyberknife is focalized, laser guided radiation and does minimal damage to surrounding tissue. I am glad that such treatment is being offered to you instead of jumping into WBR.

What facility would be doing the treatment?

Darlene

krisvell 02-04-2011 03:32 PM

Re: CyberKnife Help
 
Angela,
I just had the Gamma Knife for one brain met this Thursday. It's usually one session but they are doing two with a lower dose to try to prevent radio necrosis and the fact that it's on my brain stem (high risk area). Did you check into Gamma Knife? I had to go to another location farther away. It seems like a lot of HER2 sisters recommended it. I'm sureCyberknife is close to the same.Hope this helps.
Sending good thoughts and prayers your way,
Kris....

Kris...

Delaney 02-04-2011 03:43 PM

Re: CyberKnife Help
 
Angela, is the Ixempra working for the lung mets? I am just coming off xedoda for lung mets (stopped working) and going on Gemzar. I am also er-/pr- and seem to be working my way thru the different chemos rather quickly. Hope the treatments works well for your brain mets. I am getting scanned next week for those, am so hoping none are found.


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