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Joy 07-24-2007 03:39 PM

oh my goodness
 
I am shocked! I just got back from the oncologist to go over scan results for the first time since starting tykerb/xeloda. The doc walked in and said, "you want to see some pictures?" Which she never said before and I don't really like to look at the pictures because it makes it all too real and interferes with my visualizations. I must have looked scared because she said, "they are good and I want you to see." So my sis and best friend and I took a field trip to her office and looked on the computer at the last 2 scans. She explained all I was seeing beautifully and.........50% reduction in tumor burden in liver, lungs look great and ALL liver function tests are......NORMAL for the first time in a looooong time!!!!

I'm still in shock. I said one woman, you Irene, in Florida has been on this for a year and doing well and my onc said, "Why not? Let's think several years and by then there will be another her2 blocker."

So I will turn 40 after all this year and I'm energizing way more than that.

I said when we hugged that she made my whole day and she said I made hers as I'm the first in her practice to be on this combination and for her it is very exciting.

I told her about getting a period and she said, surprisingly, that she felt it was no problem at all because sometimes we treat bc with estrogen and my cells have not seen estrogen for so long that maybe it is helping AND if the estrogen aggravates the cells they will uptake more xeloda and tykerb. So she said since we are monitoring things so closely we will just take it as it comes and it did not worry her at all. And when she is worried it is obvious and her concern is very great and readable.

So I just wanted to share these encouraging results as so many have encouraged me! Thank you so much!

R.B. 07-24-2007 03:45 PM

Congratulations.

RB

Lolly 07-24-2007 03:49 PM

Joy, I'm thrilled for you!!! What wonderful, wonderful news. You've made MY day too! BIG HUGS :)

<3 Lolly

Grace 07-24-2007 03:52 PM

Joy,

I rather thought from your title that it was good news, and it was. Very happy for you and we all agree with your doctor--there will be plenty of other blockers coming along soon.

Congratulations!

Barbara H. 07-24-2007 03:57 PM

Joy!!
I am so happy for you. This is really great news. I have been following all your posts and I'm glad that this combo is working for you.
Best regards,
Barbara

doh2pa 07-24-2007 04:03 PM

Oh Joy, you have made my day!!!!! I am thrilled for you. My onc said the same thing about being on this for a long time (years?? I didn't think I had years - what a glorious word - YEARS!!!!) This is the first time I have felt any measure of HOPE in 2 years since my initial mets. We are on the cusp of something very big and wonderful. Congratulations! What are you doing to celebrate?

Donna

Carolyns 07-24-2007 04:04 PM

Joy!!!

This is GREAT news! I am so happy for you. Thank you for sharing!

Love, Hope, and Peace,

Carolyn

CLTann 07-24-2007 04:06 PM

Joy to the world. Ever since I came to this site, I have been following your well-being. I remember well I wrote you about your nice picture. This time my congratulation is much more important -- your health. Enjoy life and have many years to follow. Best wishes.

sherri 07-24-2007 04:13 PM

Joy you brought joy to this site with your news. I'm soooooooooooooooo happy for you.

lexigirl 07-24-2007 04:25 PM

Joy!!!

Yippee!!! That is such great news! I am smiling!! Yes!! I am so happy that you received such terrific news!

Lexi

KellyA 07-24-2007 04:29 PM

Oh Joy! I am so happy for you!! What terrific news! I hope that you have been able to celebrate with your friends and family! I think of you often and hope that you continue to have success on this combination for a very very long time.

Love, Kelly

Mary Anne in TX 07-24-2007 04:53 PM

Unbelieveably GREAT News!!!!! So very happy for you!
ma

chrislmelb 07-24-2007 04:54 PM

Joy, that is such good news. I am so happy for you.
Christine

chrisy 07-24-2007 05:08 PM

Oh Joy,

I am so happy for you!!!!!! That is fantastic news, I'm so glad to hear you've responded so well and so quickly. I agree with your onc - lets start with 4 years on this one, okay?

Enjoy!

tousled1 07-24-2007 05:13 PM

Joy,

That's wonderful news! Guess you found the magic combo!

kareneg 07-24-2007 05:32 PM

I am so happy!!!!!!!!!!! WOO HOO!!!!!!!!!! Here is to many many more great scans. Relax and do something nice for yourself you deserve it.

Beckie 07-24-2007 06:11 PM

Joy,
I have been very interested in following your progress since coming to this site, and I am so thrilled for you! How wonderful to think in years!

Beckie

Patb 07-24-2007 06:15 PM

Great news Joy. Wishing you nothing but the best news from now on.
patb

lilyecuadorian 07-24-2007 06:28 PM

thanks for sharing it make so so happy

Kimberly Lewis 07-24-2007 06:52 PM

yippie skippie! Great news Joy - thanks for sharing!


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