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-   -   Trip 3 to MD Anderson (https://her2support.org/vbulletin/showthread.php?t=40487)

Midwest Alice 07-20-2009 02:45 PM

Trip 3 to MD Anderson
 
I leave for MDAnderson tomorrow. I will have a check up with Dr. C, treatment and a ultrasound of the chest area. Please say a little prayer that the test and check up go well. I won't have a computer with me this time and I will give you the up date when I get home Thursday night.

Peace

Laurel 07-20-2009 03:08 PM

Here's to hoping (and praying) all is well!

Mary Anne in TX 07-20-2009 03:42 PM

Have a good trip, Alice. I'll be believin' for good results! ma

Believe51 07-20-2009 05:20 PM

Alice, not only will you be included in my prayers but I am going with you. If your shoulder feels a little heavier than the other, it will be me resting there....shhh, I don't want to have to pay for plane fare...>>Believe51

lexigirl 07-20-2009 05:26 PM

Hi Alice,

Saying a prayer for a great check-up.

Hugs and Prayers,
Lexi

Ellie F 07-21-2009 02:09 AM

Hi Alice
will be keeping my fingers crossed for you all the way
Ellie

suzan w 07-21-2009 09:31 AM

Hi Alice. Good luck at MD Anderson. We are all there with you...VERY heavy!!!!! Right Marie???!!!

Shobha 07-21-2009 05:30 PM

Hi Alice,

I will be praying for your clean results and peace of mind! Have a good trip.

hugs,
shobha

Midwest Alice 07-24-2009 08:29 AM

Hi I'm home!!!
My blood was good. They saw some change on my ultrasound so they took a few cells out and they looked fine. So I'm good.

I am so thankful for Herceptin
and tomorrow is my Birthday
and I am a 15 month NED IBC cancer survivor !!

Thanks be to God!

My hope is the gift of the day finds each and every one of us!

chrisy 07-24-2009 08:34 AM

Alice, what a great birthday present!

Ellie F 07-24-2009 08:56 AM

Brilliant news Alice I am so pleased for you.Just to say it is only recently that I noticed that they had found old mets in your back that makes me doubly pleased that everything is looking good for you. Did you see Dr C?
Ellie

Midwest Alice 07-24-2009 10:08 AM

Thanks guys!!

Ellie, Yes I did see Dr. C. and a Fellow of his, a new one each time.
Did you know the next international IBC conference in December 2010 will be in France? Dr. C and many others will be there. I remember you being IBC also. Right? Maybe you could go.

ElaineM 07-24-2009 10:38 AM

Trip 3 to MD Anderson
 
Congratulations on a great check up. Keep up the great work.

vickie h 07-24-2009 11:19 AM

Oh Alice! that is such great news...a a doubly great birthday present! Did you stay at one of the hotels there and how long were you there? I've not been coming to the site as much lately, but when I logged on and saw your post it brought a big smile to my face. I am so very happy with you and i can't wait to get there myself (September). Let me know how long you stayed the first time (I think LaMartha said it was 10 or 11 days) and where you stayed as I would want to stay at the same hotel. Whoopee! I love great news like this.
Much love and hugs, vickie

Ellie F 07-24-2009 01:59 PM

Would be easy for me to get to France so fingers crossed I will make it.

Vickie-really pleased you are going to see Dr C in September. It is still on my list of possibilities also

Love Ellie

Midwest Alice 07-24-2009 05:43 PM

Hey Vickie! I'm so glad to see you, I have missed you.

Great news you will be seeing Dr. C. He is great and I can't say enough good things about the clinical teams.

This trip I had two days of travel and one day at MDAnderson. I stay at the La Quinta on Buffalo Speedway. Reasonable rates, clean and frendly. They have a free shuttle to the hospital. The first time I was there over a weekend.Maybe it was around eight days.

Ellie, You are going to make it to France next year. Joe just posted a trial for you in England. We still have many tools in our tool box for you! You're going to kick that IBC to the road.

Love,

lexigirl 07-25-2009 10:56 AM

Alice,

SO happy that you continue to do well!! Awesome!! I wish you a very happy birthday with MANY more ahead!!

Hugs,
Lexi

Ellie F 07-25-2009 01:20 PM

Alice, thanks for vote of confidence. I'm still praying for the cure for us all.Let's hope Dr C and his team turn the key and unlock the mystery of IBC,I'm sure we must be very, very near.
love Ellie

Believe51 07-27-2009 05:17 AM

Awesome Alice, I have been thinking about you. What a special birthday gift!>>Believe51

vickie h 07-27-2009 02:21 PM

Ellie and Alice
 
Thank you, Ellie and Alice,
I called Anderson last week and they said I would need to be there 10 to 11 days. Don't know why but I wil make the trip. My right breast has become so inflamed again with several new tumors. Just when I thought things were going so well.....ah, well, I'll keep fighting this as long as I can, trying to get to that 6 year mark! I loved hearing from both of you and Ellie, I hope you get to France and on that trial soon. Love to you both always, Vickie

Midwest Alice 07-27-2009 03:02 PM

Hey Vickie, Dr. sees patients Mon, Tue and Wed. Mon and Fri he does research stuff. The way my first one went was.... I saw him then 2 days of testing then I saw him again. You could go home and he would call you the results. Its better to stay there. The La Quinta has a freg and microwave... I have a list of hotes they gave me.


Oh Vicke.. look for the Fish tank I'm looking through! It's near the giant leaves! You will find it.

vickie h 07-27-2009 08:10 PM

You're just as beautiful as I envisioned you would be, even behind that fish tank! Love you lots,
Vickie

Ellie F 07-29-2009 02:36 AM

Re: Trip 3 to MD Anderson
 
You both are, not only in appearance but also in spirit.
Love Ellie

vickie h 07-29-2009 07:42 PM

Re: Trip 3 to MD Anderson
 
Thanks sweet Ellie,
You both are in my heart always.

Love, Vickie

Midwest Alice 07-31-2009 06:44 AM

Re: Trip 3 to MD Anderson
 
You too are in my heart and on my mind each day. I'm so glad I'm not in this alone

I am back at school getting ready for the return of the students. I'm telling my friends all about you two!

We keep on keeping on! I hope we all see God's blessing today.

Love , ALice

vickie h 08-03-2009 07:12 PM

Re: Trip 3 to MD Anderson
 
Dearest Alice,


Your quote from Corinthians sustains me each time I read it. You have been such great support and I am so happy for you.

My Onc is putting off my trip to MD Anderson because my mets are now extensive in the right breast. She is getting me into a trial which they are also doing at MD Anderson, with a drug called Pazopanib. For some odd reason the mets are growing at an alarming rate and quite painful so this is one of the last options for me.
The past 5 1/2 years have been such a blessing and I am praying for this drug to work and more time here with my grandchildren. I have not posted on the other board (the main one) because I am busy deciding what is in the near future should this drug not be effective. Please keep me in your prayers. You and ellie are my two IBC sisters and I love you both very much

Md Anderson may still be in the works but right now we are getting scans, ekgs, etc to see if I qualify. I will keep you posted. Tonight I send you my love and prayers, dear sister.

Love and hugs and God's blessings,
Vickie

Midwest Alice 08-04-2009 07:45 AM

Re: Trip 3 to MD Anderson
 
My Dear, Dear , Friend Vicki, I type with tears running down my face in sorrow. I pray you feel God's promise of support in this time of Temptation, God is faithful.

I pray for your Healing and that the treatment take hold and kills the cancer in your body.

We serve a faithful and gracious God who continues to remind me through every trial to "trust in Him alone", to "not lean on my own understandeing", and that his timing and working out the details are always more perfect that anything I could figure out for myself.

I pray your 5 1/2 years of blessings with your granchildren is times 5.

My friend gave me a 800 phone number for you and me to call. It's like dial a prayer... which is a little funny to me, but she calls it all times of night and day in times of trouble.She said the people that pray with you are wonderful. 1-800-759-0700. I'm going to go and call them and pray for you right now. Now I'm crying again.

I love you my friend, Alice

vickie h 08-04-2009 10:12 AM

Re: Trip 3 to MD Anderson
 
THANK YOU, SWEET SISTER,
I AM PLACING ALL THAT FAITH IN God, he knows so much more than I could ever fathom. He has placed all of us in each other's lives and I am truly blessed. I will call that number now, as the tears are running across my cheeks......
Praying for all of us this morning.


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