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-   -   The SMACKDOWN continues!! (https://her2support.org/vbulletin/showthread.php?t=58433)

NEDenise 06-25-2013 08:58 AM

The SMACKDOWN continues!!
 
1 Attachment(s)
Hey!
Thanks for checking in on the continuing adventures of the...
Denise vs Decadron Smackdown!!!!


Well...

The brain MRI section of tonight's program goes like this...
the area of necrosis appears much less dense...which appears to have relieved some of the pressure on my brain stem and balance center. So that's good. It's not gone though...so the plan is to continue the Avastin and see if the necrosis continues to "fade away". Mickey and the goo-gobbler are on the job after all, so how can I lose?!!


The steroid smackdown continues, but clearly...I'm winning.
As of this morning...I'm down to 1/2 mg per day. (down from 16 mg/day 12 weeks ago!)
I was starting to think I'd never be free of these d$#@ drugs! But if everything goes as planned...Two weeks from today I'll be a free woman again!
A free woman who still can't find her cheekbones.
A free woman who has to exercise night and day till Christmas to lose the 50 extra pounds she's carrying around.
But...a free woman!! Yay!


I'm still a little off balance. And my handwriting is definitely NOT what it once was... because my arm is a little shaky.
But the headaches have stopped, and no nausea either. I feel like I'm really tired but I did the math, and I'm really only sleeping 8 or 9 hours a day. It just seems like a lot of time sleeping because for the past 6 months...4 or 5 hours was all my steroid riddled body needed. :)


I got the report from the CT of my abdomen and pelvis, and both were clear. Yay, again!
The report for my chest CT wasn't posted yet, and honestly...
if it's clear too...
my onc will tell me on Thursday at my appointment...
and if it's not clear...God forbid...
I can DEFINITELY wait till Thursday to have my world rocked by such tragic news!


Is that living in a state of denial? Well let me tell ya...

Friends, if that CT shows cancer in my lungs...
to go along with the cancer already in my brain...
I'll just be moving all my sh%$ to the 'state of denial' - permanently!
Hell! I may even run for governor there! :)


But...just like when my gut told me the brain MRI last summer would find a problem..my gut tells me this time, the CT news will be good. For some reason, I'm just fine with not knowing until Thursday. (soooo unlike the nosey, control freak I am normally)

I did look at the disk full of images they burned for me.
But alas...
while I know what to look for on the brain MRI...
no one has ever shown me what to look for on a CT...
so it was interesting to look at...
but I have no idea what it shows.


So, I think that's all the latest SMACKDOWN news!
Hopefully, on Thursday I'll be able to add the good news about the chest CT.

Love to all of you, and thanks for keeping me in your thoughts and prayers!
Denise

PS - If I do end up running for governor of the "state of denial" - I hope I can count on your votes! :)


Redwolf8812 06-25-2013 10:36 AM

Re: The SMACKDOWN continues!!
 
All will be well my Philly friend. God is on your side.

Love, Penny

carlatte7 06-25-2013 11:07 AM

Re: The SMACKDOWN continues!!
 
You could be Cleopatra, Queen of Denial! Lots of prayers heading up for ya!

NEDenise 06-25-2013 11:19 AM

Re: The SMACKDOWN continues!!
 
Ooooooh...Queen....that's even more powerful than Governor!

:) Denise

ammebarb 06-25-2013 12:01 PM

Re: The SMACKDOWN continues!!
 
Such good, good news! I'm so pleased for you, Denise. You remain in my prayers!

Hugs,
Barb A.

caya 06-25-2013 01:07 PM

Re: The SMACKDOWN continues!!
 
Sounds like good news for you dear Denise - I am praying for a clear CT result on Thursday for you.

all the best
caya

KsGal 06-25-2013 04:57 PM

Re: The SMACKDOWN continues!!
 
Everything sounds wonderful! So happy for you...Just keep pushing through the steroid wean, and before you know it, cheekbones!!!! I dropped weight like crazy after completely getting off the steroids, and Im sure you will too. Mostly happy that your symptoms are a lot better. Prayers headed your way. :)

Mary Anne in TX 06-25-2013 05:19 PM

Re: The SMACKDOWN continues!!
 
And as queen you get to wear a crown and order people around!

dawny 06-25-2013 07:09 PM

Re: The SMACKDOWN continues!!
 
Go Queen Denny!

KDR 06-25-2013 07:18 PM

Re: The SMACKDOWN continues!!
 
Free is a big word, the most important word in my world! I am so happy for you!

On the CT scans, I never look at images, but know how to read the reports, which usually include a summation of the doctor's impressions. At my center, they are enumerated comparisons.

Feel better every day!

Paty 06-25-2013 08:07 PM

Re: The SMACKDOWN continues!!
 
Dear Denise,

Thank you for the update. Love the way you put all together, love your attitude and will. Looking forward to good news on Thursday. Hugs to you.

Paty

Catherine 06-25-2013 09:51 PM

Re: The SMACKDOWN continues!!
 
Queen of Hearts, Queen of Diamonds....You are tops in my book! Love your writing, love your humor! Sending you the best I can over the airwaves.

JillaryJill 06-26-2013 12:25 AM

Re: The SMACKDOWN continues!!
 
Thinking of you this week and hoping for good results on Thursday.

Pamelamary 06-26-2013 01:34 AM

Re: The SMACKDOWN continues!!
 
Who needs hand writing anyway? You go, girl!!!!!! Cheekbones by Christmas - the second coming?
Best wishes for Thursday..... Pam

Bunty 06-26-2013 06:15 AM

Re: The SMACKDOWN continues!!
 
You are on the up and up now Your Highness! Good news, and I feel that more good news is coming with the rest of the scans.
Best wishes, Marie x

whatz 06-26-2013 04:17 PM

Re: The SMACKDOWN continues!!
 
Here's to having no need to "move to the state of denial" and a clean report tomorrow!

chekmark 06-26-2013 05:22 PM

Re: The SMACKDOWN continues!!
 
U got my " Chekmark" in the box for queen or governor, you rule. Great news and I bet it will continue to be good news. Stupid cancer doesn't know who it's messing with.

Laurel 06-26-2013 05:26 PM

Re: The SMACKDOWN continues!!
 
You've got my vote for whatever you feel like running for, Denise!

fauxgypsy 06-26-2013 06:40 PM

Re: The SMACKDOWN continues!!
 
Denise, on top of everything else you are the Queen of humor. I hope everything gets better. You have blessed everyone here with your sense of humor.

Pray 06-26-2013 09:37 PM

Re: The SMACKDOWN continues!!
 
Your always in my prayers little Sis.


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