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-   -   Honoring Our HER2 Lost (https://her2support.org/vbulletin/showthread.php?t=51828)

KDR 10-19-2011 06:09 AM

Honoring Our HER2 Lost
 
Since we keep a list of those fighting The Monster, I thought it would be humble to mention those we've lost, in remembrance, because we won't forget them, because we forge on in their memories. Does anyone have such a list...Jackie?
Karen

tricia keegan 10-19-2011 06:56 AM

Re: Honoring Our HER2 Lost
 
Karen, in my time here there have sadly been too many losses, it was suggested before to have a rememberance page on the site with photo's etc but think Christine was against this as wants anyone coming here to have a message of hope rather than the alternative.

sarah 10-19-2011 07:50 AM

Re: Honoring Our HER2 Lost
 
Yes, Tricia's correct, it was suggested before but rejected. I think it would have been nice. Maybe only available to senior members? I don't know. I respect Christine's decisions, it's her site and so important to us. She and the others who help with it (Becky, Stephanie and others) are angels helping and protecting us. What would we do without it???

KDR 10-19-2011 08:02 AM

Re: Honoring Our HER2 Lost
 
In light of BC Awareness Month, we mark this time to remember with love the people before us, the people ahead of us, and the promise to fight on. I think it's a beautiful idea. After all, we call them angels, and they are. It is part of life, so I put it out there.
Karen

PinkGirl 10-19-2011 08:05 AM

Re: Honoring Our HER2 Lost
 
There is a place on this site that lists the names of our
deceased angels ... but no one can ever find it.

StephN 10-19-2011 11:37 AM

Re: Honoring Our HER2 Lost
 
Here is a link to the page where our dear departed sisters and brothers are listed, it is called View Forum Leaders:

http://her2support.org/vbulletin/showgroups.php?

Hope that will work.
Scroll down a little for the list.

Sheila 10-19-2011 02:42 PM

Re: Honoring Our HER2 Lost
 
Steph...it seems as though there are missing names...Darlene Denise this year...
who updates it?

PinkGirl 10-19-2011 02:57 PM

Re: Honoring Our HER2 Lost
 
If I didn't have that link, where would I find "view forum leaders?"

Lori R 10-19-2011 04:52 PM

Re: Honoring Our HER2 Lost
 
I can appreciate that for some, such a thread would be disturbing.

But for me...I thought about Lolly and others just yesterday and wanted to go out and post that I still am thinking of them and still appreciate the support they provided.

Just saying I wanted to wing a special prayer their direction. But then, I am sure they heard it. Thanks again all you angels who watch over us.

With Love....Lori

Joanna J 10-19-2011 06:19 PM

Re: Honoring Our HER2 Lost
 
karen,I like your idea to remember those precious & dearly departed,I feel that they are all looking down & watching over us
Cheering us on! Joanna

Bill 10-19-2011 07:00 PM

Re: Honoring Our HER2 Lost
 
I think it is nice to have this link to go to if you want to, without it glaring like a beacon as soon as you log onto the site. Just my opinion. Like Sheila said, though, it does seem like a few names may be missing.

ElaineM 10-19-2011 09:31 PM

Re: Honoring Our HER2 Lost
 
I like the way things are now. We can go to the link to read about our special angels. We can also remember them in our thoughts and hearts.

Trish 10-19-2011 10:06 PM

Re: Honoring Our HER2 Lost
 
Thanks for raising this issue, Karen. I am glad there is a list. I think hope and honest aknowledgment of the toll can co-exist. Without clear eyed recognition of the facts, hope, while entirely justifiable, lacks credibility.
Trish

StephN 10-19-2011 11:35 PM

Re: Honoring Our HER2 Lost
 
Joe was the one with access to that part of the site and added any new names. Thus, I am pretty sure no one has been listed who passed after Joe did. Guess that is another bit that we either pass to Tom, the webmaster, or someone gets access to that page to add new names.

sarah 10-20-2011 12:00 AM

Re: Honoring Our HER2 Lost
 
Thanks Stephanie. So many of the people who are now angels were so important to so many of us. It's nice to know that now we can revisit them and remember them fondly for their courage and inspiration and advice.
love sarah

PinkGirl 10-20-2011 09:00 AM

Re: Honoring Our HER2 Lost
 
Never mind StephN ... I found it. It's at the bottom of the
list of Group Forums.

StephN 10-20-2011 11:02 AM

Re: Honoring Our HER2 Lost
 
Sorry, Pink - did not mean to ignore your question.
I had just come in from a 4-hour drive and probably should have just gone to bed!

StephN 10-20-2011 12:50 PM

Re: Honoring Our HER2 Lost
 
What names are missing, besides Darlene Denise?

Let's start a list so they may be added.

Please chime in.

Bill 10-22-2011 07:40 PM

Re: Honoring Our HER2 Lost
 
VAmoonrise. I didn't see her on the list. Maybe I looked in the wrong place.

Trish 10-23-2011 12:09 AM

Re: Honoring Our HER2 Lost
 
Jackie Handley passed away last year. I think her posting name was J. Handley but I can't remember it exactly.
Trish

StephN 10-23-2011 09:49 AM

Re: Honoring Our HER2 Lost
 
Bill, right you are. I can't recall exactly when that list was finally posted (after quite some discussion), but I see some other names missing from your dear Nicola's time.

Someone DID add Joe! Maybe it was the webmaster or Joe himself? Will check and see how to add some new names.

Becky 10-23-2011 02:08 PM

Re: Honoring Our HER2 Lost
 
Besides who has been mentioned:

Vicki
Al from Canada's Linda
Tom's mother
Believe51 - Mighty Oak

KDR 10-24-2011 06:23 AM

Re: Honoring Our HER2 Lost
 
JudyF, not sure if she was a registered member or visitor, passed this year after severe complications of surrounding brain tissue and radiation. She did tell me she visited the site often. I don't think she was an avid poster.
Also, Joanna J--your neice, Tabitha, too? Her story moved me like no other.
Hope all are well today,
Karen

Soccermom 10-24-2011 07:55 AM

Re: Honoring Our HER2 Lost
 
I'd like to add Nancy Wehrell to our Her2 lost. She posted once here as Nancy W.
Rest in peace, Nancy

StephN 10-24-2011 11:15 AM

Re: Honoring Our HER2 Lost
 
PattyZ is also missing. She was our first brain mets guru!

Joan M 10-24-2011 12:23 PM

Re: Honoring Our HER2 Lost
 
Karen,

Thanks for this thought about not forgetting the women who contributed to this website who are now HER2 angels. We fight this terrible disease in their memory.

Joan

Bill 10-24-2011 04:24 PM

Re: Honoring Our HER2 Lost
 
Thanks, Steph, I thought of Patty today. And also, "Goops", I feel bad for not remembering her real name, but she did post here now and then.

Jackie07 10-24-2011 10:46 PM

Re: Honoring Our HER2 Lost
 
I'm not sure a list (though I myself am a 'list' fanatic :) of lost members would be a good idea. The list could have a strong 'adverse' psychological impact on our new (or even existing) members. I personally would not want to experience that sort of emotion whenever I log on.

My own preference would be for our members to feel free to honor the lost sisters on their 'anniversary' or whenever something reminds them about a particular 'passed' member.

For those who are really interested in having a list, please click on "Members list" on top of the Board and just look at the last log-on dates. Most of the ones who have quit posting are alive and well. To find out if the person has passed, look up his/her last posting and then put the member's name in the 'Search' box to see if there's discussion of her/his passing.

Then again, there could be some that have earned their wings, but their passings have never been known to the Board.

Just my two cents.

KDR 10-25-2011 03:45 AM

Re: Honoring Our HER2 Lost
 
Dear Jackie,
Thanks for your opinion. You say, "I personally would not want to experience that sort of emotion whenever I log on." I respect that, but I also think there should be a site location where we CAN go to visit should we miss someone, want to find out their status, etc. Then you say, "To find out if the person has passed, look up his/her last posting and then put the member's name in the 'Search' box to see if there's discussion of her/his passing." I don't know how accurate this could be, supposition at best.

Personally, I feel a loving connection toward my fellow fighters. We even refer to each other as HER2 Family. Passings don't always involve HER2 breast cancer, either. I don't think our lost members should just float away and never be "heard" from again and I don't think those of us who monitor each other's well-being here should be left in the dark.
Respectfully,
Karen

ElaineM 10-25-2011 10:48 AM

Re: Honoring Our HER2 Lost
 
Personally I think the link Steph posted earlier is the right way to honor our "angels".
It is there for those who wish to visit the list departed members and does not get in the way of those who do not wish to visit the list of departed members.
All we have to do it is write down or bookmark the link somewhere we can find it easily or just follow Steph's directions to find it.
That way if we want to read about one of our "angels" we can go to that link and read. We can also remember those "angels" we were especially close to in our hearts or do something special and personal to remember them on their birthdays etc. I don't need to have the people I was close to and who passed away listed anywhere. I remember them and honor them in my own way.
I think the main purpose of this site is to offer support to those who have breast cancer and their families and friends. People can share their concerns, share their joys, give support and get valueable information about how to live with breast cancer.
This site works well with that mission and purpose. That purpose should remain the same for those who visit this site and in honor of Christine and Joe who started this site with that purpose in mind.
I would not log on very much if remembering those who passed away becomes a major part of this site.

KDR 10-25-2011 12:04 PM

Re: Honoring Our HER2 Lost
 
"Personally I think the link Steph posted earlier is the right way to honor our "angels"."

I don't think anyone was asking for anything different. Just to keep it current and to let us know where it is.
Karen

Joanna J 10-26-2011 06:29 AM

Re: Honoring Our HER2 Lost
 
My niece, Tabatha Nicole Reed was not a member,nor did she have Her2,But she passed away on April 7th,2011 w/an aggressive form of B C (I am so thankful for the support from my Her2 family,as you all gave me stength,during this difficult & trying time in my life) Thank You so much!! (esp.Karen for remembering Tabatha) Hugs To All. Joanna J.

KDR 10-26-2011 06:38 AM

Re: Honoring Our HER2 Lost
 
You are so welcome, Joanna. Tabatha really made an impact on me, and I never met her face-to-face. May you have continue to be clear forever.
Karen

StephN 11-04-2011 04:59 PM

Re: Honoring Our HER2 Lost
 
Becky, did you mean Vickie H, or was there a Vicki too?

Also we should remember:

HerMiracles
Clisa
HavahJ

Becky 11-04-2011 06:02 PM

Re: Honoring Our HER2 Lost
 
And Goobs (I think)

StephN 11-04-2011 06:36 PM

Re: Honoring Our HER2 Lost
 
Bill mentioned "Goops" (Karen)

ElaineM 11-05-2011 11:21 AM

Re: Honoring Our HER2 Lost
 
Kathy S from Tokyo seems to be missing from the link you provided. I think she passed away in May,2010.
We used to skype occassionally and she had a blog.
I used to live in Japan several years ago and enjoyed chatting or blogging with her.

StephN 11-05-2011 11:51 AM

Re: Honoring Our HER2 Lost
 
With addition of KathyS, we have 17 names to get added to the list of our dear departed members.

v-ness 11-13-2011 08:49 PM

Re: Honoring Our HER2 Lost
 
VickieH is missing from the list. valerie

Unregistered 11-14-2011 01:09 PM

Re: Honoring Our HER2 Lost
 
My twin sister died on January 2, 2011. She was diagnosed 3 years ago. She had the HER2, Stage 3, did all of the protocols, surgeries etc, then it came back after 6 months. It had spread to the liver and then to the bones. I miss her every day. She is my hero.


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