Re: 8 years since brain mets ... and counting
 

Thank you all.

Nsebesta - did you have brain mets or only liver mets? You do not have a signature posted.

My brain MRI has been every 8 months for a couple of years. I get a CT of chest, abdoman and pelvis once a year now. These are two separate doctors - one follows my head and the other follows by body from ears down.

I also have frequent blood draws and 3 different tumor markers checked, so I have a lot of coverage to tip off to any disease getting active again.

Re: 8 years since brain mets ... and counting
 

Steph,

You are my inspiration!! Congratulations!!!

Joan
xo

Re: 8 years since brain mets ... and counting
 

Steph - I only had liver mets - 2 of them in 2004. Had surgery in Feb 2005 to remove them. NED since then. I've been through 4 oncologist at MDAnderson. So for about 6 yrs I had CT scans, chest x-rays, mamograms, etc. every three months. I just finally put my foot down b/c I thought that was to much radiation. If I would have had active disease I could understand so many scans and test. One doctor was about to stretch it to 6 mos and then left. She apparently didn't put it in my file and the next 'new' doctor didn't want to do that right away.
I too have blood work done at the same time. I've discussed with my doctor going off herceptin - I'm just not brave enough yet. What made you decide to stop?

Re: 8 years since brain mets ... and counting
 

Congratulations !! Keep up the great work. Whatever you are doing is working.

Re: 8 years since brain mets ... and counting
 

AMEN!! I have to say I got "Glory Bumps" reading this!!
I am so happy for you StephN!! :)
I have followed a bit of your posts...ALL of your are bringing me SO much wisdom, knowledge & encouragement!!!

Tomorrow, I FINALLY get my port placed...then next week celebrate the big "50" bday and will most probably begin my journey of TCH chemo next week as well.
I AM GOING TO TRUST GOD IN ALL OF THIS AND PUT HIM IN THE "DRIVER'S SEAT!!"

I have to say, I THANK GOD for every new day and breath I take as does each one of us!!!

Blessings to ALL of you!!

Re: 8 years since brain mets ... and counting
 

8 years is fantastic. Nina will be coming up on May 30 with one year of NED. You are definitely an inspiration to all those who have had Brain involvement.

Re: 8 years since brain mets ... and counting
 

All I can say is Wow....fabulous!!!
Thank you for sharing!!!

Re: 8 years since brain mets ... and counting
 

Thanks StephN, you are an inspiration to all of us. I know dear Courtney really looked up to you and learned alot from you. Thanks for sharing your journey.

Kristin

Re: 8 years since brain mets ... and counting
 

Hooray>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> >>>>>>>>>>>>>>>>>>>>>>>

Re: 8 years since brain mets ... and counting
 

That is so great news!! Congratulations!
I love reading your posts since our initial diagnos is so alike.

Re: 8 years since brain mets ... and counting
 

StephN this is amazing! Very happy for you XX

Re: 8 years since brain mets ... and counting
 

Steph,
Such Happy News! You are always positive and always displaying hope to all. Continued blessings being sent to you.

Jean :)

Re: 8 years since brain mets ... and counting
 

This is wonderful...thanks for sharing!
Leah

Re: 8 years since brain mets ... and counting
 

That is great! Thanks for sharing the wonderful news!

Re: 8 years since brain mets ... and counting
 

Great news for those of us who are suffering with brain mets/family members with brain mets! Congrats. You keep the hope alive for us!

Re: 8 years since brain mets ... and counting
 

Great news, time flies and I cannot believe it has been
that long. What good news.
patb