One year of TDM1. NED!
 

I am still sad and shocked by the lost of some of our beautiful HER2 sisters so I was hesitating to post.
But then I thought I had to share hope with the sisters who are in trouble!
Like our Dear Chrisy who gave me hope and strength to fight for TDM1.
I started TDM1 a year ago and now I am NED. I had more than a dozen of tumors in my lungs, liver, thorax abdomen.
TDM1 has not been easy for me but who cares? I only hope it will work forever and I know how lucky I am it is working for me. They lowered the dosage the last round for the second time so I could feel better. I am a little afraid because nobody knows what the minimal dosage is but it is true that my pain in the chest is gone.
I remember trying to visualize during my first TDM1 infusion that it was going to blast every stupid cancer cell. And it did.
I hope it will keep me NED, I hope it will bring other sisters to NED, I hope it will be available fast all over the world and I hope it will be successful in the neoadjuvant trials.
Love to all. Michka

Re: One year of TDM1. NED!
 

WOW! I am SO happy for this post that you have come back to NED.

It has been a difficult road, but what great results. It just keeps proving that for some people it is a wonderful drug. Keep in mind that Chrisy spent three years on T-DM1 and started in the early years of the trial.
Hoping that with more and better information, you can do even better.

Re: One year of TDM1. NED!
 

Congratulations !! Keep up the great work !! I am very happy for you.
This is certainly wonderful and hopeful news for other people on T DM1 and for people hoping to get the drug in the future.

Re: One year of TDM1. NED!
 

Yea, Michka! Thank you for the wonderful news! We have had a drought of it lately.

Re: One year of TDM1. NED!
 

Yay Michka!!!

I'm so happy for you!!! Congratulations!
Thanks for the great news...ALWAYS welcome here! :)

Sending love and light across the miles...
Denise

PS - I can almost see Chris doing the happy dance for you from above!

Re: One year of TDM1. NED!
 

Oh wow! I remember Howard things were for you before you started! Stories like this give us all hope. We never know when something wonderful may come our way and grab the opportunity to reach for NED. May your dance together be long and slow.
A xx

Re: One year of TDM1. NED!
 

I'm so happy to hear about this for you! But, you say that it hasn't been easy - what do you mean by that? TDM1/Kadcyla will be my next drug and I'm having such a rough time with Gemzar that I am not sure I want to do another rough one. My doctor said TDM1 is easier than Gemzar but I'm also sensitive (which surprised me).

Not sure I can live the rest of my life on this drugs and struggling so much so unlike you, I am not sure all is worth it.

What are your SEs?

Re: One year of TDM1. NED!
 

Congratulations~that is wonderful news. I hope it brings similar results for many, many of our sisters, and continues to work for you forever. Big hugs..and many prayers for continued NED.

Re: One year of TDM1. NED!
 

BRAVO!!! Michka, Vous avez bien fait! Je suis tres heureuse! You deserve this, my dear, as we all do....praise God and your medical team and I hope many others reach NED as well!

Re: One year of TDM1. NED!
 

Michka, I am soooo happy for you!!! Hugs, hugs and more hugs!!

Re: One year of TDM1. NED!
 

Fantastic news well done to you may the dance be very long xx

Re: One year of TDM1. NED!
 

Michka! Thank you thank you for sharing your wonderful news. Long may you be NED!
Best wishes, Marie

Re: One year of TDM1. NED!
 

Great news Michka.
Kadcyla has now also been approved for Swiss use.

http://www.foxbusiness.com/news/2013...for-swiss-use/

Re: One year of TDM1. NED!
 

Michka,

I am so happy to hear your good news. Best of luck to you as you continue your therapy.

Hopeful

Re: One year of TDM1. NED!
 

So pleased to hear your good news. Thank you for posting x
Ellie

Re: One year of TDM1. NED!
 

Congratulations ! Lorrraines abdominal CT results from yesterday are Clear !! chest pending, but her chest has never been a problem, so we Press On , next scans in Sept.
Lorraine had to reduce dose to 3.0 long ago, mid 2011, and had one tumor left then . that disappeared by Nov. 2011. ned since.
I understand the hesitation to post , but Chrisy and the others , incl our dear friend Jay, would be sooo happy for you. It gives survivors hope. we must push to get t dm-1 appr. in combo w/ other drugs , and to get perjeta appr for stage iv. and for the next new drug, in early trials even now. God Bless.
we are talking with our new Senators office , Eliz. Warren . Shes on the HELP Comm., overseeing This FDA, hopefully these new women in Congress will hear us ! and do something !

Re: One year of TDM1. NED!
 

Felicitations chere Michka!
wonderful news, je suis tres heureuse pour toi!

Mange chocolate, c'est bon pour toi!

all the best
caya

Re: One year of TDM1. NED!
 

Congratulations Michka ! We need positive stories !

Re: One year of TDM1. NED!
 

wow Michka this is fabulous, fabulous news! I am so happy for you. Stay NED and have a wonderful summer with your family and friends.
Maybe sometime we can meet up.
take care
love sarah in the Var

Re: One year of TDM1. NED!
 

Wonderful news Michka! may it keep working for you, and may the S-E's diminish!
Best wishes..... Pam