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-   -   Need Input - Surveys (https://her2support.org/vbulletin/showthread.php?t=40354)

Joe 07-08-2009 07:18 AM

Need Input - Surveys
 
As the only independent internet support group primarily for bc survivors who are HER2 positive, we are approached from time to time to host surveys and studies on our website. Some of these surveys may provide compensation to either our members or to our group.

I need some input from our members in order to formulate guidelines for these surveys.

Regards
Joe

Terri B 07-08-2009 07:21 AM

What kind of input, Joe?

BonnieR 07-08-2009 07:23 AM

How can we help?

Mary Anne in TX 07-08-2009 09:01 AM

If it would help the site and not harm or be disrespectful of the members, I'm all for it! ma

chrisy 07-08-2009 09:05 AM

I don't know how you would define this, but I'd not want to participate in a survey where the main goal was to market stuff.

sassy 07-08-2009 12:30 PM

I would be in favor of any survey or study that would assist in the development of medications, treatment of side effects, or enhance QOL for those stricken by this disease. I would not want to promote any surveys or studies that are purely marketing tools.

hutchibk 07-08-2009 01:57 PM

I'm game, given I know what it's for ahead of time.

IRENE FROM TAMPA 07-08-2009 04:06 PM

I'm in joe
 
if it will be of help to someone..

Sheila 07-08-2009 04:15 PM

Joe
i agree that if it benefits us or the site, I am all for it.

DanaRT 07-08-2009 04:23 PM

I am in for a survey also.

freyja 07-08-2009 05:59 PM

Yup, let me know what you need.

tricia keegan 07-08-2009 06:21 PM

I'm excluded from many surveys because I don't live in the States but if I can help I'm happy to!

Jackie07 07-08-2009 08:14 PM

Should we check with the state attorney general's office first to be sure the company has not gotten any complaints? Is there any member on this board with legal expertise who can help with the issues?

charlotte 07-08-2009 09:26 PM

I would be happy to be in a survey , if it would help someone..what info do you need. I am applying for one now and want to see what is the information. that you might need.
Joe, if you need some help please email me.. thanks to you and this site.. Charlotte

AbbyDawg 07-08-2009 09:53 PM

Sign me up!

Chelee 07-08-2009 11:53 PM

If it will help other Her2 woman, & or benefit this site in anyway I am open to it. Anything for a good cause as long as its not for marketing as Chrisy & Sassy already said. But other then that I have no problems with it.

Chelee

bejuce 07-09-2009 08:30 PM

I'll be happy to help with anything for this site - the best resource I've found so far for HER-2+. Thank you Joe, for all the work you do to make this possible.

juanita 07-09-2009 08:59 PM

i'd help any way i can!

hermiracles 07-10-2009 01:24 AM

Count me in Joe - thanks!
Blessings
Hermiracles

Jyber 07-10-2009 05:27 AM

I would be happy to participate in a survey -- love to share my opinions! ;-)


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