***What was your date of dx, stage, treatment and current status...???***
 

Maryanne had ANOTHER great idea. I for one like to know everyones date of diagnosis, stage, nodal status, er/pr status, her2 status, treatment and current status. I also know that as time goes on people get on with their lives and don't check in as much, but even if on your anniversary you could check in and let us know how you are doing (also this helps the newly diagnosed looking for hope in those that came before them) that would be great.

Dx 2/1/05 (age 40), Partial Mastectomy 2/7/05
Stage 1 (1.6 cm)
Node negative (6 nodes removed)
ER/PR-
HER2+ (FISH 3.16)
Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan) on 5/18/05
Finished 33 rads 8/1/05
Started 1 year of Herceptin on 8/18/05 (will be done 8/10/06)

Next...

Rhonda

Hi Ronda, A very good idea...I like it. http://www.her2support.org./vbulleti...lies/smile.gif

DX 12-20-05
Right side mastectomy on 1-3-06
Stage IIIA
Her2/Neu 3+++
5 of 16 positive nodes
Er & Pr positive
Richardson score 9 of 9

Finished three rounds of Herceptin, Taxotere, & Carbpotin, along with weekly herceptin.

First chemo was on 2-7-06. I had one hospital stay that delayed treatment...so I am about a month behind schedule.

Next full cycle of chemo 5-1-06

I guess it could be useful to have this on one thread.

Dx 5/05 Lump 7/05
stage 2 (2.9mm)
node neg (2 rem) SNB
ER/PR+
Her 2 + +++ IHC confirmed by FISH
Beg 4AC 9/05, Fin 12 taxol & H 2/06
Fin 35 rads 4/14/06 Fin 1 yr H 11/06

Dx July 2004 at age 45

Stage III, 5 cm, 2/13 nodes , Her2+++, ER/PR+, and lots of other nasty proliferative stuff.

Clinical trial SWOG 0221: Weekly A, daily C/15 weeks; T 12 weeks (no Herceptin trial as onc didn't think the control arm was aggressive enough)
Herceptin started June 05, following HERA protocol.

Rads to chest wall, 35 I think!

Currently on tamoxifen and fosamax.

Anybody else's onc suggesting 2 years of herceptin???

Dx 08/30/2004 at the age of 39

Lumpectomy 09/05/2004 (Tumor 4.1 cm, 1 sentiel node with microsopic evidence of disease)

Bilateral Mascetomy 09/16/2004 1 node of 9 with microsopic evidence of disease Stage IIB

ER/PR-
Her 2 + +++ IHC confirmed by FISH

No further evidence of disease as of 9/30/2004 (based on PET, CT scan and tumor markers)

Began 4AC (dose dense) 10/15/2004

Herceptin started weekly in December 2004 with taxol every other week for total of 8 weeks

Chemo ended 01/27/2005

Herceptin every three weeks starting in 02/2005

Currently in second year of herceptin-- with anticipated end in November of 2006

Dx Aug 2003

stage 3b 35 pos nodes
er/pr neg
FISH 10
IHC 3
AC x 4 taxol x 12 then one year Herceptin
then did vaccine trial Seattle

I found the larger lump myself in the shower. I had never had a mammogram because of my age. When I had the mammogram it still did not show even though everyone could feel it. Showed on the ultrasound.
Dx IDC July 22, 2005, 37 yo at dx
Partial Mastectomy July 29, 2005, 2 lumps, 1.6cm IDC/.6cm benign fibroadenoma. Sentinal node biopsy - 3 removed/0 nodes positive
Her2+(100%)/ER+(30%)/PR+(23%)/Stage 1/Grade 3
Dx Papilary Thyroid Cancer Aug 15, 2005
Total Thyroidectomy Sept 15, 2005
A/C x 4
Taxol weekly x 12
Herceptin started Dec 05, now on every 3 weeks.
Lupron every month
Started Aromasin 2 weeks ago
Rads still to start (delayed due to scare on 6 mo mamo, which turned out to be nothing)
Thyrogen scan in Feb showed some remaining Thyroid cancer, need to do Radioactive Iodine in summertime.

Patricia

Dx'd 3-23-05 w/ 3 cm tumor Age 48 1/2 (turned 49 July)

MRM 4-5-05 w 2 tumor's 5cm, and 6 cm (right side)
5+/16 nodes
Stage 3
ER/PR-, Her2/neu ++ 3.42 confirmed by FISH
ki67 78%

Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)

28 Rad's ended October 13 2005

Started Herceptin Weekly August 2005 for one year, will be done this August 2006.

Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.

Taking Fosamax as well since I was dx'd with severe Osteoporois Feb. 2005

Vicki

still here - 1 1/2 years out
 

Dx 5/05, mamogram misread, was supposed to be a tiny tumor with a lumpectomy performed 6/05, ended up being 5.3 CM invasive lobular with DCIS up to the borders.
7/05 Mastectomy left breast Stage 3A, 7 of 20 nodes involved. Her2 2+ - 3+, ER+PR+
8/05 4 rounds of dose dense AC, one of Taxol discontinued because of allergic reaction. 30x radiation
12/05 Herpceptin treatments every 3 weeks for a year.
2/06 Prophylactic Mastectomy right breast

Herceptin treatment ended - I still struggle to feel positive about this. Taking Femara now after total Hysterectomy. 12/12/06

diagnosed 9-2-04 at age 41
lumpectomy 9-7-04
no node involvement
stage 1 grade 3
2 rounds tac
35 rads
switched oncs
6 rounds cmf
started herceptin 6-05
so far so good

Dx'd 10-03 at age 41
3 tumors largest being 1.4 cm, microcalicifications over 5cm area orginally thought 3b
Mastectomy 11/03, stage 2b, grade 3
3/12 node involvement, er/pr -, FISH 7.6
BRCIG study, CTH arm, 6 rounds, 1 yr Herceptin 12/04
30 rads
reconstruction 12/04. finish revision 5/06
NED

DX 6/30/05 Age 52, Stage 3c, 17 of 20 nodes pos, Estrogen +, Her 2 +++, Tumor 2.8, Lumpectomy 7/13/05, Began 4 dose dense A/C 7/24/05
Finished weekly Taxol with Herceptin 12/7/05, Began Herceptin every 3 weeks 12/14/05, will complete 9/13/06. Finished 6 weeks of radiaiton 2/28/06. Currently taking tamoxifin.

Hi;

Found the lump myself in the shower. Dx Oct 2004, lumpectomy Nov 15, 2004. No positive nodes, 3 cm tumor left breast. Dec 30, 2004 1 cm tumor found by onc in supraclavicular node left side, inoperable. 4 AC, 4 Taxol, radiation...particularly to clavicular area with boosts. During chemo I requested that I be checked for her2 and was found positive by FISH....borderline. Began herceptin during last Taxol infusion and remained on it until 4 weeks ago when my muga score went to 42. Am ER/PR + and taking Arimidex. So far, so good. Going for brain scan and bone density shortly. Trying to track down Bayer Her2 serum test.

Cathy

Hi there...I am new to this board. Here is my DX

Diagnosed 7/05, Age 49, 5 cm lump left breast -- Her2+++ PR/ER negative, 4 lymph nodes removed which were all negative, Staged at 2 ? (because of the size of lump)...
8/05 began chemo: 4 rounds Adriamycin/Cytoxin, then 4 rounds Taxotere/Herceptin....continuing with Herceptin for a year (at least). I have just completed 33 blasts of radiation (5 days/wk for 6 and half weeks).

My onc says she is waiting for release of data to determine whether or not I am on herceptin one more year. MUGA is currently 68 (I think vigorous exercise helps!) They are also watching a node in my lung (currently believed to be scar tissue NOT cancer) with MRI's.
Thanks to all of you for posting....you all give me much hope. Thank you!
SandyR in Everett WA

Great idea!

I was DX 10/2000 age 49, lumpectomy tumor 1.5cm node neg. Onc. started chemo 2 CMF's before HER2 DX came back positive by FISH then switched me to 4 AC's 28 rads. 9 months of Tamoxifen 4 yrs of Arimidex so far so good.

Dx 3/05 @ 34 yrs. old
er+/pr+ her2+++
stage 1c 1.9cm tumor
lumpectomy-0 nodes
4 AC- 4 taxol w herceptin
35 rads
5 yrs. of tamoxifen

Onc. will offer 2nd yr. of herceptin depending on muga-and I will be offered something after the tamoxifen
Michelle

My 'history'...
 

12-1999: Age 50, Dx'd Invasive Ductal & Inflammatory. Two tumors, upper and lower inside quadrants R/breast.

1-2000: Mast., 6/26 pos. nodes. ER+PR-, Heu2+++ StageIIIb - 4rnds A/C, no rads (my choice & no medical ins.)

7-2002: Dx'd mediastinal node/s mets, (surgical biopsy), 'spot' on lung and pelvis. Arimidex briefly.

9-2002: Dx'd brain mets. (mininally symptomatic) Two lesions, 1.5cm, 6mm. SRS focalized tx successful. Refused WBR.

11-2002: Navelbine/Herceptin 4rnds for systemic mets, scans show NED.

3-2003: Progression of brain mets. 14 new lesions visable. Asymptomatic. Continue to refuse WBR. "Watch and wait " approach. Treat in small batches with two more SRS, two CyberKnife procedures through 5-2004. NED in body.

3-2005: Progression brain mets - maybe 10 new lesions, asymptomatic. (otherwise NED) Again 'watch and wait' approach until...

8-2005: Dizzy 24/7 in the course of just one day. Begin Temodar/Xeloda.

9-28-2005: Following 2 rnds, MRi shows response of nearly 50% shrinkage in many brain mets, including brainstem/pons. Dizziness gone.

11-28-2005: MRi duplicate of previous films- after 4rnds T/X, mets remain responsive w/ more shrinkage nearing 50%. Continue Temodar/Xeloda.


12-19-2005: Onc confers w/rad onc re: past scans. Determine that some of the 'new' lesions are not new at all, but old treated spots just vaguely visable.

1-26-2006: MRi shows all stable. Will continue chemo combo.

3-27-2006: Still STABLE, no new mets. Taking chemo break after six mos tx. Keeping up every two month MRi's. Feeling good!

I am kind of far out compared to the rest that have already posted. It is important for me to say that I am Inflammatory Breast Cancer (IBC) a rare and very agressive cancer. I was told I had no long term survival perhaps, a couple of years and certainly, not 5 years!! I was diagnosed 03/01, IBC, stage 111b, (as all IBC is a stage 111b or IV if it has spread to the organs or bone)ER-/PR-, Her2+++, 44 pos. nodes. Treatment Ad/Taxatere x4, surgery, Rt. MRM with skin graft to chest wall, and my choice of Lt. simple mastectomy. 44 pos nodes. Radiation x5, then back to chemo Taxol and Herceptin x12 for skin mets (cancer in the skin/chest wall, IBC is a lymphatic disease) In and out of chemo (Taxol has been my miracle drug for skin mets) and NED to chest wall up to present. Scans every 6 months, do to my being IBC, so far no organ or bone involvement. I do lots of supplements, diet of lots of fruits and vegies, avoid dairy, meats, processed foods, exercise daily, drinks lots of water and get 10 or more hours of sleep at night believe in the power of prayer. I did reach my 5 year mark last month and still doing well. My doctors all tell me I wasn't suppose to still be here. For those out there that are given a death sentence or poor prognosis there is HOPE!! Sandy

What a great idea - I love to hear everyones dx!
Me:
Mammo 12/03 - Clear (ordered as left breast was larger than right, felt different and hurt while I was nursing my daughter)
8/04 - Felt large lump in left armpit.
9/04 - Felt pea-sized lump in left breast
10/04 - dx IDC, 1cm, +DCIS, 4/20 + nodes (4cm+), ER/PR- HER2+++, Grade 3, Stage 3a
TX - Left MRM, 4xAC, 4xT+Herceptin, 35 rads, currently on 2nd year of Herceptin, will continue till December 06.
Proph. Mast with DIEP bilateral recon. June 06
All recent scans (brain, PET, bone) CLEAR!

I think my info is in my signature. I am currently 28 and NED. Next set of scans 5/5/06.

08/04 - found lump during monthly breast exam at age 45.

9/04 - lumpectomy 1.9 cm tumor 1/10 nodes positive. Her2 (3+) ER (50%) PR neg.
10/04 - joined this website at the start of chemo
4AC + 4 Taxol dense dose. Finished chemo 1/31/05. 34 rads (28 + 6 boosts) finished 4/05. ASCO meeting in May, 2005 presented Hera trial and NAmerican trial. They recommended Herceptin for any Her2+ woman who was 6 months or less out of chemo (they later modified this to 12 months) so I started Herceptin in mid June 2005 at about 4 months post last chemo session.

I should be done this June but my onco is recommending going to at least the end of September to cover my first 2 yrs beyond diagnosis. He may end up going for the second yr but I doubt it if there isn't any 2nd yr trial results. So, I will get at least 15+ months of Herceptin therapy.

Got ovaries removed 8/05 so I could also take Arimidex vs Tamoxifen as I am estrogen positive as well.

So far so good.

Becky

DX 07/04/05
Lumpectomy 07/24/05
3/9 nodes
A/c x4
Taxol/herceptin x12 weekly
35 rads completed 04/26/06
Herceptin 3 wkly for a yr
Idc Highly triple positive

DX 7-04 IDC
Partial Mastectomy 8-04
1 positive node sentinel
ERPR + Her2pos+++
4 Adriamycin every two weeks
4 Taxol every two weeks
4 Cytoxan every two weeks
33 rads
Arimidex
6-05 Herceptin x one year
NED

Diagnosed in Feb. 2002 at age 49 (50th birthday gift!)
Found on routine mammo via calcifications, had been getting mammos every 6 mos due to family history of BC.
STAGE 1
Left mastectomy 2/2002, 0.7cm IDC, Her2 +++ by IHC, ER-, PR-, 18 nodes neg.
No chemo recommended due to neg nodes and small tumor size.
Reconstruction with tissue expander / silicone implant 9/2003
Enlarged lymph nodes in collarbone area found during reconstruction, biopsied & found to be Her2+++ Breast Cancer. Graduated to.................
STAGE IV, 9/2003 with mets to lymph nodes.
Herceptin started every 3 weeks. Stable until 3/2006 when lymph nodes in collarbone reappeared (gift for my 54th birthday)
Began Xeloda 4/2006 with Herceptin, lymph nodes shrank by 75% after 1 cycle.
Continue on Herceptin and Xeloda.
Just passed my 4 year mark...looking to the big 5 year one!!!!!

Excellent idea!

I found a lump while in the shower. Ultrasound showed 3 tumors.
Dx 1-11-01 at age 40.
Stage 3
ER-, PR-
Her2+++
4/13+ lymph nodes
Mastectomy on one side 2-6-01, had to take the muscle to get clear margins

Took part in phase 3 clinical trial for Herceptin:
Dose dense AC x4
Taxol weekly x12
Herceptin weekly for1 year
34 rounds of radiation

Still have troubles with Lymphedema, Neuropathy and Muscle Spasms.

NED for 5 years now, Sue

DX 7/04
Lumpectomy 7/9/04
1.2 cn
Stage 1
Infiltrating Medullary Carsinoma
8 nodes negative
ER/PR neg HER/2 3+ (strong positive)
A/C X 4
33 rads ending 12/23/04
Herceptin approved for early stage in November, started 11/05 every 3 weeks for a year.

Maggie

Stage IV IBC 1/12/2000 - age 36
Modified Radical Mastecotomy - 24nod/5+
immediate tram flap reconstuction (herniated 2x)
Adriomycin Cytoxin Taxol
4 1/2 years Tamoxifen
Radiation - 32 x
plural effusion 8/2004
thorocentesis - pleurodesis - video assited biopsy
Metastasized IBC to lung/liver/nodes 10/04
Herceptin Taxotiere Carboplaten
Femera/Lupron
Stable since April 2005
platelet/blood transfusions
-Maryann age 42 and counting-

My Diagnosis
 

Found lump as a fluke - just adjusting bra.
Age 34 - Dx 12/12/04
1/12/05 Bilateral mastectomy with latisimus dorsi reconstruction and sentinel node biopsy
Stage 1 (2 lesions right breast .9 cm and .6 cm)
Grade III
Node negative
ER/PR-
HER2+
4 rounds of dose dense Adriamycin and cytoxin
4 rounds taxol
No rads
Started 1 year of Herceptin on 5/05(will be done 5/06) yikes!

Olivia

what ws your date of dx, stage, treatment and current status
 

semi regular mamos since age 35. I was diagsied at age 43.
7/22/05 - mamo tech.thought something wrong with left breast then said Ok. I insisted to Ob/GYN wanted sonogram
9/2/ 05 ( my deceased mother's birthday) had sonogram which showed small regular shaped tumor on right side. All docs said nothing to worry about the edges are smooth. Went to see surgeon anyway -she also not alarmed did sono in her office.
9/13/05 - biopsy at major medical center
9/14/05 (daughter's 10th birthday) diagnoised with er+ tumor right side.
9/18/05 see surgeon memorial Sloan kettering in NYC - not one small tumor but 3 ( two peas and a pencil point ) first surgeon biopsied "wrong" tumor.
10/5/05 - partial lumpectomy - three nodes removed.
three tumors in total 1.2, 1.2 .01 - one ever showed up on mamograms - her2+, er ( 80%) pr (70%)
started on tamoxifen 10/19/05
Nov. started weekly herceptain
December started monthly Lupron shots and switched to arimidex
1/15/06 - reexcission- radiooncologist did not like the pathology report - margin increased all around from .2mm to .1 cm. patholgy report on reecision came up completely negative.
2/12 started rads.
3/27 completed rads
april 18, last weekly herceptain - now going one every three weeks.
six month MRI scheduled for May 21. Keeping my fingers crossed.

Is there a way to have this info attached to our member profile?
 

Dx: at 29 y.o. on 8/4/05
Stage 1 IDC, two tumors (.7 cm and .5 cm) and DCIS spanning 4 cm
(pT1b pN0 pMx)
Tumor grade 2 (Nottingham)
High grade
ER- / PR-
Her2: 5.33
0 node involvment

Tx: (Surgery) total L Breast mastectomy with immediate lat flap recon and cohesive silicone ("gummy bear") implant, (chemo) followed by 4 rounds AC, followed by Herceptin for 1 year (3 wks apart, beginning 12/21/05).

Used Lupron to voluntarily and temporarily shut down ovaries to protect them durng chemo. Effexor for hotflashes, Ativan for insomnia.

3/22/05 Preventive R Breast mastectomy with immediate lat flap recon with "gummy bear" implant.

http://smileys.smileycentral.com/cat/29/29_1_9.gif Stage II, DX 4-05
EP +, HER2 +++,
1 node, 1.6mm
Simple Mast/Reconstruction Left breast 6/05
4x AC/4xTaxotere/Herceptin--finished chemo 11/05
Herceptin to cont. for yr.--stopped due to drop in Muga--hopefully to restart soon
47yrs. old

Almost 5 years and NED.......Celebrating Life !!!!!!
 

Dx 11/01 at age 38
Lefts side Mastectomy
Stage 3b (9cm by 6cm by 4cm)
16 nodes involved (16 nodes removed)
ER/PR-
HER2+++
Treatment - AC chemo and Taxol and herceptin and continued weekly treatments of herceptin for 1 year.
Radiation 35 rounds

Thankfully I've been NED since end of treatment. Changed my lifestyle significantly - ended a destructive marriage, became single mom, eat mostly organic and vegetarian, do lots of yoga, teach yoga, created supportive, loving relationships, vowed to live each day to the fullest with less stress, enjoy flowers and birds, relax more......:)
Margaret

Mammo since age 32, had first lump removed while pregnant with my daughter at 36. The lump was benign
This lump did not show up on mammo but was a solid mass on us. The DCIS was not picked up on mamo or us.
DX: Jan '05 at age 49
Lumpectomy
1.3cm IDC w/ High grade DCIS 1mm from chest wall
5 nodes removed all negative
ER+ 95% PR+ 10%
Her2+++
Grade 3
I did dose dense ACx4 and Tx4 and 34 rads. Two weeks after last Taxol, I started a year of Herceptin and I will complete Herceptin in July. Currently on five years of Aromasin.

reached 5 year mark
 

Hi
dx April 2001; 2 cm, 1/13 node +; Segmental mast; rads; chemo=taxotere trial (3 A, 3T, 3 CMF);

Reoccurence in same breast in Sep 2005; 4 x 2 cm tumour not picked up by ultrasound/mammo.(extensive fibrocystic disease in breast); Scans showed 1 x 15 mm spot on liver. Tx=taxol/hercetpin x 6 then maintenance herceptin. NED after 3 cycles.

(Note: I think 2nd tumour was there all along but because it wasnt large/didnt show on mammo.possibly it was supppressed by chemo. then eventually started growing again. In hindsight I should have insisted on full masectomy).

Jackie

Diagnosis
 

Diagnosed June 2004
2.7cm lump er/pr - HER2 +++ grade 3 no lymph node involvement
lumpectomy,6 months chemo and 3 months radiation
Rediagnosed January 2006
2 cm lump with mastectomy and tissue expander HER2 FISH ++?
March ct scan shows lung lesions - largest 8 mm
Will have last chemo of Adriamycin this week and start HERCEPTIN shortly

Good luck and best wishes to all!!
Love the site
Julie

My info. -

- Diag. 07/31/02, age 40, Stage III
- Neoadjuvant Chemo, 4 A/C followed by 4 Taxotere (ea. 3 weeks apart)
- Mastectomy with expander/implant reconstruction. Tumor had shrunk to 1cm and all
7 nodes taken were negative (status of nodes prior to chemo is unknown)
- 28 rads
- Currently taking Arimidex
- Contemplating late Herceptin, waiting to get response from insurance co.


Pat

Dx
 

Found lump in the shower Thanksgiving weekend 11/04 at 39 yrs. young. Long & sorted between then & surgery. 1st surgery Jan 05 lumpectomy & Sentinel node removal turned into partial mast. as my lump was no longer 2cm but 3.5cm. Told the nodes were clear when I followed up a week later w/ onc. I was told there was a 4mm spot in 1 node I would have to go back to surgery for the rest to be removed. The other 11 were clear.

Stage IIB Grade 3, Her+++ , ER/PR-
Dose Dense A/C & T 4X, 30 rads.
Thanks to all the "trailblazers" Herceptin was approved 1/2 thru my Taxol added and I will continue (every 3 weeks) on that til July 5th

Currently considering removal of ovaries.

MJo Status
 

Dx 10/28/05 Lumpendectomy 11/04/05
Stage 1 (.55 cm)
Node negative (Sentinel node)
ER+/PR+
HER2++
Onctoype score of 31 (21% chance of recurrence in 10 years)

Started chemo week before Christmas. Finished three dose dense A/Cs. Skipped 4th due to illness (anemia, respiratory infection and asthma). Started dose dense Taxol and Herceptin in March. Have finished three Taxols and five Herceptins. Having an easier tiime with Taxol, although I had to wait three weeks for my third due to low blood count.
Will have six weeks of Rads, and one year of Herceptin. Doctor advises five years of Arimidex

All the very best....MJo

MJo Status
 

Dx 10/28/05 Lumpendectomy 11/04/05
Stage 1 (.55 cm)
Node negative (Sentinel node)
ER+/PR+
HER2++
Onctoype score of 31 (21% chance of recurrence in 10 years)

Started chemo week before Christmas. Finished three dose dense A/Cs. Skipped 4th due to illness (anemia, respiratory infection and asthma). Started dose dense Taxol and Herceptin in March. Have finished three Taxols and five Herceptins. Having an easier tiime with Taxol, although I had to wait three weeks for my third due to low blood count.
Will have six weeks of Rads, and one year of Herceptin. Doctor advises five years of Arimidex

All the very best....MJo

My info
 

Diagnosis 10/2003, age 38. ER-/PR-, very aggressive and pregnancy-affected breast cancer, which worsens matters.
Chemo (6*FEC75) before surgery, so no accurate staging. Oncologist's guess was 2B. Mastectomy. At surgery, 8/19 nodes positive, so 4 rounds of taxotere given after surgery. 15 rads (including area around the collar bone).
One year herceptin started late (10/2005).
Currently NED.