Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Just wondering...did anyone get to NED on this combo...from Stage IV...?
Thanks Karen |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Hi Karen - I think you have a shot at remission w/this. On breastcancer.org (bco.org for short) a stage iv woman's onc said that the clinical trials show she has a good shot of remission on just tykerb and herceptin. And, you are adding another actual chemo - xeloda.
Fingers crossed, Kim |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Karen, I had a good run of "stable" with Xeloda and Herceptin, then a shorter run of "stable" with Tykerb Herceptin....never found NED...still searching for him for 8 years....at this point, I am very happy with stable disease, aka no new areas of concern, and the present ones are unchanged.
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Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Thanks! We can all watch and wait!
Sheila, glad to see you are up and at it with vigor again! Karen |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
I am a bit thick What does NED stand for.Thanks
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Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
No you are not thick... I wondered the same thing when I first found this site. No Evidence of Disease, something we all want to be!
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Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
My husband's native language is Arabic, and one complaint he had about mastering the English language is...all the abbreviations...we do have many. EPA, DEC, FDA, PTA, Rx, on and on! Yes, NED = No Evidence of Disease. Got there once, have to do it again. I would like to remind everyone here that Kathy Rich, a New Yorker who is a 20-year metastatic breast cancer survivor, is still alive and well. She is the author of "The Red Devil (To Hell With Cancer And Back)," and now "Dreaming In Hindi," about a year she spent in India, learning the language and culture. She gives all of us hope.
Best Karen |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
KDR.All the best.
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Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Karen,
I'm also hoping that this combo works wonders. I am on Tykerb and Xeloda (no herceptin) and I will get a scan in a few months to see where I'm at. Fingers crossed. |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
I had a lump removed from my chest wall a couple of weeks ago and scans show everything else is cleared up. I wasnt told I am NED though, the doctor said 'you might be ok for a while now'. I am off chemo now and on herceptin/tyverb/zometa. Hope it works for a LONG WHILE!
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Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Really glad to hear this good news.
Ellie |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Im starting tykerb/xeloda combo next week. Hoping to put my liver mets into remission. will keep you posted.
Dawn |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Dawn,
Wondering...why didn't onco do the Tykerb, Herceptin & Xeloda? Wishing you well, Karen |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Hi Karen,
Im not sure why they stopped herceptin but I'm going to ask my onc. I've just finished my first cycle of tykerb/xeloda and feeling great. I'm not due for another scan until November. But I'm thinking I'll call my onc on Tuesday. It's Thanksgiving weekend here in canada and monday is a holiday. Dawn |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Happy Thanksgiving, Dawn. (And Carolyn, Nora, Pink, YellowTail, Lois ... etc.)
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Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Thanks Jackie,
Had a wonderful dinner with my family and close friends. Oh my, the food. We had a scavenger hunt for the kids also and they had a blast. Today my younger sister is making turkey soup and hot turkey sandwiches with home fries for dinner, that should finish off the turkey. Fantastic holiday this year Dawn |
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
Yes Ned on zometa..herceptin..tykerb
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Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?
My prayers are with you that you remain in NED. I hope i see that some day as well.
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