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-   -   Trial Trastuzumab-MCC-DM1(One more on this trial) (https://her2support.org/vbulletin/showthread.php?t=31039)

lilyecuadorian 11-08-2007 10:28 AM

Trial Trastuzumab-MCC-DM1(One more on this trial)
 
After all kinds of tests the trial started on November the 5th of 2007. So far there is not much to it outside of the tests before the start. During the first infusion they took my blood pressure, pulse and temperature every 15 minutes. That was a little annoying but worth it.

They are looking for more candidates for this trial. Right now there are a hundred total people on this trial nationally and five in North Carolina.

One other thing they are looking at is that with the combination of the drug there is a possibility that there will not be heart damage. Further more, it's been easy to tolerate for me so far.

I will keep you gals up to date as it goes along.

eric 11-08-2007 06:17 PM

Good luck! Let's hope that you do great on it along with everyone else. Will be watching for your posts.

Eric

kareneg 11-09-2007 09:46 PM

I am so glad everything worked out good for you! I pray that this trial will go smoothly and kick butt! Thanks for doing this and letting us know how you will be feeling and doing. I love you my friend!

MPB 11-10-2007 09:10 PM

Lily,

I will starting this trail on the 12 of this month. Let's pray it kick's ass on this dam cancer! My prayers are with you!

Marsha/MPB

lilyecuadorian 11-10-2007 09:41 PM

Marsha good luck on the 12 I will thinking about you that day , I mean monday and I sure you are going to be OK too .so far is easy ...

Julie2 11-10-2007 10:52 PM

My best wishes to Marsha and Lily and hoping this is a miracle drug. Please let us know how you are doing.

Julie

hutchibk 11-16-2007 11:55 AM

Please keep us updated! You all are our newest pioneers and are paving the way for so many more behind you! Blessings and best wishes!

Patrice 11-17-2007 03:54 PM

Lily,

This is the first that I've seen that you started this trial. My thoughts and prayers are with you (and Barbara H.) always. Please let us know how you are doing.

Patrice

lilyecuadorian 11-19-2007 06:18 PM

Thanks, Patrice ...I went to my Doc today for a blood drow and I got the results from last week results (just blood) and my liver enzimes are a little bit higher ...my is 65 and normal is 34 ...other then that is OK so far ...I never hav before no even when I have taxotere, carboplatin and herceptin and 4 tumors and now with the new drug this is one of the side effect ....today I have my echocardiogram and so far is OK .....my next ct scan,brain MRI is going to be on Dec 10 (except my conciense)they are going to check everything else ...so by Dec 14 I will got the results and My Doc going to ASCO to San Antonio he is going to have a conference there ... is not that much side effects like others drugs so get enroll and lets help to get this drugs quikly in the market for future options . next monday I will have my 2 infucion....thanks Sister for all the wishes and blessings

Patrice 11-21-2007 03:00 PM

Lily (Marsha & Barbara H.), I'm thinking of you all, and will anxiously await Lily's scan results on the 10th. You'll all be in my prayers, especially tomorrow.

All my best, Patrice

lilyecuadorian 11-26-2007 02:07 PM

Hi, I went today to receive my 2nd infusion and it was much better then the 1st one ...my liver enzyme was normal again, the 2nd week was higher 2nd week normal thanks God !!! ( I guess I drink lot of water and tamarind juice) and my echo was OK ..also ...so lets see what is going to happen this 3 weeks ...for now I'm OK ....

runtolive 11-27-2007 09:19 AM

keep us posted lily.. glad to hear you are feeling better after the second infusion

Patrice 12-01-2007 06:47 PM

Lily, I was so glad to hear yur recent reults! You keep going girl! You are in my thoughts and prayers every single day - and I look forward to hearing more positive news- you deserve it!

All my best, Patrice

lilyecuadorian 12-10-2007 10:03 AM

Sisters I will ask you for some prayers this week, because I will doing some test ct and MRI ...I will need that especially this week ...from that depend if I will still on this trial ......thanks and Love you all

kareneg 12-10-2007 12:48 PM

Dear Lily,

You have mt thoughts and prayers extra ones for this week please let me know how you are doing when you can. I love you my freind! Tha cat Scan was today when will you get ther results? I am praying so hard for you!

Love Karen

Julie2 12-10-2007 03:09 PM

Lily,

I am thinking of you and praying for clear tests.
Julie

MPB 12-10-2007 04:09 PM

Hi Lily,

I have prayed for you since we met, I know God will not fail us, he has plans for you and I. Hang in there sister and know we are all holding you in prayer. I had my second round and I still had it kick my butt. But I don't care as long as it is working.

hugs to you my friend.

tousled1 12-10-2007 07:50 PM

Lily,

You are in my prayers every day but I'll say a special prayer this week that all goes well for you. Glad to hear the treatment is working for you

Patrice 12-10-2007 08:15 PM

Lily,

You are always in my prayers, but I'm saying special ones for you that these tests results are exactly what you are looking for. Sending positive thoughts and love.

Patrice

dhealey 12-12-2007 06:57 PM

Lily, I will be keeping you in my prayers that your test come out with good results and you continue to do well with this trial. God Bless!


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