I will be busy tomorrow
 

Thanks to several people this gal will be very busy on the phone tomorrow and hoping for some highly positive results. In fact, one clinical trial that is quite "cutting edge" is in Detroit MI and I actually have human resouces in that area that might be able to help me with picking the right motel or transporting me etc. if I have a possibility of qualifying.

I will keep you posted and thanks for the help!

Good luck Barb!! Keep fighting the good fight.

all the best
caya

Good Luck, Barb1 We'll be here praying for you. Love and hugs, Vickie

Barb,
Good luck to you - I'm so in awe of your determination to get what you need. You're in my prayers tonight...
Chris

Barb,

Your news sounds very good. Please let us know what happens today.

Amelia

All the best, Barb. Sending lots of prayers and good thoughts your way for great results!

Dear Barb -
Big "hello" from the Denver cancer researchers' meeting.

I am wondering if the trial is is one I came across today. Genentech has a new trial with a drug named GDC-0941 - a dual PI3K/mTOR inhibitor.

It is in phase one and at three sites including Detroit.

Go for it. All the best.

Keeping my fingers crossed. Let us know how you make out.

Barb,

Just wanted to let you know that I am thinking of you.

Hi to everyone...waiting for lots of call backs etc. and I will attend the chemo this Thursday and go from there. One of the trials is that "different" type of radiology in Detroit where they (for lack of a better word) fry the tumors in your chest.

Lots of checking and work, but I'm betting I'm due for a scan and it may save me some steps as I pursue this. I will know a lot more Thursday I hope.

So, unless I say I am "gone" permanently somewhere, please keep the info coming if you hear about it.

So, thanks so much StephN, for remembering me!

Hi Barb,
Best wishes being sent.
It is the brave people like you who help all others.

Kind Regards,
jean

Barb,

Let us know how things are going. You sound very busy.

Amelia

Barb,

Let's us know what you decide to do.

I'm sending positive vibes your way.

Joan

A person from Detroit finally got a hold of me today. She told me some of the initial "criteria" and I am going to look at my notes to see what I see. I also have a scan coming up and they have requested one more.

It is a start, but I'm also looking for "back up" possibilities. I don't know how to explain it except I "feel" like the treatment I am getting is not working on the mets....so I think that I better have somewhere to go as an alternative.

Of course, perhaps this is the fact that I am coughing up a substance, I have been real prone to catching every bug that goes by and I just don't feel good. However, I never had mets like this before.

I am also quite depressed which is unusual for me. But perhaps it is just a reality check. It just has never been this hard for me. i just always felt like I needed to keep fighting. Somehow, I feel I'm being selfish this time, and I'm not sure "where" I should go.

Thanks for listening. I've even been afraid to post on here because I'm usually so positive and I really am full of fear.

Barb, I know you are going through such a overwhelming time in your journey. Please know that we all face fear and depression during our cancer treatment, patient and caregiver. It is tough enough to be sick; then add in thoughts that rob you from sleep, mix in some worry and anxiety, blend some aches and pains and fold in the mets......well this is a recipe that provokes those feelings no matter how upbeat we normally are. I think that the times when we are fearful the most we should come here. You are not alone Darling and you never will be. I sometimes feel I will pop some balloons if I come here sad, sort of like what you feel. It provides us all with an chance to blow yours up, our only way to help support you besides enjoying your victories. We all need to know the good and bad things on this journey to help us on ours too. Please come to us when you are happy or sad, we are family and love you so.

As your friend, a sometimes sad and fearful one, I know that we are all somehow programmed to fight. Whether fighting cancer or other fights in life, it is how we roll. Although I am your friend and one who does not have cancer, I speak from the heart. I tell you to keep fighting but I can understand the thoughts of you not knowing where to go. These are not selfish feelings, Barb, this is your reality. Your post proves that you are not ready to 'go there' yet so I beg you to keep fighting, stay one step ahead and attack from all angles. More and more I have that conversation come up with Ed and sometimes after one I need to go into the other room. This is our reality but he is not ready to stop treatment. Please know this is not selfish act, this is about quality of life and an act that must be thought out well. You will know when it is time, if that time comes and for some it never does.

I sit here tonight and have no need to urge you to fight, your voice says you are ready to kick some cancer butt. If your gut feelings about not treating the mets as aggresively as you would like, keep searching for that answer. I send love to you, Barb, happy or sad I love you the same. You hang in there, stay strong in your mind, and breathe. We will see you through this all.>>Believe51

I am still out of work and offer you any research support that you want me to help with. I mean it!