Brain MRI this morning
 

It's that time again...
I have a brain MRI this morning, and get the results this afternoon. If you have a moment, may I please ask for some prayers this morning?
Im not going to lie, I am a bit worried about this one. I had two brain tumors at my last MRI, but if they have grown or multiplied I have to move on to another treatment. Right now I am on Tykerb and Herceptin, which is totally easy.
My radiation oncologist will not use Cyberknife if there are more than five brain lesions. :( But if they have grown or there are more, and the total is less than five, then that is the current plan.
I've been doing the scanxiety thing for a couple of days. This morning it took me an hour to find my toothbrush because I, apparently, put it on my nightstand instead of back in the toothbrush holder..lol! So, obviously I have been a wee bit distracted.
Thank you for the prayers and positive energy and support...I'll update when I get home this afternoon. Big hugs to everyone.

Re: Brain MRI this morning
 

Lifting you up in prayer this morning.

Re: Brain MRI this morning
 

Prayers for you KS - please let us know the results when you can.

all the best
caya

Re: Brain MRI this morning
 

Praying...

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Praying, praying, praying for shrinkage or all clear.

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Praying hard for great results and good news!

hugs,
shobha

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Wishing for those little brain mets to have gone away - to stay!

Best wishes and prayers for a good scan.

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Best wishes xxx

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I hope all is going well x

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Prayers coming via express delivery!
Big hug, Marie

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I hope your scans went well yesterday! :) Just said a prayer for you.

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Praying-lit candle.

Karen

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Ks-
I prayed for you yesterday from inside my own MRI machine! Now I'm waiting for relusts too. Prayers for both of us, and fingers crossed!
Love
Denise

Re: Brain MRI this morning
 

Well. I think I had one of the most bizarre days ever, and I didn't even get the MRI.
Let me preface this by saying, I have had four MRI's of my brain up to this point, and had no problems whatsoever.

Back at the time I got my expanders after my double mastectomy, I also found out I was stage IV. It had taken me about a month to recover from my mastectomy all together...that is the amount of time I took off work and stayed at my moms. I got two fills in my expanders, and then I decided if I was stage IV this was a waste of money and time in surgeries and procedures and things that I didn't want to go through. At that time, I thought I had a limited time here to spend with my kids, etc, so I decided to just keep the expander and forget about finishing everything.

So, on to yesterday, keeping in mind I have had FOUR MRI scans of my brain before. I go in, get my little ear plugs, hop up on the table. The technician pushes me into the tube, and says she will be back halfway through to give me the contrast material. She goes in the other room. I notice my chest feels strange. I reach my hand up there to feel my chest, and my implants are smashed flat to my ribcage in the middle, and look like some crazy deformed doughnuts. Im pressing the panic button....press press press. Im hollering..excuse me! lol

She comes back in, pulls me out of the tube and they pop right back up like nothing ever happened. I wasn't sure how to word it, but I said "When you put me in the machine my implants deflate". So, I pulled up my shirt, she slid me into the tube again...doughnuts. Like where my nipple should be has completely sunk into my chest...pulls me out and it goes back to normal. She gets someone else..they watch my implant/doughnut sequence. We all laugh hysterically because, hey, it is a little weird looking, you know?

So, I spend an hour sitting in the hall waiting while they call my plastic surgeon and the manufacturer of my expanders, and it turns out they are not MRI friendly. If I have an MRI it could burn me internally and a host of other bad things. It was not noted anywhere by my plastic surgeon. Im curious as to why they would use expanders on a cancer patient that were not MRI friendly...as obviously we all get a lot of scans including MRIs.

Right at this time, we get a call from my stepmother's school (she teaches at a college) that she is on the way to the hospital in an ambulance, and they think she may have had a heart attack. Luckily, I am right across the street from the hospital, so we go over to the ER. It wasn't a heart attack, thank goodness, but it took a couple hours to even see the doctor in the ER and get her checked in for observation.

Then I think...okay, back to the scan situation.

I call my radiation oncologists office, because i have an appointment at 1:30 to get the results, and obviously Im not having a scan. The number the operator gives me is to an exam room, not the front desk. I call the clinic operator back...she gives me the number to the front desk for the chemotherapy unit. While I am on the phone with the chemotherapy unit, the radiation oncologist actually calls me, and I can't figure out how to change lines on my phone to answer. I decide..screw all this, Im just going to drive over there, which I do. By the time I get there, he and his head nurse are in a procedure over at the hospital that will take four to five hours. Frustration! I leave a message with the receptionist, and I start across the parking lot. It's pouring rain, and the key won't work the automatic door locks! I just started cracking up, because what are you gonna do, right? It only took a few minutes to get it working again.

My radiation oncologist called me this morning and said a PET scan will not cross the blood brain barrier, and a CT scan isn't precise enough, and there doesn't appear to be any sort of MRI for the brain where the chest won't be "in the tube" so to speak...so I can't have another brain scan until I go in and get my expanders removed and either go completely without or get new implants.

Im pretty bummed, and scared to death. What if there are all kinds of crazy things going on up there in my little noggin, and we don't know it because I can't get a scan!!!!! So right now I am waiting to hear from either the radiation oncologists office (who were calling my plastic surgeon) or my plastic surgeon to see how fast I can get this all done.

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and thank you so much for all the prayers and positive energy and support. It means the world to me. I talk to my family all the time, but they don't really "get it" like all of you, who go through the things I go through. ((hugs)) to all of you...

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Holy Shit! That story is just unbelievable.

I never in a million years expected to hear anything like this.

Honestly what can you do, but laugh. This is seriously crazy stuff.

I don't understand about the Pet Scan. I mentioned that in the last few days, and was wondering why the Pet Scan didn't include the brain. Perhaps it is because of the blood brain barrier, hmmmm . . .

Geez, I hope they put the Plastic Surgeon on it ASAP! I would have never thought about implants interfering with an MRI.

God must have a plan, and maybe he's delaying the scan to give your Tykerb/Herceptin a little longer to work?

I am saying a little prayer for you.

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WOW, KS -
In all my years of breast cancer support I have never heard of MRI-unfriendly expanders. And know several women who got new boobs via expanders who developed brain mets. Perhaps there is some diferent material in yours?

I think it would be important to list a warning here for that particular kind.

On to your other status. I will pray for you to be on a different procedure suite table ASAP.

Re: Brain MRI this morning
 

Well crap on a crap stick! And, as NEDenise says, can't we ever get a break? It's always some thing! I think we must be the most resilient peope on earth. I love how you were able to tell your travails with such good attitude. But this situation needs some serious resolution.
Kep the faith

Re: Brain MRI this morning
 

Lol, crap on a crap stick...that sounds like the luck I would have KS ESP the part it's raining, and my remote won't work! Learn something new everyday maybe it's time because you are going to live a long time that you got your real implants put in! The MRI was just a rouse it is all about getting the real breasts!

Make sure you post back when you find out your plan of action!

Oh and if you need a new remote and not just a battery when I replaced mine it was a brand new one on eBay for $20 bucks vs $70 bucks from the dealer. Then when it came in the dealer programmed it for me for free. :).

Re: Brain MRI this morning