Tykerb/Xeloda Not Working Anymore :(
Hi folks,
I just found out today that I have progressed on tykerb/xeloda. Ct Scan shows I have 5 lesions on my lungs and possibly one in the liver. I jave fluid build up in my lungs which is resulting in my shortness of breath. Dr said my only option is Herceptin/Taxol now...but I will lose my hair again. I am devastated again. Does anyone have any other possible options to recommend? I am in Canada...the downside, bc treatment won't be firstline, I no longer qualify for Herceptin coverage. If my health plan doesnt cover it, I am not sure how I will pay for it. Has anyone else tried taxol/herceptin combo? What are some side effects to expect? I'm feeling bleak...and helpless... |
Re: Tykerb/Xeloda Not Working Anymore :(
I responded to your other post about this but I'll say it here too . . . Taxol typically is tolerated well. I did have some adverse side effects but they weren't typical of most. Yes, you will lose your hair (my eyebrows had held out until I started Taxol). I got neuropathy in my hands and feet (I was told about 75% of patients do). My toenails lifted and changed colors. Those are all pretty typical from my understanding and while annoying, are tolerable.
If you're treating HER2 cancer I would think herceptin would still be covered under your insurance. Has someone told you it wouldn't be? Can you call an confirm? What about perjeta? I would fight for the treatment you need because it's not elective - it's necessary! Good luck and keep us posted. Sending cyber hugs |
Re: Tykerb/Xeloda Not Working Anymore :(
I am not sure how my Dr explained it yesterday. I tried calling him to confirm but am awaiting for a call back. They are putting me on a patient assistance program...so I guess maybe its not covered for people with stage 4? No idea...
|
Re: Tykerb/Xeloda Not Working Anymore :(
OHIP covers Herceptin/Perjeta/Taxol if your previous treatment worked for 6 months or longer. (https://www.cancercare.on.ca/CCO_Dru...?itemId=290630) You are likely in luck.
Are you at PMH? There are also more HER2 targeted drug studies being run by my onc there. |
Re: Tykerb/Xeloda Not Working Anymore :(
Hi Broccoli! Thank you for the info. I spoke to my Dr on Friday and he said the government only covers herceptin for 2 lines (and I have used them all). But, according to the information you sent me, there may be just a glimmer of hope for me! I will print it up and take it to my Dr.
I am at Sunnybrooke. Did you know there is a new clinical trial at PMH that is exploring vaccines to fight cancer? It's currently in phase 1...sounds very promising. |
Re: Tykerb/Xeloda Not Working Anymore :(
Have you asked your Dr about Perjetta?
I have no experience with it but everyone I know on it calls it their miracle! And reach out to Genentech about compassionate use with either herceptin or Perjeta. Best of luck, stay positive, and pray a lot!!! Keri PS. Vit b 6 150 mg and L Carotine helped relieve my neuropathy |
Re: Tykerb/Xeloda Not Working Anymore :(
Hi Kerry,
Not sure when this message was posted but I never saw it until now. I was on a tdm1 clinical trial that included a blind study for Perjeta. Since there was a possibility I may have already had it, the Canadian govt won't cover it. I am currently on taxol/herceptin combo. N |
Re: Tykerb/Xeloda Not Working Anymore :(
@waytooyoung - did you check with your study coordinator to see if they could reveal whether you got the placebo or perjeta?
Laura |
Re: Tykerb/Xeloda Not Working Anymore :(
Hi Brocoli!
Yes, my Onc requested from La Roche to unblind the study to see if I had received perjeta but they wouldn't. |
All times are GMT -7. The time now is 09:22 PM. |
Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021