Re: Cancer in Spinal Fluid - given 6 months
 

Getting on the right track after the shock factor is crucial. Best of luck, Saygoon!
With heartfelt best wishes,
Karen

Re: Cancer in Spinal Fluid - given 6 months
 

So many reasons I love this board! There is so much wisdom and current information available. Surprised an onc would say 6 months when it appears you have some more options to explore. Best wishes to you. Hang in there.

Re: Cancer in Spinal Fluid - given 6 months
 

Hi my name is Darita
My mets where wrapped inside my spinal column, if they want to radiate anything in brain or spine you need them to do Cyber Knife More targeted robot arm. Wish I had the opportunity before doing the other way. I was dx stage 4 breast cancer in 2006, back then it was all palliative care. All info out there was dooms day, until I found this site. Like Pauls ending (I hate to lose) it took my almost 2 years to get my onc to jump on board, get omaya placed, have 2 hospitals deny doing it. So with a very large push started It Herceptin eventually @ 100mg IT weekly and 105 IV both no preservatives, started Perjta and taxotere all iv on a cycle, Mri in march showed tumors gone just still some swelling. You just to keep your chin up, technology, advocacy, leads to prayers and changing a "death sentence" into a chronic illness. If no one close to where you live, or Dr thinks your crazy, you may need to contact a larger cancer center somewhere else? Is your primary Insurance BIA? Check and see what they will pay for? My son is Choctaw/Cherokee, and we where told he can go to any clinic, In AZ they also encourage enrollment in the state plans


I had try to post an update to my response website would not cooperate at 300am

Peace and prayers
Darita

Re: Cancer in Spinal Fluid - given 6 months
 

I am so sorry to hear this. I am so glad Rolepaul has jumped in.

Re: Cancer in Spinal Fluid - given 6 months
 

dchips1 is one of the winners. She keeps getting the wrong of the stick and just goes on fighting. All I can say is she does this without having the support that many others do. Keep on fighting and only give up when there is no more breath left in you. And then fight for ten more minutes.

Re: Cancer in Spinal Fluid - given 6 months
 

Again, thanks everyone for the encouragement. Right now I am in the process of getting an appt with M.D. Anderson. Hope they can see me ASAP. Looking forward to exploring what kinds of treatments they can offer.

Re: Cancer in Spinal Fluid - given 6 months
 

Gods blessings to you and your family. You are all in my prayers. There is always HOPE :) Be Victorious everyday :)

Re: Cancer in Spinal Fluid - given 6 months
 

Dear Saygoon,

I just want to add my voice to this chorus of encouragement. Where there's life there's hope. I'm not convinced it's always possible to think ourselves into full physical recovery. I've seen too many people succumb to cancer to believe that positive thinking always "works" in that sense. But I do believe that it's entirely possible to think ourselves into an early grave with negativity. And even if optimism and defiance don't buy us extra time on this plane of existence, they undoubtedly help us make the most of the time we have.

I'm so sorry you got this news. And I, too, would like to smack or kick your oncologist. For what it's worth.

Re: Cancer in Spinal Fluid - given 6 months
 

I have just read this whole thread...unbelievable. Keep up the fight...never give up...never give in. We are WARRIORS on this site...never forget that!!!

Re: Cancer in Spinal Fluid - given 6 months
 

Carol Ann, I LOVE your fire! Saygoon, how are you, love?
Karen

Re: Cancer in Spinal Fluid - given 6 months
 

Paula, adding my prayers to the many who are praying for and with you. There is a always hope. Doctors should not be handing out expiration dates. You'll show this callous onc that he has no business doing so.

Re: Cancer in Spinal Fluid - given 6 months
 

I live in the Netherlands, and here oncs are very, very reluctant to put a timeframe on any kind of cancer. There are so many exceptions, that they just say they don't know. Only when they feel the quality of life issues will far exceed the expected benefit from treatment, will they discuss life expectancy.

As you are not ready to give up, neither should your doc. And if they do, go for second or even third opinions. Hang in there!

Hugs

Jacqueline

Re: Cancer in Spinal Fluid - given 6 months
 

Saygoon,

My prayers are with you as you take on this battle. Keep strong and like one of the ladies said - the onc who told you 6 months needs their face punched! Keep us posted!
LaDonna

Re: Cancer in Spinal Fluid - given 6 months
 

Hanging on to all your words of encouragement. Glad to say I still do not have any of the symptoms that I am suppose to be having. I will feel so much better when my appointment with MD Anderson is confirmed and even better when Im down there and can hear of some options. Its a long trip from South Dakota to Houston Tx but I'm Keeping the faith and my sense of humor so far....the journey continues

Re: Cancer in Spinal Fluid - given 6 months
 

Paula,

Really sorry to hear of your latest challenges. Cancer just sucks! Seriously! What a blessing that we have all these super smart men & women on this site with their knowledge & experience. Thanks to the Druthers for this wonderful site!

Hope you hear back from MD Anderson today and are on your way to getting answers. Limbo is tough on the soul. Hang tight!

Re: Cancer in Spinal Fluid - given 6 months
 

Sending prayers and healing energy

Re: Cancer in Spinal Fluid - given 6 months
 

It was a long trip from S.D. to Texas but my daughter drove. Resting at her house in Ft Worth. MD Anderson here we come!!! Appt Monday. Keep that positive energy coming!!!! Thank God for all of you on this site.

Re: Cancer in Spinal Fluid - given 6 months
 

It is coming Saygoon, from ALL of us. We are rooting for you. I am so glad you have a couple of days to rest from your trip.

You go!!

Carol Ann

Re: Cancer in Spinal Fluid - given 6 months
 

Paula,
Keep it all together. I will be praying for you on Monday and sending prayers of medical healing at M. D. Anderson.

Pam

Re: Cancer in Spinal Fluid - given 6 months
 

One of my great-uncles was diagnosed with cancer & told he had 6 months to live. People in my family are stubborn; he kept living. He attended the funeral of the 1st oncologist and then the 2nd one as well. He did eventually pass away but it was many years after diagnosis. I will keep you in my prayers. Good luck tomorrow.