Has anyone received this message please read
Hi Adriana!
First off, I'm glad you are stable and hope you are sticking in there! I work for 22otters, a mobile health development company based in San Mateo, California. We are looking to create a platform for smartphone apps where women considering or proceeding with a mastectomy can share their stories (anonymously or not) or gather tips and advice from each other. We are looking for "seed" stories before we launch the application, which will be free to download from Google Play or Apple app stores. Our hope is to gather enough of these stories so eventual users will feel comfortable or inspired to submit their own. I was really impressed by your posts and was wondering if you would be interested in submitting an initial seed story? If you are interested, you can send a 30-60 second story (or many stories on different topics) to my email:lucy@22otters.com. Any audio file format is fine, just please attach a username so we can identify you. Or, if you aren’t comfortable with us using your voice, you can just send a text blurb and we can get a voice actor to record it. We’d really appreciate your input, stories, and advice. Thanks! Lucy |
Re: Has anyone received this message please read
Yes . I received it and did not respond to it .
|
Re: Has anyone received this message please read
Hi Nurse for me today,
Thank you for your response. How weird to have received this message, have no idea who they are or what they want. Glad you did not answer either. Adriana |
Re: Has anyone received this message please read
I felt by them sending it as a private message very intrusive and frankly cruel. If they are who they say and wanted info they could and should have posted it up front on the board forum. Just to sneaky for me.
|
Re: Has anyone received this message please read
I received this message also and did not respond. I agree that it did seem a bit sneaky.
|
Re: Has anyone received this message please read
I asked for more info about the company. I noticed she has just signed up with her2support.org.
|
Re: Has anyone received this message please read
I got a very similar one as well. Didn't respond either...
|
Re: Has anyone received this message please read
Could one of you tell me what user name she posted under? Then I can check it out.
Thanks |
Re: Has anyone received this message please read
It was Lucy22
|
Re: Has anyone received this message please read
Hi Adriana! I'm glad you're trying new treatments.
I hope nobody responds to this company. It gives my industry a bad name. If they are a real medical device company they would not be going on support group websites to get product development support. They would pay for it and advertise for it in an ethical manner. |
Re: Has anyone received this message please read
This tactic is a thinly veiled advertising ploy for the company's app. Since this site does not allow advertising, the user has been banned.
However, since we are an open forum, the person could register as different user and contact our members again. Please report any such contacts to Posts or one of the other moderators and we can address. Thanks to everyone for their assistance. |
All times are GMT -7. The time now is 10:39 AM. |
Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021