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-   -   Tales from the Surgery Waiting Room (https://her2support.org/vbulletin/showthread.php?t=41821)

Colleens_Husband 11-10-2009 09:14 AM

Tales from the Surgery Waiting Room
 
Colleen is getting her port out as I am writing this post. They just wheeled her into the operating room and I am back in the surgery waiting room where I have already put in too many long grinding hours.

To me, getting the port out means that we are done. The oncologist has okayed the port removal because the blood tests showed no cancer markers, the latest mammogram showed no new cancer, and every indication (knock on wood) shows that we are done. To me this is the end of a long and trying journey.

Colleen's port was a double port put in for end of life treatment options. When the surgeon installed it, he thought Colleen had cancer in all 18 removed lymph nodes. She actually had a lymph node infection which was a result of the initial biopsy. The surgeon scared the crap out of me when he talked to me after installing the port. He said Colleen had a 'gravely serious' cancer problem and that I would need to start putting Colleen's affairs in order. It turned out that only three lymph nodes had any signs of cancer, and two of the nodes barely had any cancer.

Because it was a double port, it clogged up twice as much and it was nothing but a big pain in the butt. I am glad it is going to be gone in the next half hour. The surgeon said that they recycle the ports. I told the surgeon that Colleen's port had bad karma and shouldn't be put in anyone else. He laughed at that suggestion and said that unless there is an obvious defect, company policy stated that they have to recycle it.

Colleen's surgery was delayed two hours today because the surgeon had another operation prior to Colleen's go longer than expected. Since the surgeon only does stomach staplings and breast cancer surgery, I am guessing the person in before Colleen was going to have the axial node dissection which found positive lymph nodes and the surgeon is removing the lymph nodes. It is getting pretty late and there is only one other man in the waiting room and from the stack of magazines and empty coffee cups, I can tell that he has been here for a while. I went over and started to talk to him. I asked if his surgeon was Dr. Moiel. He said, 'Yes, how did you know?'

I told him my wife was next in line for surgery and her surgery was held up for two hours, since she was being wheeled into the operating room, that would mean his wife was getting close to being finished.

He asked me, "Why is my wife's surgery taking so long?"

I told him, "She is probably having an axial node dissection and they found cancer in that node so they are removing her lymph nodes."

He asked me why that takes so long. I told him that it only takes a few minutes to tune a car engine, but if you have to do it without opening the hood of the car, it is going to take a bit longer.

I noticed that this poor man was like a raw nerve. He was emotionally spent and worried to death. He asked several dozens of questions, and surprisingly, I actually had most of the answers.

I hope I made things easier for him. He was certainly glad to hear that my wife survived and that there is an end to the ordeal. When you are first starting out, it is hard to see that there will be a positive end to the story.

The surgeon finally came and got me and told me everything went well. I asked him if he was going to recycle the port. He said he wasn't, it was defective. I asked him what the defect was. He said he dropped it and stepped on it then gave me a wink. "You don't want me to put bad karma into another person do you?"

He really made me laugh.

Anyways, I am glad I was part of the HER2 community. It really helped with that poor man waiting too long to learn the fate of his wife. That is the good karma part of all of this.

Gerri 11-10-2009 09:33 AM

Re: Tales from the Surgery Waiting Room
 
Aw Lee, you ROCK! The comfort you provided that husband as he begins their journey will probably pull him through some rough times.

I am so happy to hear that Colleen is now moving on to life "after" cancer. This experience changes us forever, but some of those changes are the best thing that could have happened - to me anyway.

Please pop in from time to time. You are family here.

Much love,

vlcarr 11-10-2009 11:10 AM

Re: Tales from the Surgery Waiting Room
 
What a wonderful day for you guys! Congrats!

ElaineM 11-10-2009 08:43 PM

Re: Tales from the Surgery Waiting Room
 
Congratulations to Colleen. I am so happy for her.
Thanks for keeping the other husband company and answering his questions. That will help him take care of his wife and understand some of her problems.

ammebarb 11-11-2009 12:12 PM

Re: Tales from the Surgery Waiting Room
 
Hope Colleen is recovering well from her port removal. My sis really hates hers, but knows it's making taking her treatment a bit easier. Love that Colleen's doc made the removed port "defective"! Now, on to NED for umpteen decades! My best wishes to both of you.

Barb A.

schoolteacher 11-11-2009 01:44 PM

Re: Tales from the Surgery Waiting Room
 
Lee,

Tell Coleen I said, "Congratulations on the port removal."

Amelia

StephN 11-11-2009 06:53 PM

Re: Tales from the Surgery Waiting Room
 
Guess it is a good week for port removals. I am feeling OK after having mine out yesterday. Hope Colleen has a big sense of relief.

But, GOLLY, I never dreamed they might recycle my port!!! I am sure they did not recycle the first one I had in for 6 years. Unless it got sent to a 3rd world country ... And the idea that mine could have been in someone else - ick!

I asked to see my port yesterday when they finished with closure of my incision. My surgeon held it up and I could see just how LONG the catheter is. There was a possibility that it might not come out in one piece since it was so badly clotted in the inominate area of my subclavian vein. I could feel the tugging during the removal. The thought crossed my mind to ask to keep it, but I let that go.

Colleens_Husband 11-15-2009 07:21 PM

Re: Tales from the Surgery Waiting Room
 
StephN:

Congratulations on your port removal! This must be a huge milestone for you after all you have been through. You have truly been an inspiration to Colleen and me. I am truly humbled that you have through so much more than us and still manage to be a pretty decent person. I don't know what else to say but live your life like it you got a second chance, because you truly did.

Colleen and Lee

Jackie07 11-21-2009 04:13 AM

Re: Tales from the Surgery Waiting Room
 
Lee,

Glad to hear the Colleen had her port removed. I hope you stick around. You are such a story-teller, first rate counselor, and one of the best spouses...

Steph,

It has to be a 'relieve' to finally remove the port. I'm keeping mine for future blood draw since the technicians always have trouble accessing my vein. The last straw was when they had to 'stab' my fingertip to squeeze out blood. I showed those wrapped-up fingers to my oncologist and he agreed to leave my port alone.

Congratulations!


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