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-   -   TDM-1 Assertive cancer patient (https://her2support.org/vbulletin/showthread.php?t=51161)

Nancy L 08-26-2011 08:47 AM

TDM-1 Assertive cancer patient
 
I think this U Tube deserves more hits than it has had. I know many of you have the same issue and I may some day soon too. We can only hope the FDA (she calls it the Federal Delay Agency) approves extended access on 8/31.

http://www.youtube.com/watch?v=C-nai8GCDP4

StephN 08-26-2011 12:29 PM

Re: TDM-1 Assertive cancer patient
 
Thanks for posting this, Nancy. I happened to have taken part in this as I have known Jeanne for many years. The person Jeanne reaches for to stand up is me. I look rather stilted as that was probably our 3rd take, and we had rehearsed and shot for 2 or 3 hours prior to that.

This is my little bit as an activist hoping to encourage the FDA to agree to Genentech's plan for patients already getting TDM-1 to stop having to travel to a trial site and get it in a clinic close to home.

StephN 08-26-2011 12:38 PM

Re: TDM-1 Assertive cancer patient
 
Here is a link to Jeanne's blog, which has been quite active the past two weeks.

http://assertivecancerpatient.com/

She mentions how to contact the right people at the FDA, if you are so inclined.

Sheila 08-27-2011 04:55 AM

Re: TDM-1 Assertive cancer patient
 
I put the video on Facebook....a good way to spread the word and get people to contact the FDA


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