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-   -   Writer looking for participants to share stories (http://her2support.org/vbulletin/showthread.php?t=57192)

DianneClaire 01-29-2013 08:56 PM

Writer looking for participants to share stories
 
I am working on a project about women and their breasts. Looking for women of all ages and circumstance to interview. The project is to be completed and performed in conjunction with National Breast Cancer Awareness month in October.

Thank you in advance for your consideration of my request.

Laurel 01-30-2013 07:13 PM

Re: Writer looking for participants to share stories
 
Give us some more info., Dianne. We are a gun-shy bunch!

DianneClaire 01-31-2013 02:00 PM

Re: Writer looking for participants to share stories
 
Hi Laurel. Absolutely understand need for caution. I too am hesitant to share details of my project in a social network enviornment in order to protect my intellectual property. I have a document I use to protect myself and the identies of participants. That said, the general concept is a piece bassed on interviews with several women covering the subject of their breasts. Stories will be a compilation of several womens experiences incorporated into several characters. It is not intended to have one woman's story as a subject. The end result is to have an entertaining and educational overview of girls/women and their relationship to their breast. Does this help?

NanaJoni 01-31-2013 02:27 PM

Re: Writer looking for participants to share stories
 
I am very wary of a "writer" who can't spell - based, not bassed, although I know we're not all the best typists. However, I would advise our members not to respond to you without additional assurance of safety for both identities and medical info. Identity thieves are very clever and unconcerned about those they target. Dianne, you might find a better option to get in touch with potential subjects either through a local oncology office or the American Cancer Society. Those groups could certainly vet you and your project prior to you being allowed to contact bc patients or suvivors. I caution all our forum members NOT to respond to this request. An on-line request for this type of contact only protects the person who is asking for your info and offers no protection to you, the subject.

DianneClaire 01-31-2013 03:56 PM

Re: Writer looking for participants to share stories
 
Thank you for your response and contact recommendation. Oops on the typo.

Health and or clinical information does not have a place in this project. Additionally, I would hope that those being interviewed will only relay information that they are comfortable with sharing. The choice to share is voluntary of course, and I would not and have not shared information provided to date. An agreement is provided to interviewees prior to interview. This is done primarily to protect, me as the writer and my intellectual property, and the participant to protect their anonimity.

I respect your concern for the women who may reach out to me, though I am not clear as to what information you think would be provided would be of harm.

If you would like to call me I can be reached at 818 753 3914

-Dianne

NanaJoni 01-31-2013 04:01 PM

Re: Writer looking for participants to share stories
 
While I appreciate your attempt to assuage my concerns - if your "agreement" asks for name, address, birthdate, phone number - that is enough info to steal someone's identity. I stand by my concern with soliciting this kind of participation by internet contact.

DianneClaire 01-31-2013 04:03 PM

Re: Writer looking for participants to share stories
 
It does not, and the interviews are held face to face. Which is why I looked for women in Southern California, where I reside.

NanaJoni 01-31-2013 04:04 PM

Re: Writer looking for participants to share stories
 
Something many of us do is put our city and state in our signature info. You didn't include this when you registered here?

IrvineFriend 01-31-2013 04:38 PM

Re: Writer looking for participants to share stories
 
Thank you Joni for looking out for us. I found the "an entertaining and educational overview of girls/women and their relationship to their breast" very bothersome. So sad to hit on a site where we seek support from each other as we go through this nightmare. The person wants to protect their intellectual property but not respect the meaning and purpose of this site.

DianneClaire 01-31-2013 04:50 PM

Re: Writer looking for participants to share stories
 
Perhaps I do not understand, this is the reason I am writing my book. It is to help people understand the relationship women have with their breasts. I am seeking help. Again, I have listed my phone number, and you are more than welcome to reach out to me directly.

StephN 01-31-2013 05:47 PM

Re: Writer looking for participants to share stories
 
DianneClaire -

You did not say in the earlier posts that you wanted to speak with women in southern California. The initial posts were so vague which is why they were suspect.

Do you even realize that every woman on this web site has had some kind of surgery on her breast/s? We are ALL missing some portion if not all of one or both breasts.

We are fighting a terrible cancer that has caused this situation. I don't think you have come to the right place for your essay or whatever you are doing.

NanaJoni 01-31-2013 06:36 PM

Re: Writer looking for participants to share stories
 
Dianne - I guess maybe I seem to be a little hard on you - but if I had to talk or write about "my relationship with my breasts" it would go something like this: We were together for almost 50 years and they betrayed me terribly so I had to let them go. Just dump them. And since then I've had relationships six new breasts but none of them have been satisfactory. Guess there's nothing like that first one. So now I'm moving on and have just "settled" for my current breasts -something I said I'd never do.

Guess some of us just end up with something of a twisted sense of humor. But it gets me through the tough times. I do wish you luck with your project.

NEDenise 02-01-2013 03:38 PM

Re: Writer looking for participants to share stories
 
Joni!
Wow! There's some fire in my friend Joni! You go girl!
Thanks for taking the time to look out for all of us.
I don't know what exactly This person had in mind...but I do know that she doesn't have a clue how inappropriate it was for her to invade our safe place in order to make money. I don't care how much "awareness" her work raised...this is not the place to mine for information.
Your suggestion about checking with the American Cancer Society, or an oncology office was a good one.
Steph, and Julie, you guys were great too!

I honestly wonder why anyone would find a cancer survivor's "relationship with her breasts" whatever the he## that means...to be an entertaining subject. (Though I loved the way you worded your last response Joni!)

No one loves to laugh more than I do...and I even tend toward gallows humor sometimes...but that's me talking about me, not someone who hasn't walked in my shoes "entertaining" people at the expense of BC victims. Rubs me the wrong way too.

If I ever do get up the gumption to write a book about all my BC adventures, I'll be sure to put a little note in the beginning letting everyone know that while laughter is the best medicine (for me anyway) there is absolutely NOTHING funny about breast cancer. Nothing. We choose to laugh...otherwise we'd cry all the time.

Thanks again for looking out for all of us.
Denise

NanaJoni 02-01-2013 03:58 PM

Re: Writer looking for participants to share stories
 
Well, Denise - you are my inspiration. Your humor and strength are examples to us all. I pray Ms. Claire will never have to join our ranks and understand our outrage at her seeming cavalier attitude. I know what you mean about "gallows humor" - I get some odd looks sometimes when I joke about the last three years and its ups and downs. But here we are and as you said - this our safe place. Hope you're feeling better each day.

jcarolsapp 02-13-2013 09:25 AM

Re: Writer looking for participants to share stories
 
visit my site
www.caringbridge.org/visit/judysapp

Jackie07 02-15-2013 03:51 AM

Re: Writer looking for participants to share stories
 
Dianne (and/or Judy Sapp?),

If you are looking for some type of 'dramatic' change of my (I can only speak for myself) relationship with my breasts after the breast cancer diagnosis, then my answer is 'no' - there's no change whatsoever!

I was flat like a wash board (or as my 2nd Brother had commented once while I was in high school: "flat like a runway in the airport!"

I've been slim and fit - having participated in track and on the basketball team all the way through college. But I do have cancer genes - not known until having twice been diagnosed with two different types of cancer and after more family cancer cases had surfaced.

Coming from a culture where girls are treated equally as boys (had only worn make-ups in school dance/music performances and special occasions such as my wedding; was only wearing lipsticks while working as a professional), the size of the breasts has never an an issue (though I did/still do wear [the same] padded bras to avoid unnecessary attention.)

There must be a whole lot of women loving their breasts very much - I learned that from my surgeon's insisting on a lumpectomy in 2003. 4 years later, after the mammograms had been misread continuously, the recurrence was finally confirmed by the mammogram ordered by the original surgeon after I had requested an appointment with her.

This time, I insisted on a bilateral mastectomy. Did I hate my breasts? No! Absolutely not! I was just taking the necessary precaution as two other family members had been diagnosed with other types of cancer in between my first life-saving (brain tumor) surgery in 1990 and my last chemo treatment (for breast cancer recurrence) in January, 2008. I also did a prophylactic hysterectomy/oophorectomy in 2010. Did I hate my uterus or ovaries? No! The genetic test result and family/personal cancer history were the reasons why my insurance plan had approved the procedure.

Did I hate my Mother/Father? No! absolutely not! Freud was not a big influence in the culture where I came from ... :) Even though I've inherited bad genes from them, I don't feel anyone needs to be held responsible for what I've been through!

In a few days I will celebrate another birthday. My bone (density) scan last month was normal and I'm feeling fine.

Still can't figure out any 'relationship' issue ...:)

Muzzy 02-19-2013 09:23 PM

Re: Writer looking for participants to share stories
 
Hi - I was diagnosed in May 2012 - and am just back to work - and trying to get back to life. Would you like me to send you more information? Do you have an e-mail to send it directly to?
Take care,
Marilyn

pwiswell 02-23-2013 07:54 PM

Re: Writer looking for participants to share stories
 
Dianne, I too think you have come to the wrong place to interview women. There is nothing "entertaining" or "humorous" about what we are going through. While I have a great sense of humor, it does not extend to the stage IV cancer I have been fighting for the past 10 years.

Redwolf8812 03-24-2013 05:30 PM

Re: Writer looking for participants to share stories
 
What an odd request on this type of board. However, I just can't stop myself - ALL of my "lady parts", including breasts, uterus, and ovaries, were removed thanks to cancer. And thanks to a stage 4 diagnosis and a probably-earlier-than-normal death, they will NEVER be replaced. So there's a relationship shot to hell for ya. Of course, I've got a glorified body to look forward to upon the return of Our Lord! So you're free to ask me then!


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