Kadcyla and xgeva
 

Hi
My recent scan showed scar tissues from a tumor that is healing on my sterunm
The thing is, with all my scans, we have never seen anything on my sterunm or any bones!!
My tumor markers are in the 20's
I have been on kadcyla for 15 months. Does this mean I'm not responding anymore??
My Dr thinks it must have always been there, but was so small, we missed it?!?!
So he added Xgeva to my treatment
I feel like I've been beaten with a bat!! My body is so sore!
Any one have experience w Xgeva? Or thoughts on this new finding??
Thank you, I was feeling so hopeful about my situation, and now, not so much:(

Keri

Re: Kadcyla and xgeva
 

Dear Keri,
I have been on Xgeva for about 18 months and, although I had a mild reaction to the first dose, now it doesn't cause me any problems at all. Of course, there are always the warnings in regard to dental health.
I would be inclined to listen to your doctor - if you have been having good results with Kadcyla, it is most likely an "old" spot and you shouldn't worry too much.
Best wishes.... Pam

Re: Kadcyla and xgeva
 

I had a small tumor on the rib right side and for some reason my scans missed it too. After radiation the pain went away. Did the doctor find yours through a bone scan? Is he adding radiation to the site?

Take care,

Adriana

Re: Kadcyla and xgeva
 

Thank you Pam :)

Re: Kadcyla and xgeva
 

Hi Adrianna

There was something "suspicious" on my pet so I did bone scan and it showed healing and scar tissue So we must have missed the bone mets on all the previous scans or it was too small.
Xgeva kinda kicked my butt first few days. But I'm feeling good now
Thanks for replying