New Here with Her2 Questions
 

This is my first post here after finding your site after watching the Lifetime movie Living Proof. I'm 60 and ER+, node negative. I was diagnosed and had bilateral mastectomy in 1999, CMF, and Tamoxifen 5 years. To date I'm NED. In a couple weeks I'm having a chest CT due to some on and off pain and since I've had no chest x-ray for 5 years my oncologist felt it would be wise and more thorough than just an xray.
My pathology said my HER2 status was "mildly positive." My full report is at home and I live out of town all summer so it's not handy to verify other details right now. What actually determines how Herceptin will work for a patient? Are there varying levels of Her2 positive? I've noticed some people say they are Her2+++ for example. I'm assuming the more positive you are the better the drug might work or is it some other score they look at? Sorry if I've posted this on the wrong forum.

Thanks,
Linda G.

Linda I'm going to move this over to the HER2 Group message board and hope someone can answer your question.

There are more people over there.

Hi Linda - my suggestion is to not assume anything... I believe I am considered moderately HER2+. I have benefited nicely from both Herceptin and Tykerb in my recurrences... and now I am on both of them together.

I think Yorkie is right, this is a great post for the HER2 Group forum. Please look there for responses.