Hi guys
 

I'm here and thank you for thinking about me. I have been in a physical and mental funk for awhile. I definitely feel fatigued from E/C and I don't like it at all. Last week I developed a really high fever and 2 odd pains, get this-one in my right inner thigh and the other in my left forearm. Certain movements were very painful and my mobility was hampered. It makes no sense. I started on Invanz (IV antibiotic) because of the fever and blood cultures were taken-all of which came back normal. So I don't know if I did 7 days of antibiotics for nothing or what. My normal temp is usually 97 ish so for it to reach 104 for 2 days seemed alarming. It is driving me crazy as to what all of it would be.

My last chem panel showed some good things and that was after 2 treatments. ALT/AST were about normal, alkphos was finally coming down into 300 range from 400plus. My CA27.29 also came down from 400plus to 300 range. I just hate to get to excited because that happened on the DM1 trial too and then things got worse in the liver.

So I have been in bed a lot, slow moving, slow thinking, feeling like a lousy mother/friend, whatever. And worrying a lot about how the E/C is working and what if my liver just can't take any more drugs and if my days are really numbered. I just feel very little hope and I don't exactly know why. I feel like I always look stupid and pale and old and, of course the no hair thing is making me feel more so.

I am just a big whiny pants I know and I am sorry. I am just in worry mode-which I know helps nothing. I also know that I love all of you so much and I know that you have felt these things before and that our struggles are unique and some are much harder than mine-which is why I hate to post when I feel like this. I think about all of you everyday and keep pratying for some miracles-even little breakthrough miracles would be great.

Joy, please don't call yourself whiny, my friend. You make me cry.
You are battling so much and there is nothing wrong with taking things slowly. Things will look up very soon. Our collective prayers will have to work. God has to bless you with the right weapons to win this battle.

Sending lots of postive vibes your way.

Lots of love,
shobha

Joy,

I am glad to hear from you any way you feel. When I joined this board last year, I recognized you to be a warrior. Hope you get to feeling better.

Amelia

Dear Joy,

You have every right to whine. You are going through a difficult time right now. I am lifting you up in prayer as I type this to you. Just hang on. There will be others to encourage you soon. Even though you understandably do not want to get too exicted about your blood work, It is good, so hold on to that for now.

I too understand being upset with our physical apperance as well. I often look in the mirror and do not see the 37 year old women I used to be before bc. But then I have to remind myself, that even though I have thin, graying hair, one breast and and one arm larger than the other, I am still here for the kids. And fortunately, they take me as I am.

I pray that you will able to see a little bit of sunshine in your day today. I know it is not always easy but we are here for you.

Tonya

Joy,

You said you don't like to post when you are like this; that's exactly when you SHOULD post. You need to be picked up spiritually, and this is the place for that.

Please take comfort in this: There are many, many people here praying for you. Many people only read and never post. They are praying for you too!

{{{{{{{{{{{Joy}}}}}}}}}}}}

Joy,

So good to come here and see your post. I have been praying for you daily and thinking of you always. We face the same trials and I know how you are feeling right now. I, too, have done the "numbered days" thing these days (mainly because they probably are), though I realize that all of our days are numbered...it's just how many? As far as you whining, please don't even think that. You are merely processing something that is so profound, so mysterious, none of us have the answers, and crying can be so cathartic and good for us.
I am watching the rain fall outside, as if all of our tears have been combined at once, and are dropping to ground in hopes of new birth and spirit and hope.
From all of us here with no hair, no breast, no energy, and fear of the unknown...I send you my deepest love and hope today, Joy. You have always been there for me when I was without direction. You have inspired so many and given us the gift of your friendship. Thank you.
I will continue to pray for your health and comfort as God wraps his loving quilt around your shoulders. You, a whiner? I don't think so, just a beautiful woman who is need of our support, which we offer freely.
Thank you for checking in. I love you, sweet sister, Vickie

Beautiful Joy-

Know you are loved here. That is the beautiful thing about this site. You can cry, whine, spit nails or any other thing that will help get you through this rotten time. I too, am praying for peace and uplifting for you. Your picture with that brilliant smile is what we see. Cling fast to that and to those of us here. We love you and are here for you. Sending you hugs beyound belief!
And Keep posting...we like to hear from you.

Hi Joy,

I guess that it is times like these that your name adds pressure to keep up the happy face. We are here for you for the good, the bad and the ugly (although you could never be ugly). Please vent away and share your feelings and fears. I have been told it helps to get it out even though for some it is hard to admit or share the darker feelings.

I hope that this chemo kicks the cancer to the curb and you get to feel more like your old self again soon.

Love, Hope, Peace, Carolyn

Well put, Carolyn...AMEN! Love, Vickie

I understand your frustration and hurt....I hope and wish for positive results for you. It must be so hard...I hope that something works out positive for you very soon...I thought Carolyn did a great job too!

Aww Joy...I love you and think you are one special lady. You have been through so much and "whining" as you call it is NOT whining at all...just you telling us how you feel.

I ask our Lord to give you His strength and peace to get through what you need to get through.

Love you sis........

Mary Jo

Joy I can't add any more to what's already been said.

Just know I'm sending lot's of prayers and hugs out to you.

Hi Joy,

Hang in there. Prayers and hugs are on the way.

Joy,

You could never be a whiney pants! We love to hear from you in any way.

Keeping you in my thoughts and prayers.

Please know that you are in my thoughts and prayers. I am so sorry you are not feeling well. I think this will pass and you will feel better soon.

Hugs,
Karen

Dear Joy,
There is very little to add (our other sisters said it well)
but remember you are extremely brave and strong, a
tough fighter....it is perfectly normal to feel a bit worn
down. But knowing you - you will pick yourself up and
kick it back like you have always done.

Everyone here loves you and prays for you as I know you are feeling those loving vibes.

Also, you couldn't be a bad anything - even if you tried,
so except your pretty little no hair head and know that you're beauty is within and it is so strong and powerful
that it flows out of you....hey you're Mother didn't name you JOY for nothing....

Keep us posted and know you are loved.
Hugs,
Jean

Joy,

Battling a 104 fever is no small thing. You must have felt very crummy physically - and that always impacts my spirit as well.

I have loads of hope for you.

One foot in front of the other, dear Joy, and don't forget to breathe.

I'd much, much rather hear you whine than not hear from you at all.

You have my permission to whine, whether you are entitled to any whining or not. ;-)))

It's what we do from time to time. Shall I whine a bit about my infected tooth? There's nothing worse wrong with me, but it makes me want to run to Mummy and complain about the swollen jaw. Mummy's no longer here, so I whine to my kittens. They just purr and that's all I need, really.

But if I wanted to whine about cancer, I'd come here. It's a great place.

Hugs

Jacqueline

Sending you hugs Joy. Please don't stay away for long afraid that you are being whiney. You are a beautiful girl inside and out. We like to be here to read the good and the bad with you. You aren't alone in this fight.

Hugs,
Lexi

Hey Joy,

Nice to hear from you, you are not a whiner, you are a great gal who has not been feeling well lately. You are a real trouper Joy - You have been through alot and I can only commend your fighting spirit.

Sending big hugs from Canada.

all the best
caya