HER2 Support Group Forums - Hearing loss after carboplatin

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mburkhart

06-30-2015 09:41 PM

Hearing loss after carboplatin

I have finished with my six TCHP chemo treatments and had no noticeable hearing problems during my 18 weeks of therapy. About three weeks after treatment #6, within a 24 hour period, I suddenly had a significant hearing loss. It is like someone stuck ear plugs in both of my ears! I have seen an audiologist and an ENT and I have lost extensive high frequency levels. My oncologist does not think it was the carboplatin because the onset was sudden but no one else has any explanation or any suggestions for curing this. I am terrified this is a permanent hearing loss. It has now been seven weeks since my last TCHP chemo with no improvement. Has anyone else either had or heard of this happening?

Debbie L.

07-01-2015 06:59 AM

Re: Hearing loss after carboplatin

Hi mburkhart. I don't know anything about this, but it does look like hearing loss can be a rare side effect of platin chemotherapy. Loss in the high-frequency range is mentioned. Most of the articles I found were about pediatric patients. I couldn't find anything about how suddenly (or gradually) the loss occurred, but the range of time(s) from administration of the platin to onset of hearing loss varied a LOT.

Regardless of the cause of your hearing loss, it seems like a good time for another expert opinion. Has your oncologist recommended a plan for that? It sounds a little dismissive of him to just say "it's not from the carboplatin".

Sending good thoughts, please keep us posted.

Debbie Laxague

Pat94

07-03-2015 09:45 AM

Re: Hearing loss after carboplatin

I had TCH and have experienced some hearing loss. I was tested shortly before starting chemo so I could be retested to find out how much of a change but I don't think it is worth it. I don't need hearing aids yet so there really isn't anything that would change by being retested.

chekmark

07-04-2015 03:09 AM

Re: Hearing loss after carboplatin

I also experienced hearing loss but only one ear, it was annoying cuz it was so muffled and I have always had extremely good hearing, my oncologist said it could happen and that it will most likely come back. I lost 30% in one ear, it did come back but it took a long time and I'm still at 10% loss. Hang in there,,the many side effects we experience usually stop, eventually...ugh. The worst is over. Good luck!

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