Survivor Survey
 

Morning My Girls, just stopping in to tell you how proud I am of you all, and again, every day you fight the fight, YOU ARE A SURVIVOR!! In the mean time, I am asking for you all to send your name, cancer stage, and time in NED. My husband would be very exstatic to have a list of survivor time in remission and your name would be just to send you a thank you. Please my friends, I am begging. Some of you have already written, but we need to start a "List of Survivors".



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Dear Marie,

I was diagnosed in Jan. 2004
Stage 1, no nodes, Grade 3, ER/PR/Her2 positive

lumpectomy, rads, Zoladex & Arimidex
Doing FINE!!!!

Marie, you probably already know all of my story, but here are the quick facts:

1985---Diagnosed with BC , double mastectomy, reconstruction, nothing more

1990---Mets to vertebra, T9 and T10.Tamoxifen, alternative treatments,
including hypnosis.

2004---heart attack ; CT revealed lung mets, now her2. Treated with herceptin, navelbine and femara for 6 months, then just femara and herceptin until ejection fraction was 40. (9 more months).

2005---NED

2006---still NED, had triple bypass

2007---still NED, treating heart failure and cardiomyopathy,Cancer is stage iv
Hope to hold the cancer at bay indefinitely with femara, good diet,
positive thinking, self-hypnosis, and prayer!

Hopes this is helpful in your research. THere are a lot of wonderful survivors on this board! Hugs, TriciaK, St George, Utah

Marie,

My history is in my signature. I've been considered NED since June 8, 2006 the day of my surgery.

Hi Marie,

My info. is in my signature. I, too, have been considered NED since mastectomy July 28, 2005.

Mary Jo

Mt history is in my Siggy as well. I am 2 yrs. NED

Marie, Like the others here have said...my signature has all my info. I have been NED since the date of my surgery which was 1-3-06.

(I just LOVE Tricia K's story. I love to read it when I am feeling a bit down...it ALWAYS picks me up and puts a smile on my face. :) What a aweseome women.)

Chelee

Stage IV survivor
 

Dx stage 2a in 2001. Stage iv in 2005 (Sept)..NED 9 weeks later and still NED.
(18 months)

Jackie

Marie...my details are as follows,
Tricia keegan
Diagnosed June '05 stage 2 grade 1
triple positive ..IDC 3/9 nodes positive.
Also doing fine and hoping for 2 years out in a
few months!!

I Am A Srvivor!
 

"95 dx w/4th stage invasive/infiltrating lobular carcinoma w/2 out of 18 lymph nodes involved. '98 multiple mets in the liver. Her2+ -- 80%. Taxotere Sept '98 thru May '99. Herceptin Nov '98 to present. Wkly '98-'02. Triple dosage every 3 wks '02-present. NED. Just extremely fatigued most days, except when I receive Procrit (and now Aranesp) to boost my flagging red blood cell count -- which has become an issue with Medicare and most insurance cos who don't want to pay for the $7,000 injection for NON CHEMO patients. Herceptin patients receive a monoclonal antibody and have been left in the lurch on this issue, in the last month! I remain positive it will be resolved, but worry that if my dipping red blood counts go unchecked, my health will obviously reflect that. Do I have to become hospitalized before I get help? Who will speak for this small group who have what my doc calls "chemo-induced anemia". Haven't been on "chemo" since '99. All blood tests show no reason for this red blood slippage. 1 shot last 3 mnth usually. But NO shot, leaves me...ANDREA PS PUT "YOUR" NAME ON THE SURVIVOR'S LIST YOU ARE ACCRUING! THINK OF YOURSELF AS A PART OF THAT GROUP. INSIST UPON IT! DAILY! AND DON'T FORGET TO SAY THANK YOU FOR YOUR GOOD FORTUNE WITH EACH NEW DAY... EACH DAY IS A GIFT.

Could set up a poll ...
 

A survivor poll that would ask how many years in remission and their stage.

Would work on it, but no time today. I think it is a worthwhile idea.

You will see by my story at the end of my post that I am over six years since dx and more than 5 years NED on Herceptin, being stage IV. Had extensive liver mets and poor prognosis, but fought really hard with some tough drugs in the mix to achieve a complete response. Like the amazing TriciaK I have used guided imagery in my healing.

Hope these answers help your husband to have a little faith, even though this is a sneaky, pernicious disease.

My best advice - cut out the sugar as cancer feeds on simple sugars.

Cancer Loves Sugar
 

So did I. Chocoholic. But since I heard this pearl of wisdom from several different sources, and found sugar to be a trigger food for the IBS (IRRITABLE BOWEL DISORDER) that came with the Taxotere in '98 and never went away -- I have decided to stay off of sugar. Been sugar-free since '04! Not a single bite even of birthday cake. I consider it poison. So, I' m w/Stephen on this. Amazing story of heroics and determination. Expectation and Intention = End Result, I always say. I was adamant about not giving in to my poor prognosis. SOMEONE has to fall in the Survivors's group. They're the most passionate, positive focused of the lot. THE BRAVEST ARE THOSE WHO HAVE THE CLEAREST VISION OF WHAT IS BEFORE THEM, AND YET, GO OUT TO MEET IT. YOU MUST DO THE THING YOU THINK YOU CANNOT DO AND BELIEVE IN YOUR POWER TO ACHIEVE IT! We are each just this side of becoming a miracle! God bless... Please keep us all updated on your findings and ponderings. Networking is a grand way of supporting one another. ANDREA

My story is my signature - except to add - eat right and exercise at least 5 hours per week.

My story is in my signature as well--looking forward to 6 years of survivorship after a poor prognosis in 2001.

My Mom is NED (I picked up that term from this Board)!!
 

Hello everyone

This is for my mom. I wish I had found this board a few months ago. Only came across it recently. The stories shared on this board have been a wonderful.

I finally managed to write down the details of my mom's case to share with everyone. I took a lot of comfort reading +ve news from everyone as we were going thru the last few months.

My mom was diagnosed by my wife when she came to the US to help us with our then unborn baby boy. She diagnosed her the same week we had the baby and it was a week of unbelievable joy mixed with fear/sadness as we soon came to know she was stage 4.

It has been 7 unbelievable months and the baby and grandma are doing well. I realize that we were lucky with her responding so well to Herceptin but I am forever grateful at how strong and supportive my wife has been and how strong my mom has been thru this to get us here. It helps that both of them extremely strong willed and nothing fazes them. I recognize the same strengths in so many of you when I read the messages here. Thank you for being on the board and sharing.

Please drop me a line if you have any questions

/C

my story is on my sig as wel!!

I was dx'd two years ago. All deets in my sig.

Thanks for doing this.

Jen

My story is also in my signature. My oncologist agrees that I have been NED since my surgery 6/14/05.

Hi Ladies,

Add me!

Survivor Survey
 

My story is in my signature PLUS eat tons of veggie and fruit amd almost cero fat