a little good news to share...
 

Hello friends,
This has been a very sad and difficult week for our community. I'm so very sad but grateful that I had the chance to know Kate, Carol and Michelle. I am also filled with love and gratitude (hope you don't mind me saying that, Joy) for everyone in this community - which is really more like a family.

My heart has been so heavy....

It almost seems inappropriate to share this, but I have to tell you! I just had my 2nd set of scans since starting the Trastuzumab-DM1 trial and after 2 more cycles (of 4 so far), the measurable lesion in my liver has shrunk and is again less metabolically active (now lighting up with SUV lower than the surrounding healthy liver), and the other one that is difficult to measure is still the same with no activity. Nothing new is showing up, which is really great as we hate those kind of surprises!


So things are continuing to move in the right direction

I was in need of hope...and this definitely helped.

love and peace to all
Chris

Chris
This is wonderful news!

Chris,

What could be more appropriate than GOOD news right now? We all needed something to uplift us and you have just given us that gift. Thanks so much for sharing!

With love,

Thank you for sharing Chris. I am very happy to read your news!!

Hugs,
Lexi

Great news Chris. You have been pushing back on those feisty mets too long. I'm so happy for you.

Congratulations! - and I think good news like this is what this board needs right now, thank you for sharing your good news.

wonderful news Chris
 

Chris:

thank you, thank you, I think that all of us need some positive news right now. Your news couldn't have come at a more opportune time. I am celebrating with you!!

Lisa

Good news Chrisy!!! We needed some!!!

Hey, Chris -
You sound a bit tentative, but you have good reason to shout it out! After trying other treatments, this is such an improvement.

I thought this was about the time for you to be checked again. So glad for this news. Just keep pushing back and you WILL win.

Yeah, like Steph said, Chrisy, you need to run to the nearest hill and shout it out, "That's right, cancer, you son-of-a-bitch, I'm kickin' your ass! How do ya like me now??!!"

Chris,
So very happy for you!

Hugs,
Jean

Back from CA
 

I just arrived back from my California trip this afternoon.

I was so saddened to hear the news of Kate, Michele H, and Carol. My heart goes out to their families. I am happy for them though that their battle has come to a close and I am sure their guardian angels have taken very good care of them as their spirits are lifted for eternal peace.

Chrisy, that is wonderful news about your reports! We all need to hear good news like yours so we can maintain the balance in our hearts. Keep up the good fight!! THanks so much for sharing your joy and relief with all of us!!!

Peace and joy,
Maryanne

Because of all the bad news lately I was really reluctant to check in here today. When I got brave enough to take a quick peek I was so excited when I saw your post, "A little good news".
That is just wonderful news Chrisy and I am so happy for you.

Here's to the DM1 kicking those mets into the twilight zone once and for all. I'm so glad you choose to share your news because we all needed to hear it. I've been saying extra prayers for you lately & will certainly continue them. I am just thrilled for you...this is a nice way to end my day on a nice note. :)


Chelee

Wonderful news Chris! Thanks for sharing it with us.

We sure can use some good news for a change. Keep up with your wonderful achievement. We love to hear more.

Wonderful news Chris! We all needed to hear that! Go out and celebrate!

Thanks for sharing that wonderful news with us Chris. We needed to hear something like that. I'm happy for you.

Also, welcome home "harrie"

Mary Jo

Chrisy,

It is good to hear your good news.

Amelia

Oh, Chris, what marvelous news! thanks a million for sharing, but most of all Yippee for Great Results!!!! ma

That's the kind of news we need to hear, Chris. Congratulations, I'm so happy for you. I love the way Bill put it!
Hugs

I am so happy for you Chris!! I'm with Bill. It is time to shout it from the hill tops. You are here to stay!

My heart breaks for the friends that we have lost. However, you give us all hope Chrisy. Thank you for sharing your wonderful news!!!!!!

a little good news?
 

Chrisy, this is great news! I know exactly how you feel posting good news in the face of all of our grief. It can feel wrong, but it isn't. We need this hope from you and we know it doesn't diminish a sense of grief an love and respect for anyone.

I am very happy for you and look forward to all of your updates. You keep kickin' it. We need you to.

I love you and am so happy for you.

surgery over
 

Well, I am very happy to report that I had my oophers out yesterday and it went really well. I got into surgery early. The staff and OB/Gyn were fabulous. My friend Martha was my angel. She went with me and hung out with me afterwards. I woke up giggling and feeling totally normal (for me anyway). Almost NO pain and have been up and walking around and visiting and all in all feel T-RIFF. They even kept us there longer because as they said, "we were so much fun." It was like a salon. We chatted about boys and sex and kids and school and periods and everything. The nurse kept coming in and pulling up a chair to see what we were laughing about. Martha brought me home and got us pizza and my other best friend showed up. I got flowers, e-cards, phone calls, dumb magazines and my new man is bringing over homemade bread for me today. As bizarre as it sounds it was a great day.

I only lost it when Martha and I hopped in her car after I said good-bye to my boyfriend. She asked me how I was doing with all of this and I cried and cried and babbled about not wanting to feel like less of a woman or be seen as less of one, espcially with this new relationship. And that I was mad to have to deal with this at all (sound familiar to ALL of us). And that this better work. I want to be around for my kids and for Luca SO much. I have never experienced love and caring for someone with such reciprocation EVER. I want this future. I want it for all of us.

I keep trying to find studies on oopherectomy and/or faslodex/herceptin success. I have found some, but not a lot. I have been lucky to have been such a responder to so much and I have all this fear that this will stop.

My onc called on friday and as you know it is always scary when they call you at home to chat. I had the total parasympathetic reaction to her voice and then she told me that she had finally gotten a hold of Dr. Geyer in Pitsburgh who pulled together the tykerb/xeloda trials. He said that he felt we were on the right path and that he is very excited about hercptin dm1 and he told her to tell me that he was proud of me for hanging in so well and doing so much. He also said to tell me to not lose hope as there are so many other things in development. He is excited about heat shock protein stuff, newer egfr inhibitiors, the small but successful trials with herceptin and avastin. And he said he was very impressed with my success. I hung up and burst into tears from relief and the love that I felt from this doc who doesn't even know me and whose opinion in this onc world means something. People are good aren't they?

So I am trying to take this to heart, still a struggle. I would love any information on stage IV response to oophorectomy/endocrine therapy with herceptin in er/pr+her2+ dx's. And any hope for libido if it gets lost, although I am so in love and attracted to this man that right now I am not as worried as I was.

Again, I'm very sad and sorry for our recent loss and some struggles. I think about all of you here and in heaven so much with such love and respect. But I think we should all feel comfortable with sharing good things still as for those of us here it helps so very much. I say this as I struggle with it myself. But we need to stick together.

What great news Chris! Thanks for posting it - I'll keep in mind the endless possibilities for success when I'm having my drip today. Really really happy for you. xxooxx Flori

Thanks for sharing...
 

The great news Chrissy. We always love to hear good news, even more so this week. I am thrilled for you.
One step closer to the cure.

all the best
caya

Chris,

Wonderful news. It gives lot of hope.

Julie

Yeeehaaa!!
 

Chrisy, this is very well needed and I can understand the point when saying you almost did not want to post this amiss the grief we have suffered this week. Ed cried more that he is doing so well and two of his Sweeties were sent to God.

We must remember that we are still here and we still need to gather the HOPE that we so all need. This makes my heart a little bit lighter. Thanks.

And just so you know, Ed's markers are almost at normal range, petscan shows marked improvement, no progression, bone repair. Brain shows PERFECT, like there were never any problems there before. Doctor actually used the word 'Miracle' and she specializes in the brain.

United we stand. Keep supplying us with HOPE, Lovey, we are still here and we still thrive on it!!

Wonderful news Chris! YOUR good news helps us all to see some sunshine..

Hugs,Marcia

Chrisy,

I am very happy that you shared with us and especially that the treatment is working for you. Keep up the good work.

Hugs,
Tonya

A little good news
 

HI.
Congratulations !! That is great !!

Yippee Chrisy!! I love when trials start showing good stuff and I am thankful that this one is working for my sweet friend!

GREAT NEWS, CHRIS! I needed to hear that. So glad that tx is looking up for you!!!!!!

I am happy for you Chrisy!

Paty

Chris, This is wonderful news. Thanks for sharing it with us. Joan

Karen- I just want to say that your picture is beautiful.

Chris
That is great news...and we all need more of that this week....it sounds like the new treatment is showing your liver who's boss....in no time you'll be back in the woods sipping vino......keep it up!!!!!!

Pink Girl
Very Keen Eye......Yes, forget me nots....what I planted for MichelleH