?What to do for neuropathy?
 

Hello,

My wife is currently on T-DM1 and her neuropathy has been getting worse as time goes on. What have you been prescribed or used to treat it? I am especially interested in treatment that reverses(slow, or stabilize) this side effect.

I was going to have her takes glutamine until I read the below article.

http://www.news-medical.net/news/201...cer-cells.aspx

Many thanks,

Nguyen

Linda's treatment history:

07/2014 - current: T-DM1 (knock on wood a million times)
02/2014 – 06/2014: Everolimus (5mg), Exemestane, herceptin
08/2013 – 01/2014: Femara, herceptin
12/2012 – 07/2013: 4mg estradiol, herceptin
08/2012 - 12/2012: Fulvestran 500mg, exemestane, Herceptin (Stop everolimus due to mouthsores)
05/2012 - 08/2012: Everolimus (10mg), Exemestane, Herceptin, Zometa
08/2011 - 05/2012: Herceptin, Tykerb, Femara, Zometa
08/2010 - 08/2011: Herceptin, Femara, Zometa
09-2009 - 08/2010: Herceptin and estradiol (6mg)
09/2008 - 09/2009: Herceptin, Fulvestrant, Femara
03/2008 - 09/2008: Herceptin, Exemestane, Oophorectomy
01/2005 - 03/2008: Herceptin (readded) and Femara
07/2004: It returned again via several small nodules in the lung
10/2002: NED (via CT and CA27.29)!
10/2001 - 01/2005: Femara, (Fosamax)
12/2000 - 10/2001: Herceptin and Navelbine
12/2000: lung metastatic was diagnosed (a few small nodules)
02/1998 - 12/2000: Daily Tamoxifen
05/1997 - 04/1998: Modified Radical Mastectomy, many many cycles of chemo regiments (CAF,Taxol, Carpoplatin, Thiotepa, Navelbine, Taxotere), including HDC, and radiation
05/1997: First diagnosed with BC stage 3A, ER+, PR+, HER2 +, poorly differentiated, nuclear grade 3.

Re: ?What to do for neuropathy?
 

B complex was recommended to me by my Onc. And it improved greatly However, I was done with my tx. I don't know if this would interfere with your wife's tax. Best bet is to ask your wife's Onc.

Re: ?What to do for neuropathy?
 

My Onc suggested Lyrica but that comes with lots of possible side effects of its own so I decided against taking it as the Neuropathy wasn't too bad at the time.

Re: ?What to do for neuropathy?
 

I take 100mg of B6 daily. Mine isn't that bad but I'm afraid to stop taking the B6. I am also post treatment so I'd check with the oncologist as others have suggested

Re: ?What to do for neuropathy?
 

My onc recommended B6 & B complex. She also recommended L-Carnitine but there is a study recently published that showed it could make neuropathy worse so I dropped that.