Re: Neratinib Clinical Trial
 

Thanks for the update, Elizabeth, glad you are doing well.

Both fish and scallop are 'protein' which takes quite a bit longer to digest than carbs - so I think you're correct that the 'deep frying' was the culprit since oil/fat takes the longest time to digest and it requires something from the gallbladder to dissolve the fat molecules.

Many of us have stayed on this forum long after we had completed our treatment. Don't worry about the attention issue. You will finish your treatment before you know it!

Re: Neratinib Clinical Trial
 

I started the Neratinib clinical trail 13 Jan 2011. First day I knew right away that I had the real thing. Within 3 hours of taking the 6 pills I had severe stomach cramps, nausea and mild diarrhea. The next day after talking to nurse day before I took the pills after I had breakfast but 3 hours later had mild stomach cramps, nausea and diarrhea but worse than the other day. Day three I took pills 30 minutes after breakfast and other than a little nausea nothing else. My fingers are crossed that my body is getting use to it. I do find that when I get stomach cramps or nausea that eating a saltine cracker or two helps.

I was diagnosed with stage IIIC HER2+ breast cancer in June 2009. I had a double mastectomy, 16 rounds of chemo, 25 radiation and 52 weeks of herceptin.

Re: Neratinib Clinical Trial
 

Hi Ginny - yes, I take my pills after breakfast and my worst case was that I used to have problems if I ate salad without any carbs alongside. I suffered the side-effects quite strongly for the first 2 months and thought at times "is it worth it?" and the answer was always "Yes!" There is a reason we are doing this and we are lucky not to be on the placebo - I tell myself. Now after 6 months, almost 7, I rarely have a problem with cramps. Perhaps I have learnt what I can eat, but also my body must have adapted. Only 5 more months to go!

Re: Neratinib Clinical Trial
 

Today is my last day on trial. I kind of feel like my parachute has been taken away. All follow up tests are clear so I am still cancer free! The only side affects I had was hair loss and evening fatigue. The trial has stopped but participants will be followed for two years at Dr schedule. I am not sure if tests are still covered by trial. I will find out today.

Re: Neratinib Clinical Trial
 

It is not what happens in life that matters it is how you live it.