NED...is that YOU??? Long time no see :) !!
Oh what a thrill it is to share good news with you, my friends!
Just got back from my Brain MRI and it remains NED! Yay! NED in the HEAD;) As for the body...yesterday I had a very brief chat with my Onc & she said "Everything looks pretty good," when I talked to, but I didn't have the full report. The Rad Onc gave me the report before even giving me to good NED Head news! And what a report it is! I haven't had a scan so clean since 2005. The the report identifies areas of disease from the previous scan in January- with disease mostly in lymph nodes in my chest and lungs, abdomen, pelvis, supraclav,lesions in colon- now categorized as "not apparent...not well appreciated." The final impression states, "Marked interval reduction /resolution of multifocal regions of abnormal FDG uptake in chest, abdomen and pelvis in comparison to prior examination." Oh HAPPY DAY:) The only 2 issues are my spleen is "prominent" and the stent in my L kidney has migrated and needs to be re-placed. Neither of those issues are too problematic and really pale in comparison to fighting this monster of a disease. I keep re-reading the report to make sure that I'm not missing some statement that identifies new or residual active disease,and that I'm not truly NED, but it's just not there! I can't feel the fulll weight of this wonderful news, yet - still feels surreal, so I'm going to take a nap, let the news settle in my bones, then get up and CELEBRATE! First phone call was to my mom & woke her in Hawaii @4:30am. Successful treatment for any one of us is a VICTORY for ALL of us! Keeping the Faith! ALWAYS~ Jessica Dx-5/17/02 - 33 yo; Stage IV - L IDC w/single liver met 1) Herceptin + Navelbine x 8 weeks - No response; progress to innumerable,immeasureable liver mets 2) ISIS 2504 + Herceptin - 6 mos, partial response 3) Taxol + Herceptin x 13 weeks to NED! NED for 1 year 9/04 - Single liver lesion recurrence Taxol + Herceptin - on/off to beat back lesion 12/05 - R Hepatectomy; Liver NED until 2009 3/06- Local recurrence - Left breast, IDC & DCIS, but holding treatment while continue to heal from Hepatectomy. 12/06 - L mastectomy + reconstruction through 8/07 10/07 - Recurrence - supraclav nodes 4) Gemzar + Herceptin - on/off controlling nodes thru 9/08 - 7wks Rads to supraclav nodes 10/08 - Acute Renal Failure - nodes in belly stricturing kidneys. placed permanent ureteral stents Back on Gemzar + Herceptin, but no longer responding. 5) 05/09 - Tykerb + Xeloda - partial response x 5 mos 6) 10/09 - Xeloda + Herceptin - no response, disease progresses 7) 2/10- Ixempra + Herceptin - partial response x 12 wks. Discovered single brain lesion x 4mm & liver lesions growing while screening for TDM1 + PI3Kinase study. 6/10 - Novalis to treat brain met - SUCCESSFUL! 8) 6/10 - Chemo-embo w/Adriamyacin to de-bulk liver lesion. 9) 8/10 - Screened & Started TDM1 EAP Immediate response, disease in belly responds dramatically. 2/11- questionable progression of lung nodules Discontinue TDM1 10) 3/11 - PI3Kinase + Herceptin - intial good response in 1st 6 weeks but LFT's elevated. 11) 7/11-Discontinue PI3Kinase + Herceptin study; Disease progression - 2 small lesions in colon – docs have never seen this before in BC 11) 8/11 –Start new combo Halaven+Herceptin 10/14/11 -Completed 3 cycles (9 wks)Halaven+Herceptin... 10/18/11 - Scanxiety time -1st scans since starting this regimen Good interval response, continue on H+H! 10/25/11 – new 2mm questionable spot in brain? Due to Novalis or new disease? Re-scan in 8 weeks. 1/3/12- Disease progression; 50%increase size & SUV-R lung, middle lobe 6cm lesion. R supraclav node multiple, miscellaneous nodes in belly. Colon lesions fired up. 12)Herceptin+ metronomic Cytoxan + Methotrexate. …on a hope & a prayer. Only chemo I haven’t been on is Taxotere. Hurry up Pertuzumab & TDM1! Follow Up Brain Scan on 1/18/12…pleasepleaseplease be okay. I can’t take much more. 1/18/2012- 8 new spots in 8 weeks since last Brain MRI one 2cm spot in brain stem, one 2cm spot in R temporal lobe. No symptoms, THANK GOD! 1/25/12 – Start WBR x 15 rounds 2/10/12 – Oral Cytoxan WORKING! Melted supraclav node & undetectable by US! 2/14/12 – FINISH 15 rounds WBR;) 6/12/12- Continuing on oral Methotrexate BID & Cytoxan qpm, but on chemo break for 3rd week due to low counts. 6/15/12 – Yay! Resume chemoJ 6/25/12 – Chemo break again due to low counts L 6/28/12 – PET Scan & Brain MRI this week… NED IS BACK!!! NED in the HEAD, NED in the BODY! |
Re: NED...is that YOU??? Long time no see :) !!
This is certainly very, very good news.
I logged on to read your good news and Sheila's good news. Oh happy day !! You earned some R & R. Go rest and enjoy the rest of the day. |
Re: NED...is that YOU??? Long time no see :) !!
Jessica,
I am thrilled, thrilled, thrilled. Yes indeed....your victory is a victory for us all. |
Re: NED...is that YOU??? Long time no see :) !!
Jessica, what amazingly wonderful news! I am so happy for you, and for us all! Like you said, victory for one of us is a victory for all! I'm going to celebrate with you, foot spa here I come and I will think of all these happy posts today!
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Re: NED...is that YOU??? Long time no see :) !!
Yes yes yes! What else can I say I am so,so pleased.
Hugs Ellie |
Re: NED...is that YOU??? Long time no see :) !!
Absolutely awesome news! Wishing to continued success in all areas! Indeed, it is a victory for all of us!
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Re: NED...is that YOU??? Long time no see :) !!
That is wonderful news,so happy for you!
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Re: NED...is that YOU??? Long time no see :) !!
Jessica!
That is the absolute best news I have heard in a very long time! Congratulations! It's so nice to be able to send prayers aloft to say "thank you!" for a change! You, my friend, are a inspiration to those of us following your journey! Hugs! Denise |
Re: NED...is that YOU??? Long time no see :) !!
Woohoo! Great news - celebration required! I'll do a happy dance down here!
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Re: NED...is that YOU??? Long time no see :) !!
Yay! Thanks for sharing! Thanks be to God!
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Re: NED...is that YOU??? Long time no see :) !!
Oh, Jessica, this is just what you needed and deserved! This is completely spiritual! I believe you have turned a corner, my friend,
Karen |
Re: NED...is that YOU??? Long time no see :) !!
Well well well my dear. See, sometimes when we go to the dark places, we're WRONG!!!!!!!
So how do I get this big grin off my face? Hubby will wonder what I've been up to! |
Re: NED...is that YOU??? Long time no see :) !!
This is wonderful, amazing, awesome news!!!!! Congratulations....When I read your post I literally said "YAY!" out loud, startling everyone in the room. What a cause for celebration, so happy for you. :)
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Re: NED...is that YOU??? Long time no see :) !!
Jessica I cannot express how absolutly thriled I am for you - well done warrier woman xx
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Re: NED...is that YOU??? Long time no see :) !!
Jessica, that is absolutely fantastic news!! Doing the happy dance for you here too!
Dawn |
Re: NED...is that YOU??? Long time no see :) !!
Jessica....SO HAPPY for you......you so deserve this change......send him (Ned) to visit me if he has time!!!!! TRULY KEEPING THE FAITH!!!
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Re: NED...is that YOU??? Long time no see :) !!
WOW! Shockingly good news. Glad to hear it.
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Re: NED...is that YOU??? Long time no see :) !!
Prayers answered! It DOES happen.
This is the break you deserve! |
Re: NED...is that YOU??? Long time no see :) !!
Thanks be to God, Jessica! I am so happy! Tears of joy!
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Re: NED...is that YOU??? Long time no see :) !!
Fabulous! I am overjoyed for you!
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