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-   -   Significant Progression-Going On Doxil (https://her2support.org/vbulletin/showthread.php?t=61309)

KDR 06-20-2014 11:52 AM

Re: Significant Progression-Going On Doxil
 
Yes! I took the daughter of the The Red Devil yesterday. I am good with it! I think it's going to work!
Thank you everyone for thinking of me. I can't help but think I caused some of this on my own: Navelbine was not oncologist first choice, and neither was trial. But I bucked Doxil, I don't know why. It's a top-tier drug. I didn't want to lose my hair again. Yes, really! But I won't! I indulged in sugar and wanton eating, no weight gain, but just doing what I want to do. I forgot how good I'd been with my food: Whole Foods only, no sugars, no white foods. I messed up. O.K., so back to kale, nuts, vegetables, fish, olive oil. Back to caring. Know I can't play with this delicate balance. (See last sentence: July 2010 of signature).

Love to you all. Onward and upward. Back to NED.
Thanks for all, Karen

PS, Just printed all that information, Angel, and I'll be putting it to good use.

caya 06-20-2014 12:21 PM

Re: Significant Progression-Going On Doxil
 
Good luck Karen, hoping that Doxil is the magic bullet for you!

all the best
caya

JennyB 06-20-2014 03:55 PM

Re: Significant Progression-Going On Doxil
 
Good Luck Karen,

I'm raising my green smoothie to you this mornning!

Becky 06-20-2014 09:44 PM

Re: Significant Progression-Going On Doxil
 
Hey darlin'. I am also thinking about you and do often. You are in my thoughts and prayers.

mamacze 07-02-2014 06:54 PM

Re: Significant Progression-Going On Doxil
 
Thinking of you…any updates???? How are you doing - please I hope you are not feeling any hand/foot yuck-ness. Did I say I am thinking of you?? Even my daughter is asking how you are doing…XO

sassy 07-02-2014 07:20 PM

Re: Significant Progression-Going On Doxil
 
Karen see Lani's post re hand foot syndrome--maybe worth a try!

http://her2support.org/vbulletin/showthread.php?t=61402

Hang in there and know we are here for you.

I had Adriamycin and found it was not as hard as Taxol, if that's any comparison.

Mtngrl 07-03-2014 09:32 AM

Re: Significant Progression-Going On Doxil
 
Karen,

I'm so sorry you've experienced progression. I pray that Doxil knocks the cancer back into NED land.

Sending warm wishes and love.

KDR 07-03-2014 06:36 PM

Re: Significant Progression-Going On Doxil
 
Hi, all,
I'm going for my second infusion this coming week. I find it tolerable thus far. No news to report as I've only had one dose. Doxil is dosed every three weeks. So, Wednesday, the day before my birthday, I'm getting another dose.

Someone PMd me that the CD47 trial was starting up within the next 30 days. Anyone have more news on that?

I am more than hopeful on this regimen. There is neuropathy, but that's about it. Will let you all know how it's going. Just busy with 10-year-old who has not gone to camp yet!

Thanks for your wishes and comments.

Love
Karen

Redwolf8812 07-04-2014 07:12 AM

Re: Significant Progression-Going On Doxil
 
Thanks for keeping us updated, Karen. I continue to pray for all of us. Happy early birthday!

:-) Penny

Lisalou 07-04-2014 08:01 AM

Re: Significant Progression-Going On Doxil
 
Glad to hear that you are tolerating the Doxil well. Good luck with the next infusion!

Carol Ann 07-04-2014 09:54 AM

Re: Significant Progression-Going On Doxil
 
Great news, Karen, Happy Birthday and Happy 4th!

CA

embur102 07-05-2014 03:50 PM

Re: Significant Progression-Going On Doxil
 
Go, Karen, Go!!!

Dance like we are all watching, 'cause we are, and cheering you on every step of the way!!!!!

Cancer-be-damned!

carlatte7 07-07-2014 06:22 AM

Re: Significant Progression-Going On Doxil
 
Glad to hear your new plan is tolerable for you. Continued prayers!

KDR 07-07-2014 07:27 PM

Re: Significant Progression-Going On Doxil
 
Thank you, thank you!

Karen

Jackie07 07-08-2014 12:09 AM

Re: Significant Progression-Going On Doxil
 
Happy Birthday! Karen.

Glad Doxil is tolerable.

Thanks for the updates. Sending you good vibes.

Aussie Girl 07-08-2014 05:36 AM

Re: Significant Progression-Going On Doxil
 
Dear Karen,

I haven't been on the site for a while. Sorry to hear about the progression and hoping the red devil's daughter is a hot dance partner.

Happy Birthday

Aussie Girl (Diane)

norkdo 07-09-2014 01:38 PM

Re: Significant Progression-Going On Doxil
 
We have your back Karen. Please stay strong. Nora

Mtngrl 07-09-2014 01:41 PM

Re: Significant Progression-Going On Doxil
 
In your corner, Karen. You're not alone.

'lizbeth 07-10-2014 08:47 AM

Re: Significant Progression-Going On Doxil
 
Watching for good news, wishing that this will be your magic unicorn. Sounds very positive and it seems that you have a good feeling about this treatment.

You are one tough cookie!

KDR 07-10-2014 08:23 PM

Re: Significant Progression-Going On Doxil
 
Well, I got my first CEA back yesterday and it wasn't the news we expected. I am retesting on Friday. Although there was a "slowing" in the curve of the upward trend, it was still upward.

Thanks for keep up with me.

Karen


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