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-   -   Trial Trastuzumab-MCC-DM1(One more on this trial) (https://her2support.org/vbulletin/showthread.php?t=31039)

MPB 12-14-2007 10:24 PM

2 nd infusion
 
Hi Lily and sisters,

Well I did my 2nd infusion, I did not think it went any better this time then the first time........ My counts where just okay, Pallets was only 66, so that would explain my fagtiuge. So I will get my scans done on 21st of this month and not find out until after Christmas , one year my doc called me on Christmas Eve just to tell me the scan was awesome.. What a guy! So if you all would say a prayer for me I would be so grateful. Also if I don't chat with any of you Merry Christmas and May God's blessings be with each of you and thank you sister's for a year full of sadness, joy, tears,fears and many others. But we are still here fighting the "Fight" and being leaders each other.

lilyecuadorian 12-15-2007 07:05 AM

Hi Marcia,
I so sure that you scan are going to be better , on Monday I will have all my results ..so far my MRI for my head is clear clear my Doc said that he can't find the place where was ? witch he said is great ...and my body I think is going to be OK because they did took some blood Friday (I need the blood test before infusion) that means I will still receive so the only reason for stooping is progressing; ....stable is OK or getting small or clear .....just think on our sister Barbara she no longer have bone pain and I sure she will have her results good on Monday ...not to worry much I know is hard hard ..but I going to pray for you too..Marcia your results are going to be great too

jones7676 12-15-2007 07:21 AM

Hi Ladies, please keep posting on your progress. I am praying for good results for both of you. And Lily, I was glad to hear your good news!

Julie2 12-15-2007 09:43 AM

Dear MPB and Lily,

I am confident that you are going to get good results. Praying that it will be a miracle drug for all of you who are on this.

Julie

doh2pa 12-15-2007 05:41 PM

Ladies,

I am so pulling for both of you! What trailblazers you are!
I am at a treatment decision point myself and will mention this study to my onc.

Prayers and love coming your way.

lilyecuadorian 12-17-2007 02:02 PM

Well, My Sisters I went today to my every 3 week visit to my Doctor Limentani ..and finally I get the results ...from the 3 lesion one no longer identified and the remaining 2 lesions diminished in sizes .no evidence of new disease in the abdomen, no on the brain all other parts are normal ...that is after 2 treatment of this trial MC1-MCC ; so my Doctor said that is a great news ...Thanks My Lord first ...so is a great Christmas gift for me and everybody on this group this bring more hope for all of us MERRY CHRISTMAS TO ALL MY SISTERS

Julie2 12-17-2007 04:12 PM

Lily,

Congratulations!! I am sure you will reach NED very soon with this drug. Thank you very much for being a pioneer and giving hope to others.

Julie

eric 12-17-2007 06:49 PM

Lily,

What GREAT news. I'm happy for you and all others that this drug might help.

Thanks for sharing.

Eric

kareneg 12-17-2007 09:53 PM

Dear Lily,

What wonderful news, I am so happy for you and this looks so promising for all of us too!. Keep up the great work love you!

runtolive 12-18-2007 03:28 PM

hang in their lily.... you are helping genentech prove this drug works.. keep fighting for everyone.....

Patrice 12-21-2007 02:00 PM

What wonderful news Lily! MPB, I'm hoping that you achieve the same results.

Sending you both prayers and love.

Patrice

MPB 12-28-2007 03:17 AM

Hi Ladies!
Well my scans where awesome! The the neck nodes are almost gone, the biggest one is half the size it was no new liver tumors. So it sounds like we are all responding very well to this chemo!!! PTL for he is good and I am so gratefull to all the men and women that keep working to find new cure's for US! So I am off to work and then the 3rd infusion of this chemo. HAPPY NEW YEAR!!! hugs and peace!

lilyecuadorian 12-28-2007 08:19 AM

OH Dear Marsha ...I was waiting for this news .....is great (like my doc said) after second infucion eh eh ...I'm happy for you and us ...and I hope so with your results we get more ladys enrolling on this trial ...Happy new year to everyone !!!!

runtolive 12-28-2007 10:22 AM

what is the name of the site you are treated at in minnesota..

MPB 12-28-2007 11:20 AM

I am being treated at Piper Breast Center at Abbott Noethwestern if you eant the name of my doctor who is heading the study here PM me.


hugs!

runtolive 12-28-2007 12:13 PM

for those interested.. the once a week trial for trastuzumab-dm1 sites in florida..

United States, FloridaFlorida Cancer Care Recruiting Davie, Florida, United States, 33328 Contact: Joel Espinoza 954-262-7606 crc@flcancercare.com Gulfcoast Oncology Associates Recruiting Saint Petersburg, Florida, United States, 33705 Contact: Margie Blasek 727-821-0017 smyers@gulfcoastoncology.com Hem/Onc Assoc - Treasure Coast Recruiting Port St Lucie, Florida, United States, 34952 Contact: Christine Baker-Gerdes 772-408-5159 cgerdes@hemoncfl.com Bay Area Oncology Recruiting Tampa, Florida, United States, 33607 Contact: Julie Hahn 813-875-2300 ext 28 jhahn@bayareaoncology.com

runtolive 12-28-2007 06:20 PM

MPB...have you heard if many others are on the same treatment plan as you..at abbott nw... barb said dana farber already has reached their quota for this trial so if other sites are enrolling well.. the phase 1 portion of the weekly dosing regimen may end soon... then hopefully genentech can begin a pivotal phase 3 trial...and possibly be approved sometime maybe late 2009 or 2010...

hugs back...


run to live.

MPB 01-03-2008 03:04 AM

I am not sure I will ask the study nurse if they have any openings?? Are you intersted?

runtolive 01-03-2008 07:43 AM

i am not interested for myself but for all the women who may need this trial to survive but do not have access or the ability to find the trial in their city..

not all doctors are willing to put their patients in study trials.. before its too late..
i only hope brave women like yourself can forge thru this trial, and prove this drug could be the answer to all our prayers...

do you know how many others are in the same trial as you.. genentech should hopefully be able to complete enrollment of this trial within a few months and progress to a full pivotal trial sometime later this year..
run to live

lilyecuadorian 01-03-2008 08:21 AM

Dear run to live ..in North Carolina we are only 2 and we have space for 5


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