"PLEASE" don't take Joe and Christine and ALL their work here...
 

for granted as I don't want to lose them. Prior to becoming diagnosed, the ONLY other message boards I had belonged to were Organized Home and Organized Christmas (don't ask...we ALL have issues:) and a couple of months ago, the "owner" of the sites (such as Joe and Christine are to this one) announced that the message boards would be shutting down effective 01/08 due to the amount of time it takes to maintain them as well as health issues. You should have SEEN the hysteria...(imagine this board shutting down). Like Joe says, we are "guests" in HIS and Christines home and the gracious host and hostess that they are...think about it.

Rhonda

Thank you Rhonda. Before this I never belonged to organized message boards either. I belong to one other now that has nothing to do with medical issues or health. I have seen on that one, just how easy it is for simple differing points of view to disintegrate into meanness and immaturity. It is surprising and disenchanting. It makes me sad to hear that on this site, the same has might have also started to come true. I did not read the thread in question, so I must take Joe at his word that it had crossed the line. I am here to survive cancer, gain knowledge and experience, share knowledge and experience, and sometimes have fun, but hopefully always have respectful adult discourse. I hope I have done my part to use this site wisely and appropriately. It is much too powerful and important to risk losing it.

Thanks for the reminder Rhonda, I belong to one other message board where I have friends but no knowledge!! I rely on this board to provide that as it's always done for me since dx in '05.
I believe knowledge is power in beating this disease and Joe and Christine provide the outlet for that.
We have nothing else like this in Ireland, and when I mentioned the site to my onc who trained and worked in the states she knew of this site and was glad I visit here.
We ALL need this, I don't know what happened and did'nt read the offending post but JOE....please know it's one of among hundreds that truely appreciate you and Christine and what you're providing for us here.
Thank you again!

THis is the only message board I have ever belonged to, or ever wanted to, although your organized Christmas one sounds interesting Rhonda! This board has been a lifeline, don't know where I would be without it...it is my link to knowledge and hope....no matter how down I can feel, I can always feel better by coming here. Christine and Joe have given me a lifeline!

This is also the one and only message board I have ever joined. It has been a tremendous blessing to me throughout my ordeal with BC and treatment. Could someone please explain to me the relationship Joe and Christine have to this message board? It sounds like they are the deveoper of this site? I would really appreciate a good understanding of the correlation so that I can be 100% appreciative to the work they have done and are doing in helping so many of us.
Thanks...
Harrie

Harrie...
 

here is a link explaining Christines story.

http://her2support.org/index.php?opt...d=67&Itemid=80

She and Joe are the founders and owners of the HER 2 Support Group. My HOW SWEET thread is a picture of them. Their BEYOND phenomenal.

Rhonda

Joe and Christine, please keep this message board going. Its the only one I look at and get great up to date information and a lot of encouragement from. There is nothing like this in England where I live. Thank you so much for this .

Thank you Rhonda...........
 

Thank you Rhonda for the gentle reminder to us all. Yes, we are guests in the "home" they have created for us and we should never take that type of love for granted.

Mary Jo

Dear Joe and Christine,
Know that you are EXTREMELY appreciated and if anyone is taking you for granted, they're an idiot. I posted my feeling on another post about impoliteness and the fact you were feeling discouraged. Please never feel discouraged, you mean so much to all of us.
Personally and selfishly if this site stopped working, I would go into a deep depression and feel totally lost and I'm sure I speak for everyone. I turn to this board not only for advice for myself but for 2 follow travellers. Just the thought of you not being here, has frightened the daylights out of me! However it's made me decide to donate now instead of waiting until December! I'm also going to ask my bc buddy to send something - I know she will.
Also Joe and Christine, if you ever have the urge to visit France and want to head to the south of France, I live near Cannes and my husband and I would love to have you stay with us. We live in the country not on the "Cote" but it's still very nice.
Having often been a volunteer in the communities I've found myself living, I know that there are times you get overly tired and fed up and feel unappreciated.
Please re-find your passion - you are so desperately needed.
We love you.
Gary and Sarah

I am sure I can credit my success so far in part to the information on this site and board.

What does it take to get funding for this organization? I don't want Joe and Christine to be burdened with more work. But if a board is elected and fundraising done so that they can be compensated for their time and effort in her2 bc- that would be just.

Dear Joe and Christine,


I want to thank you, once more, for all you have done for us bc- her2neu+ ladies.
Since I met you personally (last November) in San Diego, I admire your work
and dedication even more. I have not posted often, but I read this website almost daily and have received a lot of valuable information.
Please continue your good work and I wish you all the best.

Sincerely, Trudy

Dear Joe and Christine,
I agree with the recent posts to this thread. I would have felt much more alone and vulnerable if it were not for the information and contacts I made through your site. I do not know what negative posts were made before to have cause such bad feelings, but if the positives and words of appreciation could somehow override the negatives, you have my deepest appreciation. Your site has been a godsend to me. Thank you.
Maryanne

Wow, I just read Christine's story. Simply amazing and incredibly inspirational. Can anyone tell me how long this online site has been in existance? I am just curious.
Maryanne

Joe,

I just love the 'giggles' billboard photo of Christine and you. Why not put it on the first page of the HER2 (home) site?

Joanne S