Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Thanks Ellie. I am excited! I have a PET/CT tomorrow in fact. Not related to the trial though. I had a CT scan in October that revealed some lung and liver nodules. This PET/CT is to monitor them and see if they are cancer or not. The CT report said that the liver nodules (2 at less than 2mm) were likely cysts. The lung nodules could be a number of things. My tumor markers are at 14, my bone scan and brain MRI were clear, so I am hoping the PET/CT will be clear too. They did say to drink alot of water since they will be taking alot of blood. I'm used to it. Thank goodness I have a port!

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Will be thinking of you tomorrow. Please let us know how it goes,praying that the nodules are b9.

Ellie

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hello! I am waiting to hear if I have been accepted into the Seattle Her2 Trial. Any news on how the participants are doing would be greatly appreciated. I live in Atlanta, so it will be a lot of long trips for me. (Not as long as NZ).

Please feel free to email me. annwertz@yahoo.com

Thanks!
Ann

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hi Ann -

Check in with "schoolteacher" here. She is from your neck of the woods, and also traveled here for the vaccines.

I live in the Seattle area, and would love to meet you at the medical center if you are accepted.

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hi Steph!

Thank you so much for replying. I'm new on this forum and desperate to hear how those who have participated in the Seattle Her2 study have fared. Obviously, it will be a huge investment of time, travel, and $$$. I have been advised against vaccine trials by 2 oncologists in Atlanta. I have been told that Emory Univ. (in my town) will be getting the TDM-1 + Herceptin trial w/in the next few months & encouraged to participate in that trial once it is here. Plus, I've been advised to do a Navelbine + Herceptin + 50/50 chance of Everolimus trial until the TDM-1 trial gets started. I'd prefer to go the vaccine route & forgo the toxic chemicals, if possible (as long as I hear success in these vaccine trials). I'll try to contact Schoolteacher. Thanks! And if I do come to Seattle, I'd very much enjoy meeting you!

Cheers!
Ann

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hi Anne. I did the trial and felt good the whole way through. At the time we all thought I was NED. I'm not sure what stage you are as you talk about the TDM-1 trial and others.

The only thing you need to be aware of is the vaccine does not cross the blood brian barrier. This is something I did not even consider for brain mets.

Good luck i still think it was a very worth while venture for me as I disease any were else.

Cheers
Jacqui

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hi Jacqui,

I am Stage IV. I had not even thought about the blood/brain barrier issue w/ the vaccine.That is certainly something to consider. Thank you for telling me about that. I conclude from reading your history that you did not have brain mets until after completing the trial. I'll bring this up with my oncologist.

BTW, I LOVE NZ! I visited a friend in Waihi on the East Coast and toured the S.I. about 7 years ago. Beautiful country!

Thanks for sharing your experiences.

Ann

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hi Ann yes the east coast is nice i live on the east coast surrounded by nice white sand beaches. I went to Waihi alot my Grandparents lived there. Its great fishing.

My mets was discovered after my vaccine was finished. During this time I did not have any scans. The mets came as a huge shock but i guess the vaccine is doing it thing. I'll have a MRI and PET in two months.

All the best with options

Regards Jacqui

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hi there. I just joined this site. I'm in this trial..started in December and came back yesterday from my 5th trip. I have one more vaccine to go. It is a committment but definitely do-able. I too am hoping it's worth it!! Getting scanned in 3 weeks so will know more..

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hi MakMak,
I was accepted into the Seattle Clinical Trial, but decided to go with a different clinical trial, one that uses the study drug T-DM1. I just had my first infusion yesterday. It was a very difficult choice. Best of luck to you!
Ann

Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
 

Hi, I'm Laurie and am talking with U of Washington people regarding the possibility of a new clinical trial just starting in Seattle for HER-2+ patients that have been maximally treated and not achieved a complete remission. It combines "administering escalating doses of ex vivo expanded HER2 specific T cells after in vivo priming with a HER2 specific vaccine." Discussing with my onc in Orlando Wed am and gathering more info. Any input re responses to the vaccine and experience in Seattle would be appreciated. My e-mail address is tobiah@earthlink.net. Been