PET Scan results
"IT LOOKS REALLY GOOD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!"
:)That's the response I got back from the Nurse Practitioner after my PET scans yesterday when I emailed her to ask her to keep an eye out for results. All those CAPS & exclamation points - it's gotta be good news! I don't have any additional info, haven't seen the report, but since I trust them infinitely, I know I can completely relax, knowing they're pleased with the results and we'll discuss them when I see them tomorrow. Anything that's not bad is good, and so long as I don't have to scramble & search for another treatment combo, and we can stick with the status quo, I'm happy & relieved. While I don't want to speculate what the report might say, I still hold out hope for NED, or his close 1st cousin MED - Minimal Evidence of Disease! (HA! I made that up). Successful treatment for anyone of us is a victory for ALL of us! Keep the Faith~ Jessica Dx-5/17/02 - 33 yo; Stage IV L IDC w/single liver met Herceptin + Navelbine x 8 weeks - No response; progress to innumerable,immeasureable liver mets ISIS 2504 + Herceptin - 6 mos, partial response Taxol + Herceptin x 13 weeks to NED! NED for 1 year 9/04 - Single liver lesion recurrence Taxol + Herceptin - on/off to beat back lesion 12/05 - R Hepatectomy; Liver NED until 2009 3/06- Local recurrence - Left breast, IDC & DCIS, but holding treatment while continue to heal from Hepatectomy. 12/06 - L mastectomy + reconstruction through 8/07 10/07 - Recurrence - supraclav nodes Gemzar + Herceptin - on/off controlling nodes thru 9/08 - 7wks rads to supraclav nodes 10/08 - Acute Renal Failure - nodes in belly stricturing kidneys. placed permanent ureteral stents Back on Gemzar + Herceptin, but no longer responding. 05/09 - Tykerb + Xeloda - partial response x 5 mos 10/09 - Xeloda + Herceptin - no response, disease progresses 2/10- Ixempra + Herceptin - partial response x 12 wks. Discovered single brain lesion x 4mm & liver lesions growing while screening for TDM1 + PI3Kinase study. 6/10 - Novalis to treat brain met - SUCCESSFUL! 6/10 - Chemo-embo directly to liver w/Adriamyacin to de-bulk liver lesion. 8/10 - Screened & Started TDM1 EAP Immediate response, disease in belly responds dramatically. 2/11- questionable progression of lung nodules Discontinue TDM1 3/11 - PI3Kinase + Herceptin - intial good response in 1st 6 weeks but LFT's elevated & major GI & colon spasms 7/11-Discontinue PI3Kinase + Herceptin study; Disease progression - 2 small lesions in colon – docs have never seen this before in BC! 8/11 –Start new combo Halaven+Herceptin 10/14/2011 -Completed 3 cycles (9 wks)Halaven+Herceptin... 10/18/2011 - Scanxiety time -1st scans since starting this regimen |
Re: PET Scan results
That is WONDERFUL news!! (i love "MED")
- Kelly |
Re: PET Scan results
Fantastic news Jessica! Can't wait to hear the final outcome - NED or MED http://her2support.org/vbulletin/images/icons/icon7.gif - I'm hoping for NED, but either one will be great news!
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Re: PET Scan results
Great news Jessica, lovely to hear of such a good result.
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Re: PET Scan results
Love it! Love your NP, too!
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Re: PET Scan results
Jessica
That is amazing....Halaven is a good drug...I had an immediate response to it.....the girls in San Antonio watched my skin mets melt away! Hoping it brings you to NED, or MED.....any good news is worth celebrating! |
Re: PET Scan results
Jessica, That is such wonderful news- I pray for a good scan result for you! MED is a great term- love it!
Best of luck- you have been through so much, time for your luck to change! |
Re: PET Scan results
Jessica,
This is fantastic news!! Go Halaven. NED would be fantastic, but I am with you on thinking MED was Ok too. You've been so strong for so long I am hoping you can settle in and just cruise for a while. (think big pink cadillac) Please keep us posted. Lori |
Re: PET Scan results
Thrilled for you Jess!! Hoping for NED - (but I love MED, if we can't have NED).
all the best caya |
Re: PET Scan results
Jessica,
I couldn't be happier for you! That sounds like fantastic news! Keep the Faith! Your Friend, Nancy |
Re: PET Scan results
Will send some extra good wishes for a great appointment tomorrow. Thanks for the heads up that you have a positive response to new treatment. If it is MED then NED may not be far behind.
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Re: PET Scan results
Great to hear your good news!!!!!!!!!!!!!!!
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Re: PET Scan results
Wonderful news! Here's to NED lady.
Enjoy the day, Emelie |
Re: PET Scan results
Jessica!
Congratulations!! Thanks for sharing your good news! (love MED!! Very clever!) Stay strong! Denise |
Re: PET Scan results
Yay!!!! We're all pulling for you!!!
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Re: PET Scan results
I love MED too. Glad to hear your good news. I have scans Tuesday. You offer me some Hope.
Amelia |
Re: PET Scan results
Truly good news !! I have my fingers crossed for a good meeting with your doc tomorrow. Take good care of yourself.
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Re: PET Scan results
FANTASIC!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Did I get in as many exclamations as the nurse? Trish |
Re: PET Scan results
Great news....you have gone through a lot! Haven't we all?! Bring on Ned.........yeah, Little Med is welcome,too! Ceesun
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Re: PET Scan results
Best wishes Jessica from across the pond! You are awesome.
Ellie |
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