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-   -   8 years since brain mets ... and counting (https://her2support.org/vbulletin/showthread.php?t=57596)

StephN 03-18-2013 05:44 PM

8 years since brain mets ... and counting
 
Hello everyone -

I just spent a good share of today at my medical center having a brain MRI and then seeing my doctor for the result. (Not to mention some waiting around as they were super busy and running late today!)

So, good news once again. No new spots or problems with the old places. I did have a year or two with some complications after my initial gamma knife (see signature), but it all levelled out and has been a dull routine since the end of 2006.

At this juncture they see me every 8 months, but I lobbied to get it pushed to 10 months before the next screening. (Hope the tumor board will agree.) Since I have quarterly blood draws and am otherwise followed, I think that is a reasonable interim.

So, for those of you going through or close to treatment for brain mets, it should get better with a little more time. That is my wish for each and every one of you.

dearjilly 03-18-2013 06:04 PM

Re: 8 years since brain mets ... and counting
 
StephN, Congratulations and thank you for posting. I needed to hear it just now (I was having a down moment), and I logged on and saw this. I'm so happy for you. I am so happy that you give us metsters so much hope.
Here's to many more years of NED!
Jill

jacqueline1102 03-18-2013 06:18 PM

Re: 8 years since brain mets ... and counting
 
Hello,

How wonderful!!! I always appreciate your posts, Steph; always so filled with wisdom and hope for all of us. And how great for you to have scans every 10 months. Enjoy!

Take care,

Jackie

Midwest Alice 03-18-2013 06:30 PM

Re: 8 years since brain mets ... and counting
 
Wow steph, wonderful news!! Thanks for the up date

sassy 03-18-2013 06:41 PM

Re: 8 years since brain mets ... and counting
 
You GO Steph!!!

Thanks for being one of our major heroes!

Cheers!

CoolBreeze 03-18-2013 06:48 PM

Re: 8 years since brain mets ... and counting
 
You are what we all dream about. Congratulations!

KDR 03-18-2013 07:29 PM

Re: 8 years since brain mets ... and counting
 
Steph,
Thanks for sharing your uplifting update. Eleven years away from liver mets and disease free. Champion!
Congratulations,
Karen

NanaJoni 03-18-2013 08:04 PM

Re: 8 years since brain mets ... and counting
 
Congrats, Steph. And thanks for letting us share in your good news.

JennyB 03-18-2013 08:19 PM

Re: 8 years since brain mets ... and counting
 
Yay hoorah swinging from the chandelier - am very happy for you and all those around you especially us!
Jenny x

CarolineC 03-18-2013 08:39 PM

Re: 8 years since brain mets ... and counting
 
Congratulations! I look forward to your posts and also agree that you give us so much hope. Thank you so much!

Caroline

Mel3 03-18-2013 09:51 PM

Re: 8 years since brain mets ... and counting
 
Congratulations, Steph! I was thinking of you today and thought about checking in to see how you have been, now I know, fantastic!

conomyself 03-18-2013 10:12 PM

Re: 8 years since brain mets ... and counting
 
That's so wonderful! Congratulations Steph!!

Rachael

Pamelamary 03-18-2013 11:08 PM

Re: 8 years since brain mets ... and counting
 
Thanks Steph - we do need news like yours!

michka 03-19-2013 01:45 AM

Re: 8 years since brain mets ... and counting
 
Congratulations! I will raise a glass of French wine for you Steph!
Michka

Bunty 03-19-2013 04:09 AM

Re: 8 years since brain mets ... and counting
 
Steph, fan-bloody-tastic! Great news.
Cheers Marie x

Ellie F 03-19-2013 04:13 AM

Re: 8 years since brain mets ... and counting
 
Congratulations Steph. Lovely to hear such good news.
Ellie

Ellie F 03-19-2013 04:13 AM

Re: 8 years since brain mets ... and counting
 
Congratulations Steph. Lovely to hear such good news.
Ellie

NEDenise 03-19-2013 04:16 AM

Re: 8 years since brain mets ... and counting
 
YAY!
You, my friend are a mentor, a trail-blazer, an inspiration!!
When I grow up...I want to be just like you! :)

Denise

caya 03-20-2013 02:38 PM

Re: 8 years since brain mets ... and counting
 
Great news Steph, thanks for sharing.
Big congrats, you go girl!!

all the best
caya

nsebesta 03-20-2013 03:13 PM

Re: 8 years since brain mets ... and counting
 
Great news StephN! I too just had check-ups and got the all clear. So that makes me 8 yrs out from liver mets!

I was wondering how often they did scans on you now. I finally talked MDAnderson into every 6 mos. I've been on that schedule for about 1.5 years. Maybe after the next check-up I'll ask for 8 mos.

Thanks for sharing your great news!


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