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-   -   Is it time to switch from Herceptin? So confused (https://her2support.org/vbulletin/showthread.php?t=61801)

jkdowl 09-12-2014 04:45 AM

Is it time to switch from Herceptin? So confused
 
I was dx stage 4 to bones in 2010, have been stable since then. I never had a mastectomy until 2 months ago, the left breast started increasing in size. After a biopsy that confirmed IDC ER PR neg, HER-2+++, (same as original), I had a left mastectomy last week.
No lymph nodes were in involved, clean margins. 3 small IDC tumors, extensive DCIS, lymphatic invasion, no vascular invasion.
Now we are discussing radiation +\- changing up chemo regimen.
My oncologist initially said that I would be able to stay on herceptin bc all my other scans are still stable. Now she is changing her tune, she said that if the tumors in the breast were able to grow on herceptin then it may not be enough for the rest of the body. Of course, I don't want to switch or add anything else, but she is not giving a definite recommendation yet. She wants to present my case to her colleagues first.
Anyone have experience like this?

waterdreamer 09-13-2014 10:44 PM

Re: Is it time to switch from Herceptin? So confused
 
Herceptin by itself is not very effective against active cancer. Has she suggested Kadcyla?
I progressed on just Herceptin and went onto Kadcyla after having done Taxotere and Herceptin and then Herceptin alone.

jkdowl 09-14-2014 11:24 AM

Re: Is it time to switch from Herceptin? So confused
 
Thanks for the reply, my oncologist spoke to colleagues, they felt with tumor out with mastectomy, I could stay on Herceptin bc still controlling bones and rest of body. They will be watching closely. I'm hoping it keeps working!


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