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j spencer 05-12-2010 04:56 PM

Help with Neratinib
 
does anyone know if the requirements for the neratinib trial has changed from 2 year to 1 year from last herceptin. i was really disappointed because i believed i was in trial and she called today and said the requirements changed. thanks

Midwest Alice 05-12-2010 05:02 PM

Re: Help with Neratinib
 
Hi Jennifer, I know you were ready to start the trial and I hope you can find another Neratinib trial that has the 2 year time limit.

Hugs, Alice

Midwest Alice 05-14-2010 07:32 PM

Re: Help with Neratinib
 
Bump you up Jennifer. Maybe some who are on this trial can give you some direction. Don't give up on getting this drug just yet.

Hugs Alice

freyja 05-16-2010 10:33 AM

Re: Help with Neratinib
 
I did hear that the requirements just changed last Monday (I got in 3 days before that, but I'm pretty sure I'm on the placebo, anyway). I'm sorry about the let down. These trials mess with people's emotions and lives, but it's how the process works at this time, and hopefully someday there will be so many new things available because of these trials that we will be able to live our lives and put our energy into facing all of life's other challenges. Keep trying, keep asking questions. Things are changing all the time.


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