Pls help Aussies get TDM1 Kadcyla
 

We Aussie Her2 women need your help. TDM1 -Kadcyla- is only available to us if ws pay in full, abt $170,000, or through Roche's compassionate access program. This means paying an average of abt $15,000 for 3 cycles. Our public health system contributes nothing. Our health insurance funds do not pay for chemo drugs.

The Government has twice rejected including TDM1 on the Pharmaceutical Benefits Scheme to enable women with her2 to access it with public subsidies.

Meanwhile Roche is threatening to end the compassionate access program, (the deadline has just been extended from August to October) meaning women women could have to pay the full price to access TDM1.

Please please help us by signing the following petition-started by my amazing Mum Janine. And, if you can, share it to your facebook friends and other networks.

Many thanks - Belinda

https://www.change.org/p/peter-dutto...share_petition

Re: Pls help Aussies get TDM1 Kadcyla
 

signed. try to get some journalists to write about it. in the UK that's how they finally got Herceptin.
good luck
sarah

Re: Pls help Aussies get TDM1 Kadcyla
 

Signed. Thanks for promoting this petition Belinda.
Marie

Re: Pls help Aussies get TDM1 Kadcyla
 

Signed. Sarah is right, take this to the press.
That is how Herceptin got approved in Canada in 2005.

all the best
caya

Re: Pls help Aussies get TDM1 Kadcyla
 

Signed. Michka

Re: Pls help Aussies get TDM1 Kadcyla
 

Signed. Annette

Re: Pls help Aussies get TDM1 Kadcyla
 

Signed!

CA

Re: Pls help Aussies get TDM1 Kadcyla
 

Thank you all so much.bxxxxxx

Re: Pls help Aussies get TDM1 Kadcyla
 

I signed it and sent it out on Twitter. If you're on Twitter, try posting it with the hashtag #bcsm and/or #metsmonday.

Re: Pls help Aussies get TDM1 Kadcyla
 

Signed - thanks to you Belinda and your wonderful mother! As a fellow Aussie, I agree the PBS should move more quickly to fund these treatments. Bring on the Pertuzamab too!
Best wishes..... Pam

Re: Pls help Aussies get TDM1 Kadcyla
 

absolutely support this cause . I hear England is dragging its' feet too. go to Press. look up mytommorow.com - they seem to be a stage iv activist grp. based in Europe with a similar heavily govt/ bureaucratic regulated heath system . enlist thier support , advice.
send out the word looking for t dm-1 super -responders in Australia to testify. Have them video a testimony like Lorraines : http://youtu.be/AkQOLGpXf98 . give it to Press. play up how whole countries like Austr. are left out of trials . we are fighting for Right To Try laws here becuase many of our citizens live far, far from trials. there are so few super-responders even here because the system here is also so slow and small. only 109 pts got to even try t dm-1 at farber over 7 yrs !! . seems to have had about a 20 % super response rate, usually those with just her2 mutation , no er /pr. the success rate will only grow as its' deployed earlier in the fight.
look up the quotes on it as " revolutionary " a " game changer ' for her2 . its really a " super - herceptin " . can't believe it took until 2005 to appr. herceptin in Canada ?? herceptin now is used so widely , but by itself, without chemos it " cures " only about 20 % . t dm-1 will cure more - especially when finally appr. for eariler stage her2 , or first re-occ., and with fewer s/e than older chemos that have to be combined with herc for many.
these drugs are steps forward in the War . they do cost $ but there are great costs to win any war. they lead to better drugs and eventually to the cures. govts spend billions every yr to fight wars that cost the lives of often only dozens or hundreds of their citizen / soldiers. her2 kills 15,000 US citizens EVERY Yr. !
and go to Press/ and govt officials to investigate comp use . the no.'s are apthetically small. ask officials to investigate Gen. s decision to close comp use. go to Press. from co.'s that spend billions $$$ to make billions $$$ on the backs of stage iv survivors who are exploited in their phase I trials and then abandoned . how many Australian her2 Stage IV survivors have progressed on all appr tx.s , what is the cost ? Roche/Holding AG , which owns Genentech , is buying another pharma co. this week for 8 BILLION $$$ !
the pressure is growing on govts and co.'s - the drugs are getting better and better we need to push ro quicker approvals. and for respect for our stage iv rights . when will u get perjeta ? when will you get iclusig for leuk. ? palbociclib for ER +? is affinitor / aromasin appr even appr. there for ER + ? what about olaparib/cedarinib for ovarian ? latest MS drugs ?

Re: Pls help Aussies get TDM1 Kadcyla
 

You are an Activist , like us - we started with a Petition , but realized we needed more. So we found like-minded Stage IV Activists on these Boards. especially Inspire Advanced BC Community . and then put up a FB grp to publicize our Petition. 3 other Stage IV survivors spoke with us at a public rally . Outside our local state capitol city hall ( Boston ) . we didn't get press coveragethat time . even though we had goten personal tv. newspaper coverage of out journey to Wash. D.C. to get the drug thru exp. access. So we then had a Picket line outside the international Bio convention , fortuitously also in Boston that yr. DC, our nat.l Capitol is far away. Picketing much more effective. so get a few Stage IV survivors - go to Press. and with your families , friends pick the closest , biggest govt building or pharma office. announce press release and demonstrate . it is exhilirating. we had our Congr. rep and Senators call the co. and our FDA . have your pols call the co. , and govt agency heads. put them on notice
don't let non - activists dissuade you . many , even survivors , have un-conscious biases - often against " big, bad " pharma, or some against Big Bureaucratic Govt agencies . or for one or the other . the System Is what it is for now - most late phase II, III research is done by private co.'s - but both they and govt should be more responsive to stage iv citizens sacrifices, rights. we say " we are not anti - govt or anti - pharma .. we are PRO Stage IV Pt. ! " and " its not personal , their policies are in fact too rigid, slow, impersonal - to the point of killing us ! so we must Speak Up. Good Luck and God Bless !