Looking for advice and suggestions please
 

I come to you all looking for some hope with my newest challenge, brain mets!
I have been doing so well, working full time and 2 yrs of normal markers. This upcoming Fri was going to be my last kadcyla round. My dr was actually going to take me off and just closely monitor me!
Then on Sunday, out of the blue, my left side of tongue and lips went completely numb followed by uncontrollable twitching to the left side of face. I thought I was having a stroke long story short, a MRI revealed brain mets. 10 tumors! 5 of them large! I will be seeing my onc on Friday but wanted to start researching treatment options and clinical trials.
Please share with me any helpful links or suggestions
I'm not ready for this to be over! I have two young girls that need me!!
Thank you all, from the bottom of my heart

Keri

Re: Looking for advice and suggestions please
 

I have no advice or experience to share, i just wanted you to know that I am thinking of you.

Re: Looking for advice and suggestions please
 

Keri, I sent you a PM.

Re: Looking for advice and suggestions please
 

Wishing, hoping, praying for the best for you!

Re: Looking for advice and suggestions please
 

Keri, many of the members here have done very well in reducing brain mets and I'm sure one of them will be replying to you with good advice, I can only send my good wishes and I'm so sorry you're facing this.

Re: Looking for advice and suggestions please
 

Thank you all for the replies and pm's
I am starting WBRT today and am pretty nervous about the side effects
There are two trials I am considering after finishing brain rads. One with immunology drug, one w injecting tumors w hepatitis virus, and one using IT herceptin
I will keep you
All updated.

Re: Looking for advice and suggestions please
 

Good luck Keri!

Re: Looking for advice and suggestions please
 

Keri,

Best of luck to you today. Please do keep us posted on how you do and what trial you decide to be a part of. I'm glad to see that these trials are out there to address brain mets. In the meantime, I'll be sending positive healing thoughts your way.

Take care,
Brenda

Re: Looking for advice and suggestions please
 

Good luck, Keri!

Carol Ann

Re: Looking for advice and suggestions please
 

Good luck, Keri. Thinking of you! It's great that you have other tx plans for after WBRT! Please keep up posted.

Re: Looking for advice and suggestions please
 

Good luck Keri. I hope your WBRT went well.

all the best
caya

Re: Looking for advice and suggestions please
 

Keri--

It ain't over till it's over. I know brain mets are scary, and it must have been terribly disappointing to be NED in the body and then get this news. But there's hope.

Best wishes,

Re: Looking for advice and suggestions please
 

What a scare! I hope the WBR kills those mets fast. You will not be the first to beat this!

Love

Jacqueline