Re: ZW25 clinical trial - day one
 

Hang in there, Flori! Hope the new drug will make your horizon shine bright before you. Sending hugs for the hard moments. Use as needed.

Re: ZW25 clinical trial - day one
 

How ya doing, Flori? Thinking of you.

Re: ZW25 clinical trial - day one
 

Praying for you Flori!

Re: ZW25 clinical trial - day one
 

Hi Flori,

Thinking of you!

Juls

Re: ZW25 clinical trial - day one
 

Hello lovely her2 people, just me on a check in - doing A Okay. Last cycle I managed more aggressively my diarrhea and it seemed to work as far as not being dehydrated. Still don't understand why even half of an Imodium puts me into snoozeville but at least it was a more successful first week. Energy is pretty flat. Skin very dry. And hair is thinning and I don't have enough to spare. Trying to stay very present and just keep going. Scan to see if it's working is on 10/23...

Next round is Tuesday. Hoping for a shorter infusion day, sent them a reasonable timeline (can you even imagine??!!!) and asked for adherence. HA! But seriously, I have a 4 hour block that has to happen, between premeds and the drip. So IMO, no need to add another 3 hours of screwing around and waiting for the pharmacy to choose my order. Hopefully they will get things moving. Being in that dismal room takes its toll. #lostMYgratitude #badAttitude #cancerMODE #sorrynotsorry

Re: ZW25 clinical trial - day one
 

Bless your heart Flori.

I hope all goes well Tuesday and that the scan on the 23rd shows it's working!

As for the delay time for treatment, that's nuts. Back when I was getting treatment it was bad (not as bad as what you described but not good either) and I asked why one time and they said that because of the expense of the drug (herceptin) they wanted to be sure your butt was in the chair before they pulled the drugs. I started bringing it up when I checked in and then again when I was called back and they were administering the "prep" drugs. It seemed to work at times, other times not so much.

Re: ZW25 clinical trial - day one
 

Good to hear from you Flori! Hoping Tuesday goes smoothly for you.
Big hugs, Marie

Re: ZW25 clinical trial - day one
 

Glad to hear from your Flori! I know you are gutting this out and trying to be a patient patient, but really, just how patient can you be? The 23rd is just 10 days away! Will be praying for a great outcome! Hang tough (I know you will) and keep staying in the today. Tomorrow will take care of itself. I am inspired by your thinking, Flori, and trying to apply it in my own life. Good luck on the next round this week. Hope it is shockingly punctual!

Re: ZW25 clinical trial - day one
 

Thank you so much for the update. I have so much hope for this drug for all of us!

Re: ZW25 clinical trial - day one
 

Your sense of humor is awesome....sarcasm at times but ya have to do what ever it takes to get through all the crap. You are an inspiration. Sending strength and hugs your way!!

Re: ZW25 clinical trial - day one
 

Cathy, Laurel, Lucy, Steph, Sassy, Carol Ann, Juls, Lien, Jra, Marie, Donna, Emily Rebecca----and anyone else following along---
MY MARKERS WENT DOWN! A BUNCH.
I'm super encouraged by this bit of good news from my blood work today. Was in a funk, wanting to disappear and then decided to call them to make sure I was a go for tomorrow, no use wasting my resentment.
Tomorrow is cycle #4.
Holding on to this bit of good ju ju for now.
Fingers crossed.

Re: ZW25 clinical trial - day one
 

Yay Flori!!!! That's the best news - big smile on my face right now!!

Re: ZW25 clinical trial - day one
 

Great news Flori!

Good luck for tomorrow.

Juls

Re: ZW25 clinical trial - day one
 

So happy for you Flori!!!! :)

Thinking of you today as you get your next treatment.

Re: ZW25 clinical trial - day one
 

Flori,

I read your post at 4am this morning as was thrilled. It took me forever to get back to sleep! This is wonderful news. I will keep holding my breath and praying until the scan in a few days! Hope they hold to your "reasonable schedule" today and all goes smoothly! Doing the happy dance for you, my friend! Thanks for checking in with such cheerful news!

Re: ZW25 clinical trial - day one
 

YAY!!!!!!! You just made my day, Flori, so happy for you!!


Carol Ann

Re: ZW25 clinical trial - day one
 

F'lori;

Wonderful news!!!! This will make your scans very exciting. So happy for you. We'll share our scan results next week and party together. Yes! Hope you're feeling ok after the treatment. Mine are pills so much easier. What is the protocol for ZW25? I'm on these until I have progression.....which we're hoping is years. Do you get these infusions every two weeks for the same?

Cathy

Re: ZW25 clinical trial - day one
 

Wonderful news! So happy to hear the trial is working for you!

Re: ZW25 clinical trial - day one
 

Tumor numbers, etc. dropping "a bunch" bodes well for a scan that also shows improvement. I just know your horizon is getting farther out with each treatment.

Sending all good thoughts and positive energy that your body will keep accepting this new treatment.

Re: ZW25 clinical trial - day one
 

Oh yes, yes, YES!!