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-   -   Hi number of positive nodes (https://her2support.org/vbulletin/showthread.php?t=59882)

Her2husband 12-26-2013 06:42 PM

Hi number of positive nodes
 
My wife was diagnosed in June 2013 with 2.5 cm invasive ductal 11/24 positive nodes Her2+.

She had a bilateral mastectomy followed by 8 weeks of fortnightly AC chemo and has just finished 12 weeks of weekly Taxol. she has also started a 12 month regime of Herceptim. The doctors are giving her a break over December and then she will have 5 weeks of Radio in January followed by reconstructive surgery in April.

Has anyone else been diagnosed with over 10 positive nodes?

JillaryJill 12-26-2013 07:09 PM

Re: Hi number of positive nodes
 
Hi,
You can see from my signature, I had 12 positive nodes. I am 3 years and 2 months past diagnosis and doing great!

Her2husband 12-26-2013 07:13 PM

Re: Hi number of positive nodes
 
Thanks Jill...great to see you are doing well. My wife is pushing on through her treatment and being very positive we had a lovely christmas and she will start her rads next week.

JillaryJill 12-26-2013 07:25 PM

Re: Hi number of positive nodes
 
Perjeta just got approved by the FDA...has your doctor mentioned this?..I know your wife already had her surgery, but its worth asking.
I also enrolled in the vaccine trial at Mayo as you can see from my signature. I tolerated the vaccine very well. Many of the the women on the board had the vaccine also. She still has radiation ahead of her...but something you might want to research on her behalf.
The number of nodes is really scary, but many of the women that had chemo prior to surgery, probably had a bunch of positive nodes but Herceptin and the chemo eliminated the cancer in the nodes. I also had many areas of extracapsular spread into the muscle area of my arm...so I was a mess.
My onc at the inception of my treatment said I had less than a 10% chance of recurrence if I tolerated all the treatments. She has a large practice at Rush in Chicago and has been at the forefront of the early Herceptin trials. She treats alot of Her2 patients. I have to admit I did not believe how positive she was, but I just had my check up last week and I told her...I am starting to believe I will be ok. She told me it is "A New Day" for treatment of Her2. She just returned from San Antonio Breast Cancer Conference. She said the positive news about the current Her2 treatments and new ones in the pipeline are incredible.
It's a crappy disease to get...but we are in exciting times from a scientific standpoint.

lkc Gumby 01-06-2014 09:19 AM

Re: Hi number of positive nodes
 
Hi There!
I was diagnosed with a stage IIIC , her2 positive BC with 12 out of 14 positive nodes. Actually my axilliary and sentinel nodes were totally replaced by tumor, and I also had vascular invasion. That was June 2005!! I am totally well and living happily.
Please tell your wife HER2 positive BCs are so treatable due to the amazing new therapies.

Tams20136 01-09-2014 09:45 PM

Re: Hi number of positive nodes
 
Amazing...

Jackie07 01-12-2014 12:51 AM

Re: Hi number of positive nodes
 
Another amazing story: http://her2support.org/vbulletin/showthread.php?t=58937

linn65 04-22-2014 08:41 AM

Re: Hi number of positive nodes
 
Wow Linda,

You gave me more hope!!! 2005 that is awesome it sounds like we are similar!! Thanks for sharing that makes me feel better. :)


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