Stopping Tykerb
I have been taking tykerb for a week and have decided to stop it. The diahrea is so bad. Every time I eat something it goes right through me like a water faucet. Immodium does not help. I am so weak from this. I was taking it with Herceptin as a preventative. My Oncologist wasn't even sure I should do this but since I insisted, he agreed. I figure if my cancer comes back and I need to get on this, I will have to put up with the side effects. But right now it's just not worth it. Why put my body through this until I need it. ...sherryg683
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Sherry, so sorry that your Tykerb side effects were so severe. I think you are going with your gut and making the right decision for you. You're right, if it became a life threatening issue, then we learn to live with certain side effects for the benefit.
You can keep the Tykerb in your back pocket until you really need it. |
Sherry,
Wow - after you agonized over the decision and fought so hard for this! Maybe your body is giving you a sign that this is not the right time for you to be taking this drug. Enjoy life without those nasty side-effects, and keep that stuff in remission for another 20 of 30 years on just the Herceptin, okay? |
Sherry,
I wasn't really sure if the severe (and I mean SEVERE) diarrhea I experienced was due to the tykerb. But based on your experience and others, I'm now sure that was it. DARN!! Now I've decided to stay off it a little longer. My daughter and granddaughter arrived today from Buffalo and we're having a baby shower at my house on Sunday. Then next week, my husband and 93 year old Mom and I are going to Buffalo for my daughter's college graduation - on Mother's Day. I do not want to jeopardize either occasion with the most miserable side effects! I'm so glad I found this website. Your input really helps me through a difficult time. Unfortunately, I can't give up on the tykerb yet. Too much going on with mets. But I remain hopeful that I'll be able to get through the side effects and after a few weeks, I'll adjust to the drug. I never had any problem with Herceptin. I'm surprised that tykerb can upset your system so harshly. |
Sherry, how are you feeling? Are things back to normal yet? Hope so.
<3 Lolly |
I'm feeling back to my old self again after stopping the tykerb. The diahreah quite immediately. But just after those few day on it, i had all these little pimples pop up all over my face. They are just now going away. Figures, I would have all the side effects realated to it..lol. If I have to get on it for necessity, then I will just have to put up with it..but not now...sherryg683
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Shery-
The diarhea can be severe, and you are wise to save it for when needed. Like muldoonmom I can't stop it now due to progresion of mets, but the immod seems to work for me... Regards, |
Sherry:
Another idea would be to take a smaller dosage of Tykerb, go from 5 pills to 3 pills a day. The pimples would indicate that you are a good responder to it. |
That's interesting about the pimples and being a good response. I must really respond to it because after just a few days it looked like I had splattered a powdered donut all over my face. I think I am going to just wait if I need it later, I know my oncologist is going to give me grief about getting off it because he joked about all the papers he had to sign to get me on it...lol..sherry
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