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-   -   we want to survive,need help (https://her2support.org/vbulletin/showthread.php?t=18025)

hooman 01-07-2004 03:25 AM

i am living in iran,my motehr dx one year ago,advanced breast cancer er-/pr-/her2 3+.stage 4 .liver,bone,lymph node,..
dr decide for chemo taxol 6 cycle liver had no sign of any mets.
we dont have herceptin here and insurance companies dont accept that i found taht in dubai and buy just 3 vial very very expencive.my motehr had just that 3 vial .
after 6 mounths from the last scan ,bone scan shows many mets.
my motehr have ct sacn friday plaese pary for us.
i am seriuose to find way to reach into herceptin ,my motehr need it but i send many emails to organizations they didnot help.
we dont have clinical trials here,my dream is some day find cancer vaccine in markrt maybe 2006?
i need solution,solution solution
what should i do ,if i want to leave this country they told me you are terorist you cant ,if i want to saty i cant.
there is no herceptin here,and really expencive in dubai near us.
i need alternative tetrapys,do you kno about il-2?immuneterapy?rathionale way?
what do u recomend to me and my mother?

dede 01-09-2004 03:49 AM

There has got to be some way you & your mom could get here. They bring children from there to here for treatment...maybe go to the American Consolate and talk with them...bring medical records with you, and tell them you just want help.

jessica 01-09-2004 12:34 PM

I'm sorry to hear about all the difficulties you're facing.Your mother is lucky to have you taking such good care and working so diligently to find treatment for her.
Have you tried contacting Genentech (the pharma co. that manufactures Herceptin) and inquiring about providing Herceptin for compassionate use?They may even be able to arrange some type of financial support? Maybe Christine can help you direct your inquiry to someone specific at Genentech?
Just some suggestions.Hope you are able to find a solution.In the meantime, praying for you and your mom.
Jessica


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