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Joan M 03-26-2024 11:37 AM

HER2+ Survey
 
Hello, Everyone!

Checking in to post this HER2+ survey being conducted through the University of Chicago. Please participate if you have MBC.

https://redcap.link/TREAT_HER2

I have been living with MBC since 2007 and stopped treatment in March 2020. I have been NED since 2008 (lung and brains mets). Further on stopping is because my brain met and one of my lung mets was mTNBC. So, on changing oncologists after 11 years, two individual oncologists recommended independently that I stop treatment because it appears that my pathology changed (roughly a 30% chance of that happening). A third opinion agreed.

I'm heavily involved in breast cancer advocacy, such that it's like a full-time job. Always praying that MBC will eventually become a chronic disease, and of course also cured. But I'll take chronic!

Much love,

Joan


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